Krissy, There is lots of info on Myelitis. org, and other sites too.
My secret is to write the letter for your doctors. I asked the secretary to print the letter out on the doctor's letterhead and have the doctor read it, make any changes (they never do), sign it, and mail it in to the SSA. Works very well. I know patients who are not MD's who did this. Why does this work? Doctors are overworked. Best of luck F
