We live in the Fontana, Riverside Area, Kaiser members. Anyone have any
experience with a Nuero that "knows" TM?? Any suggestions as how to locate one?
All suggestions welcome. Dee for Art diagnosed about 2003. Not walking, depends
on scooter. Can stand with support. Takes very slow baby steps. Me, caregiver
getting weary.
[EMAIL PROTECTED] wrote:
tmic-digest Digest Volume 2008 : Issue 142
Today's Topics:
[TMIC] queston [ "Robert Pall" Re: [TMIC] queston [ "[EMAIL PROTECTED]" Re:
[TMIC] queston [ [EMAIL PROTECTED] ]
[TMIC] Thank you [ "Robert Pall" Re: [TMIC] queston [ "jrushton" Re: [TMIC]
queston [ "jrushton" Re: [TMIC] Thank you [ "jrushton" Date: Mon, 31 Mar 2008
09:00:31 -0400
From: "Robert Pall" <[EMAIL PROTECTED]>
To: <tmic-list@eskimo.com>
Subject: [TMIC] queston
Need a little help! After more than 10 years I started having new
symptoms in my left (the good one) leg. My left leg has always had pins &
needles
but this weekend I had the burning (freezing) sensation and although it
has not gotten worse..it has not gone back to what I call normal. I have e
mailed Dr. Kerr and hopefully he will supply some in sight. I also want to
thank members on the list who have given me names of Nerros in New Jersey that
they use and are happy with
I will contact at least one of them. In all honesty
I am somewhat afraid! I thought I have been dealing with TM in as positive way
as is possible. I just don't know if I could handle another episode especially
if It requires hospitalization.
I know all of us do not have one day that is exactly the same as the
previous one
but have any of you experienced new feelings (good or bad) that
was not a result of a relapse? If this continues I doubt if I can continue
working as the discomfort does not allow me to concentrate on my work. I can
only focus on the new feeling of burning!
Thank you for any insight you can provide.
Rob in New Jersey
Date: Mon, 31 Mar 2008 09:59:00 -0400
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: Robert Pall <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
Subject: Re: [TMIC] queston
Rob,
I was afflicted with TM in 2000. Recently I began having new symptoms and
increased pain during the "Medication Valleys". I went for an MRI which showed
a cinching in at the level of my lesion (C5). The demyelination was followed by
scarring, and the scarring contracted causing the indentation around the spinal
cord. This took eight years to occure as the previous yearly MRI's didn't shown
any cinching.
Now the question is does someone operate?? I think Not!!
F
JOKE: Descartes was having coffee at a cafe in Paris. The waiter asked if
Descartes would like another refill. "I think not."
And with that Descartes disappeared !!
Date: Mon, 31 Mar 2008 10:02:30 EDT
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: Re: [TMIC] queston
In a message dated 3/31/2008 9:13:03 AM Eastern Daylight Time, [EMAIL
PROTECTED] writes:
I know all of us do not have one day that is exactly the same as the previous
oneâ¦but have any of you experienced new feelings (good or bad) that was not a
result of a relapse?
Yes, Rob, I have experienced strange sensations and feelings and feared a
relapse or second episode, but it ended up just being some weird thing.
Sometimes it would just be for a day, sometimes it would last for months and
then fade away. You're doing well to get it checked out, and I hope that's all
it will be for you, just some strange nerve signal that will resolve in time.
Barbara H.
http://barbarah.wordpress.com/
---------------------------------
Create a Home Theater Like the Pros. Watch the video on AOL Home.
Date: Mon, 31 Mar 2008 10:08:52 -0400
From: "Robert Pall" <[EMAIL PROTECTED]>
To: <tmic-list@eskimo.com>
Subject: [TMIC] Thank you
I just received an e-mail from Dr. Kerr. He said he would be
extremely surprised if after 10 years I am having a relapse! He did suggest and
will prescribe an MRI of the thoracic spine ( to ease my mind). This will be
the first MRI in 10 years so it can't hurt to have it done
my biggest concern
is that they find something that nothing can be done for other than more pain
meds. Dr Kerr did provide me with the name of a Neurologist in NJ whom I have
already contacted. I will let you know the results from the new Dr. as well as
the MRI as soon as I can.
Thanks to all of the members who have already responded and who will
respond. Life would be so much more difficult without this wonderful list.
Thank you all!
Rob in New Jersey
Date: Mon, 31 Mar 2008 07:42:28 -0500 (Central Daylight Time)
From: "jrushton" <[EMAIL PROTECTED]>
To: "Robert Pall" <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
Subject: Re: [TMIC] queston
v\:* { BEHAVIOR: url (#default#vml) } v\:* { BEHAVIOR: url
(#default#vml) } FLAVOR00-NONE-0000-0000-000000000000 0.000000 ;
Rob, I know I've only had this 3 years and have different symptoms here
and there quite often but the rest doesn't seem to change. I always have the
burning/freezing plus the pins and needles, worse on the left but have had it
from the start. I just keep on with my water therapy and soon a walking
regime. Whenever things got really bad compared to the everyday symptoms I too
was afraid that it was a relapse but realized it was usually following working
out too hard, traveling where I sat too long, or let myself get too tired.
I think your idea of asking Dr. Kerr is a good one.
Good news!!! I've been noticing a change where I can feel temperature on my
skin on the left side which is the one that has never been able to feel temps!
I felt a cool sensation when I was taking off my clothes and then felt the
warmth of the shower! I could even feel it on my old butt and thigh!! It
still feels numb inside but this is a REAL change! I would do cartwheels if I
could!!
Jeanne in Dayton
-------Original Message-------
From: Robert Pall
Date: 3/31/2008 8:10:08 AM
To: tmic-list@eskimo.com
Subject: [TMIC] queston
Need a little help! After more than 10 years I started having new
symptoms in my left (the good one) leg. My left leg has always had pins &
needles
but this weekend I had the burning (freezing) sensation and although it
has not gotten worse..it has not gone back to what I call normal. I have e
mailed Dr. Kerr and hopefully he will supply some in sight. I also want to
thank members on the list who have given me names of Nerros in New Jersey that
they use and are happy with
I will contact at least one of them. In all honesty
I am somewhat afraid! I thought I have been dealing with TM in as positive way
as is possible. I just don't know if I could handle another episode especially
if It requires hospitalization.
I know all of us do not have one day that is exactly the same as the
previous one
but have any of you experienced new feelings (good or bad) that
was not a result of a relapse? If this continues I doubt if I can continue
working as the discomfort does not allow me to concentrate on my work. I can
only focus on the new feeling of burning!
Thank you for any insight you can provide.
Rob in New Jersey
Date: Mon, 31 Mar 2008 07:49:25 -0500 (Central Daylight Time)
From: "jrushton" <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
Subject: Re: [TMIC] queston
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Your e-mails always make me laugh, Frank!!
These are some things to ask Dr. Kerr in Seattle. Your 'cinching' situation
is interesting. I wonder 'why now' and what are your new symptoms?
Jeanne
-------Original Message-------
From: [EMAIL PROTECTED]
Date: 3/31/2008 8:59:09 AM
To: Robert Pall; tmic-list@eskimo.com
Subject: Re: [TMIC] queston
Rob,
I was afflicted with TM in 2000. Recently I began having new symptoms and
increased pain during the "Medication Valleys". I went for an MRI which showed
a cinching in at the level of my lesion (C5). The demyelination was followed
by scarring, and the scarring contracted causing the indentation around the
spinal cord. This took eight years to occure as the previous yearly MRI's
didn't shown any cinching.
Now the question is does someone operate?? I think Not!!
F
JOKE: Descartes was having coffee at a cafe in Paris. The waiter asked if
Descartes would like another refill. "I think not."
And with that Descartes disappeared !!
Date: Mon, 31 Mar 2008 07:56:17 -0500 (Central Daylight Time)
From: "jrushton" <[EMAIL PROTECTED]>
To: "Robert Pall" <[EMAIL PROTECTED]>, <tmic-list@eskimo.com>
Subject: Re: [TMIC] Thank you
v\:* { BEHAVIOR: url (#default#vml) } v\:* { BEHAVIOR: url
(#default#vml) } FLAVOR00-NONE-0000-0000-000000000000 0.000000 ;
Hi again, Rob...
I was just thinking of all of the different stories we have all shared. One
of them came to mind in that it talked about how we can't 'walk' the same
(those of us who are so blessed to be able to do that) and when we do our
unbalanced gait will cause spinal issues. I'll be really interested in what
your MRI shows, especially after also reading Frank's e'mail.
I'm getting ready to send in our $$ for the Seattle Symposium. We're really
excited about it!
Jeanne
-------Original Message-------
From: Robert Pall
Date: 3/31/2008 9:09:07 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Thank you
I just received an e-mail from Dr. Kerr. He said he would be
extremely surprised if after 10 years I am having a relapse! He did suggest and
will prescribe an MRI of the thoracic spine ( to ease my mind). This will be
the first MRI in 10 years so it can't hurt to have it done
my biggest concern
is that they find something that nothing can be done for other than more pain
meds. Dr Kerr did provide me with the name of a Neurologist in NJ whom I have
already contacted. I will let you know the results from the new Dr. as well as
the MRI as soon as I can.
Thanks to all of the members who have already responded and who will
respond. Life would be so much more difficult without this wonderful list.
Thank you all!
Rob in New Jersey
Dee
---------------------------------
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