Hi Jeff, Your story is inspiring! Congratulations! Meanwhile, we need more sockless docs: and patient, persistent, determined people like you and your wife are the people to create them!
Be well, Léna On Nov 11, 2015, at 4:16 PM, Jeff wrote: > Sorry it has taken so long to do this. I was given a lot of useful help and > suggestions from here and I wanted to update what we have been doing. As you > may remember, my wife has been suffering for almost 3 years with a bladder > problem ( that has never been really diagnosed because it doesn’t fit > completely into any category ) that has caused her to be in almost constant > pain with flare ups of intense pain, frequency with flare ups of having to go > every 5 minutes, uncontrolled bladder function, bleeding, we were told the > inside of her bladder looked like hamburger meat, she has been on every drug > for bladder healing and every antibiotic and had 2 fulgurations after which > we were told the bladder would have to be removed. This was on 7-30 of this > year and confirmed the end of August at post op visit. After some research > and getting advice from the helpful folks here, this is what we did. > > Starting on September 3 I began doing irrigations of CS ( made with silver > puppy and run on manual for tow hrs after light goes off. Not sure of the > ppm, maybe Ode can weigh in on that ) once a day. I would have preferred more > often but this is all we could manage. I won’t go into a lot of details on > this because it would make for a very long post. > > We started with 30cc because that was all she could handle and she only held > it for 11 minutes. > After a few days she could hold it for 30 minutes which was our goal > She was also sitting in a hot tub for 15/20 minutes before the procedure to > help relax everything > We have had our share of failures due to different reasons but we got most of > the bugs worked out > I gradually increased the amount by 10cc a week and it was rough but she > fought hard to keep it for 30 min > Also added 1200mg MSM capsules once a day after the first week > During the third week I started introducing some DMSO to the CS slowly > building up to 2ml > After 3 weeks she was out of the pain meds she was on and we decided not to > refill and see what happens > She had trouble sleeping for about a 4 days due to not taking one of the meds > but pain was bearable > She would experience involuntary spasms after stopping the muscle relaxer > that would push the CS out > And cause us to fail. I started her on D-Mannose and the spasms stopped. > > That is pretty much our regiment now except we no longer use the hot tub > We don’t do the procedure on the weekends > The pain reduced on a daily basis till last Friday when she told me she was > pain free > She has control of her bladder and has no more flare ups or frequency problems > She is on no medication at all for over a month > She can take 4oz of CS in her bladder and hold it for 30 minutes no problem ( > up from 30cc ) > I can’t seem to break the 4oz barrier for some reason but we don’t see the > doc till Feb > So we will keep plugging away. We are hoping to blow his socks off > Thanks again for all the help, hopefully more updates to come. > Jeff
