Hello Judy,
 
You have voiced exactly what my own neuros have told me over this last year.  Recently at one of the Devic's sites, someone mentioned Provigil as a possible drug for fighting fatigue.  The thing is, with every drug there are side effects. and unless you are willing to bear down and grit your teeth and cope with them, taking the drug is pointless.  I personally hate all of the drugs that are necessary for my survival, but would much rather live with the side effects than the alternative.   If my hands tingle---so what,  at least I'm still alive.  If my hair falls out from the chemo---I'll wear a doo-rag.  It's   a trade off that one has to be willing to accept.   Like you, my fatigue is overwhelming---but thus far I haven't found a solution.  Maybe someday.
 
Grace  

 
On 5/30/06, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote:
Having had fibromyalgia and CFIDS for so many years before TM, I am used to the overwhelming fatigue.  For me, it is nothing new that came with the disease.
 
Over the years, more than one doctor has told me that the fatigue is brought on by the immune deficiency part of the diseases.  The immune system turns on when we are first violated by disease, but in our case, does not turn off the way it normally would when one recovers from being ill.  The amount of work involved in fighting disease takes up enormous amounts of energy, and some of our systems are overworked, sometimes to the point of giving in and that's when other viruses, etc take over, taxing our bodies even more to the limit.
 
Does this premise sound like any other that has been voiced over the years on this TM site?  Is it medically incorrect?  I have always wondered.
 
Any other viewpoints?
 
Peace to you all,
Jude

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