I don't know if I had a five year plan, but it has now been five years! The first year I was in denial of the true impact of it all: I denied how it happened, how it progressed, etc. etc. About a year later, I revisited it all, and it happened just the way Dr. Kerr described it. Why did I have to hold myself out as an exception for a year?
The second year I was angry. The third year I started working with my disabilities: attended the first Rare Immunoneuroligical Seminar, met Dr.. Kerr: and things began to be understandable. I worked with Dr. Kerr, and with Urology, both here in Okla and in Baltimore. I found out about hippo-therapy (horseback riding). Changed to a better massage therapist, Got a neurostimulation device for my spastic bladder. Now I know me--and I could not have made a plan that would have put me at the place I am now for any amount of money in the world! I feel more like I am a mouse stumbling through a maze with a wise guide who prods me, blocks me(from going down the wrong path), encourages me, and sometimes must be frustrated that I don't get it. Yet I have such progress that I could not even have imagined 3 years ago, when I was starting to look for what improvement I could hope for. (stepping down from soapbox) I guess I just know there's Someone taking care of all of us, if we let Him. (or Her, smile) Why would I attempt to make another five year plan? I'd never have hoped for the wonders I actually received. Cora > The medical community has had me for the first five years. I have > decided > that I am not wild about their plan since obviously there is none so am > devising my own. My neuro is so busy that he will see me only twice a > year so I am > going to Charlotte, NC to see a new neuro that a friend of mine knows. > Am > busy making a list of all of my problems which to some will see little > but to > me I want them better. If any of you have any suggestions, feel free to > become a part of my medical community. > > l. Feet feel like marbles with duct tape wrapped around them. (Am > finding > that message helps a lot) > > 2. Legs feel like wooden solders. (Message helps} > > 3 Pain right side and hip.. (Heating pad only thing that helps) > > 4. Right buttocks not happy. (no suggestions Maybe loose weight. > > 5 Banding under boobs. ( does not happen often but is getting worse) > > 6.Have you ever seen a little balloon inside a big one? That is how my > rig > ht side feels sometimes if this makes sense. > > I walk with the cane and am finding I am hurting more when I walk. If I > could stay seated all the time I would be a happy camper > > I am taking 2400 gabapentin and Tramadol when needed. Have tried > baclofen > and cymbalta but could not take either. My plan right now is to try > everything that was suggested in the Spring newsletter. Pain doctor is > being quite > helpful with this. This is an interesting article if you all have not > seen it > Medical approach to the management of neuropathic pain. Am trying > acupuncture.. Jury still out on this. > > Trudy in case you read this I am coming to Va. Beach in November for a > bridge tournament. Know you live in the eastern part of Virginia but am > not sure > where. Do you happen to be in Va. Beach? > > Ann in Roanoke (I am usually never chatty.) > > > > ************************************** See what's new at > http://www.aol.com >
