Re: [TMIC] REMEMBERING CHRIS AND DANA

[Parkerswebe]

You are absolutely right, Jeff.    You were quite fortunate to meet them both.   Dana was an incredible role model for someone like me, a caregiver.  But, she was much more than that.  She was graceful, charming with an infectious smile, she loved and loved deeply and yes, she fought so hard to make life easier for those with needs.   We cannot forget that, and we cannot let her death be in vain.  Her death and Chris's death need to translate into the work they did and it must continue with the help of the us, our family members, our friends, researchers, our representatives  as well as a host of others.   I have a feeling that their son, Will, will become a very powerful person in our lifetime and continue the progress that his parents made.   He will continue to make them proud and fight as hard as they fought.   Sandy Parker but the fight must go on and we must continue to push for a cure and research.they both faught so hard to make life easier for us.we lost two big pioneers in our world.                                                                                       jeff