Tracey: I have taken my sweet time, I guess, getting ready for this step mentally. The first year was the worst. Now I have bowel "control" at least 90% of the time. I have tried the medications, etc. and I just get UTIs. What kind of procedures are they doing? Exercises? Ive tried hourly trips to the bathroom, and what I get with that is no voiding until I stand up and get somewhere else, then it goes! Dr. Wright said it sounded like my bladder is just doing whatever it wants to when it wants to, regardless. I said, YEP. Of course, I am 61, had a hysterectomy and then surgical repair of cystocele, rectocele, and urethral sling. Tell me more of what they are doing with Ashlee. Cora
> Cora: > My daughter, Ashlee, is actually in The Kennedy Krieger Institute for > Spinal Cord injuries and they are going to work on how bowel and bladder > and their main goal is to get her out of her pull ups as well. They are > attached to Hopkins and are excellent at rehab. My daughter, who just > turned 13 has been dealing with TM for almost 2 years. She has made so > much progress in the last 4 days of being here, it is amazing. These > people are great, if you have the opportunity to come here and let them > work with you, I know that you would probably see results. They do > intensive rehab not only on the body but have a specific nurse that > works with the bowel and bladder patients to get them out of diapers and > pullups and into normal underwear. Do you cath during the day at all? > > > -----Original Message----- > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > Sent: Thursday, December 14, 2006 7:15 PM > To: tmic-list@eskimo.com > Subject: [TMIC] Interstim therapy > > Hey all: I am going back to Johns Hopkins again to the plumbing dept. > I have had no luck at all taking medicine to get my bladder to work > right again and so the docs are going to see if I am a good candidate > for interstim therapy. > > Any of you tried it? It is rather like a pacemaker for the bladder, > with a lead placed nest to the sacral nerve, and then you adjust the > electric signal until it makes the bladder relax and quit > spazzing,(making you void). After four years of this wearing diapers, > I'd like to see if something can be done. He said 2nd choice is botox, > but it has to be repeated every 7-10 months. > > Most radical is surgery on the bladder--reconstruction actually. I > don't think I hate diapers that much. :~) > > Cora > > > > >
