I'm with you Cheryl.  I also have not had an appointment with my neuro for three years.  There is nothing that can be done for me.  At this time, there is no medical cure and my PC provides me with all of the pertinent medications to keep me as comfortable as I am going to get.  I do worry about things from time to time, but my doc tells me not to worry as at this time there is nothing to change so "let go and let God".
 
Peace,
Jude

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