Good Afternoon all, I apologize if you misunderstood. I was not attempting to sell something. That was not my intention. I have not posted about this since my improvement had really been taking off in September, for fear someone would misunderstand. My improvement has been so substantial that I felt sharing this could help some of you suffering from TM symptoms. I have not implied this will cure anything, only that my experience with glyconutrients is that it provides the necessary nutrients for my body that has allowed my cells to properly communicate and my body has begun to repair. I really wanted to share my experience with these technologies since lately there have been so many posts on the list from people in so much pain and suffering from the symptoms of TM and MS and I no longer have these symptoms. They are not being masked by drugs anymore they are actually gone. I feel like I have been given a second chance at life. I no longer spend 70% of my day in bed. I am enjoying my girls and husband so much. Life is a joy for me again! My internal medicine doctor, who I have been seeing for two and a half years, is absolutely amazed at the change in me. My doctor has had me on many supplements and was doing acupuncture since I started seeing him. I did have some improvement in some symptoms but my body had never had any real healing. In June when I began taking Glyconutrients I was taking six side effect heavy medications and I am now down to one, at a half dose, and I am tapering off this one as we speak. I am not knocking other supplements and natural nutrients. I still take my fish oil and I agree this is a very helpful supplement! I also still take a Cranberry & Buchu product from Natures Sunshine to help prevent bladder infections. I used to take 12 a day I now only take 4 due to the helpful effects of Glyconutrients. Our bodies still need the raw materials to perform the daily activities and repairs Glyconutrients does not replace these important needs for basic raw materials, exercise, water, etc it only provides a missing set of materials that are critical to our bodies ability to properly function as intended. I am really not going to spend a lot of time disputing what the Internet has spewed out about glyconutrients, you know they even say Elvis is still alive on the Internet as well, but only leave you with this: Most of those negative reports are from those who already have a predisposed negative view about these products and marketing tools. Yes, it is network marketing and they are not being sly or coy about their product, but due to FDA regulations they CANNOT talk to you about specific products only Glyconutrients in general related to results. I do want to mention the ratbags web site as much of their evidence is skewed in its view and not balanced, an example is the PDF document referencing the tree sourcing by the company. If viewed with the lens that this is already negative you would assume that the use of the fibers in the glyconutrients was simple fiber to fill the product, but if you actually looked at the product and used and studied where the saccharides come from it you would notice the wording about where these fibers are used. It is a statement about the use of the quality fiber used in a completely separate product line, NOT the primary glyconutrient supplement (I have been on the primary supplement since June of last year). And furthermore, the saccharides are derived from these types of plants in a patented extraction process anyway, so the raw material might look a little funny in a press release. If you are interested in real science about glyconutrients, please look at real science journals and web sites Journal of Anatomy, Embryology and Cell Biology devoted and entire issue of their publication Acta Anatomica Vol.161, No. 1-4, 1998 publication to the topic of the glycosciences OR Science Magazine, a peer-reviewed journal of the American Association for the Advancement of Science (AAAS), devoted its 23 March 2001, Volume 291, Issue 5512 to carbohydrates and glycobiology. Look at JAMA and many others, these will dispel many of the urban legends around glycobiology. Well if anyone is left reading at this point I just want to say that I felt that people on this list could benefit from what I have used and had great improvement with.! Have a great day! Jenna
Kathryn Keen <[EMAIL PROTECTED]> wrote: I was interested in the claims made in Jenna's post on Glyconutrients, (http://www.vitalcarbs4life.com/ http://www.glycoscience.org/) but felt it sounded a bit like a sales pitch. I did a web search and found many sites selling the same thing with the almost the same wording as one another. It sounded a bit like a pyramid selling scheme. None seem to actually describe the product they're selling in any details, or give prices or ingredient lists etc. but all make these really huge claims. I also came upon this site, which gave a different perspective, and refuted claims about some of the studies: http://www.ratbags.com/rsoles/comment/mannatech.htm http://www.ratbags.com/rsoles/comment/mannatech060910.pdf Having said that though, Jenna, I'm not disputing your claims, and would be very interested in any treatment or supplement that actually works. Like everyone else here, I'd love to be cured or at least to find something that relieves the suffering a bit (or a lot!). I have noticed since being struck down by TM that I sometimes get huge sugar cravings and eat lollies when I do. I never used to have a sweet tooth, but now I do. I don't pig-out on them all the time, (because my legs are already wasted heaps from a yr in a wheelchair, and I don't want to have to put on extra weight for them to have to try to hold up, as I'm now managing to walk a bit now with a Canadian crutch), but the sugar-craving is something I've noticed. I wonder if that's something to do with the claims of the sites on the Glyconutrients about sugars? Maybe it's just coincidence, but I did wonder if my body may be needing more sugars or something, when I had these real cravings for something sweet. One doctor I saw while having a scan done suggested to me that fish oil supplements and glucosamine are useful in demylenating diseases, as they will help protect it in some way. I take the fish oil, as I'm a vegetarian (not any more I guess :), and think maybe I've been missing out on something in the diet. (Although no way I could bring myself to eat meat though).. But I haven't tried the glucosamine yet as it's too expensive, and I'm only barely struggling to make ends meet as it is. Has anyone tried the glucosamine? None of these things is actually a 'cure' or anything, but just maybe a maintenance thing to try to keep as well as possible, under the circumstances. I do get a bit worried at some of the quackery that targets sick people, who are desperate for cures or relief, and are probably an easy target for unscrupulous people to make money out of. But if anything would give some relief, then it would be great. I just don't want to be ripped off, because it's so hard to manage with being sick anyway. I agree with others that have written in here, with the pain. I've found the constant pain is the worst part of this. My back pain just won't go away. Some days it's not as bad as others, but it's always there. I find when I've tried to push myself to do more, I tend to pay for it over the following days with heaps more pain and fatigue. After the back pain, the legs and feet are next worst, with the pain and frozen feeling and banding. But all my joints seem so incredibly painful at times too. It's just relentless. Then there's the spasms and twitching legs; and not being able to go to the loo without heaps of laxatives every day, or to even push properly. I'm taking 200mg Tramadol morning and night for the pain, and Neurontin (which I can barely afford, so only take a little, as it's not on the PBS for neuropathic pain here, and costs almost $100 a packet at most chemists), and Baclofen for the spasticity, (which has made a huge difference for me). I still sometimes need to take Endone in the middle of the day if the pain becomes too severe. I've tried going off the Tramadol, as I don't want to become dependant on it, but the pain is just unbearable when I do. 200mg Tramadol is the biggest dose available and is long acting, and at least gives me relief. It's been over a year since I was struck down by TM, and I would have hoped that the severity of the pain in my back might have subsided by now, but it's still really bad. Well, thanks for listening. Kathryn Keen NSW Australia (where it's sweltering hot; the weather forecasters have predicted 46deg. C (about 115 deg F) heat on Sunday, and there's fires raging out of control in many areas across the country, and our town's water supply is now down to 13% due to drought, and with level 5 water restrictions likely to be implemented in March if we don't get heaps of rain in the catchment in that time). --------------------------------- Looking for earth-friendly autos? Browse Top Cars by "Green Rating" at Yahoo! Autos' Green Center.
