Re: [TMIC] TM and MS

[Sandy Heidel]

I used this for about two years before I made the switch to  rebif another MS drug.  Rebif was not yet approved in the US so I started on the betaseron until it was.   But towards the end of my time on the betaseron they changed their formula so the drug no longer needed refrigeration. Once they did that I started having terrible sight reactions again. I had them at the beginning too but they tapered off. Once the new formula was in place they got very bad again.  So I was happy to make the change to the rebif.    The only difference is the rebif stings when you take it. The beta did not.  But you can get a Rx for some cream that numbs the skin. I generally don't have any sensation at the shot sight but every once in a while I hit a "live nerve" and Yeeeeowww that sucker burns.   Also the drug company will tell you to use an ice pack before and after the shot (either beta or rebif).  But if you use a hot pack the sight reactions are smaller, the pain is less, and the drug is absorbed faster.  This is what the drug company "experts" have learned from real live patients like us.  So skip the ice and use a hot pack.  I use a sock filled with rice in the micro for a minute or two.   Take care. Your Dad is lucky to have you looking out for him, Sandy in Wisconsin where snow actually fell  like it was promised but my husband still bought the wrong lottery tickets!   ----- Original Message ----- From: neda fotouhie To: tmic-list@eskimo.com Sent: Friday, February 17, 2006 2:09 AM Subject: [TMIC] TM and MS Hi My father's symptoms become worse and doctors say his TM may turn into MS. He has no lesions in his brain.They prescriped Betafron/Betaseron. It is a medicine for Ms. I want to know if any of you use this drug and do you think is it possible without having lesions in brain one have MS? Yahoo! Mail Use Photomail to share photos without annoying attachments.