HI; this is Gerry: I am proud of you; I have been following your progress. with your daily clinical days being on your feet 10 to 12 hiours . I know how you must be feeling. been there done that. don't have the tee shirt though. I am going to have my spleen removed on the 29th of april, at the montreal general hospital. would you by any chance be doing your clinical days at that hospital? if so it would be an honor and privilege to meet you. You are an inspiraation ; I have done what you are doing with your life; I know it is hard but the rewards; as far as I am concerned ; are worth it. please keep in touch sincerely gerry

From: marieke dufresne <[EMAIL PROTECTED]>
To: <tmic-list@eskimo.com>
Subject: [TMIC] RE: tmic-digest Digest V2008 #158
Date: Fri, 4 Apr 2008 19:10:59 +0000


Spasms vs Spastic :
Spasm: is a sudden, involuntary contraction of a muscle, a group of muscles, or a hollow organ, or a similarly sudden contraction of an orifice. It is sometimes accompanied by a sudden burst of pain,
but is usually harmless and ceases after a few minutes. Spasmodic
muscle contraction may also be due to a large number of medical
conditions, however, including the dystonias.

Spastic: The term generally originates from spasticity, a medical condition characterized by hypertonia, or a high degree of muscle tightness. Spasticity underlies spastic diplegia and many other forms of cerebral palsy.

Spasms come and go.. being spastic, like your leg means that the muscle DOES not know how to relax at all, when put into action, so to speak. Like when your MD held your leg up and it stays there and/or slowly lowers without you doing any of the work.

The baclofen will help with this and can improve your walking ability (if you are able to walk).
The most COMMON side effects persist or become bothersome:
Constipation; dizziness; drowsiness; fatigue; headache; nausea; sleeplessness. Your body will become accustomed to this and you start at a low dose in any case, and titrate up slowly to be able to adjust.

Meloxicam is for your arthritis... it's an NSAID (nonsteroidal anti-inflammatory drug)
The most COMMON side effects persist or become bothersome:
Constipation; diarrhea; dizziness; gas; headache; heartburn; nausea;
stomach upset; trouble sleeping.

FYI www.drugs.com for when you want to look up drugs.

Marieke

Date: Fri, 4 Apr 2008 08:34:27 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #158
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest                              Volume 2008 : Issue 158

Today's Topics:
[TMIC] med question - meloxicam and [ randy rankin <[EMAIL PROTECTED]> ] [TMIC] RE: tmic-digest Digest V2008 [ marieke dufresne <[EMAIL PROTECTED] ]
--Forwarded Message Attachment--
Date: Thu, 3 Apr 2008 17:02:03 -0700
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] med question - meloxicam and baclofen

Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned "spasm" later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ "getting older" he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time.

You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.--Forwarded Message Attachment--
Date: Fri, 4 Apr 2008 02:56:50 +0000
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] RE: tmic-digest Digest V2008 #156








re: Gaylon & Nurisng School

Hi,
I am Marieke, 32 yrs old, TM since 2004 (hit me at T1, so I was totally paralyzed from mid-chest down). I now walk with a cane and a long (full, KAFO) brace. I take meds 4x a day, for spasticity, neuro pain, low BP, bowels, bladder... AND I will be graduating from nursing school in 5 weeks! I have 4 weeks of clinical left (16 days) and a week of exams and then a few weeks off then I start work (cross your fingers I have an interview next week).

I will not lie, nursing school is hard, freaking hard! Not just because of the course work, but because of TM and what it's left me with (or without) I get physically exhausted and basically have NO energy for anything else. Especially now that I have had 4 days a week of clinical... My back hurts, my leg (good side) hurts, more so after the 4 days of 8 hr shifts on my feet. While it's true you can choose where you want to work when you are done, you still have to be able to get through school and it's requirements in clinical (skills as well as required hours). When I started I had no idea if I would be able to get through ONE day of clinical a week the first year, let alone 2 days (in 2nd year) and 4 days in 3rd! BUT I made it... somehow... not sure how! LOL

If you think that you can get through the clinical days your school requires (and yeah, a lot of those days are spent standing/walking) then go for it!

Feel free to email me or ask me any questions.
Marieke
[EMAIL PROTECTED]
[EMAIL PROTECTED]


Date: Thu, 3 Apr 2008 11:15:30 -0700
From: [EMAIL PROTECTED]
Subject: tmic-digest Digest V2008 #156
To: [EMAIL PROTECTED]

--Forwarded Message Attachment--

tmic-digest Digest                              Volume 2008 : Issue 156

Today's Topics:
Re: [TMIC] When do you know if it is [ "jrushton" <[EMAIL PROTECTED] ] [TMIC] urogenital system operation [ neda fotouhie <[EMAIL PROTECTED]> ]
--Forwarded Message Attachment--
Date: Thu, 3 Apr 2008 10:24:59 -0500
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Subject: Re: [TMIC] When do you know if it is time to quit!















My last day was a year last Sept. The TM hit 5/2005 and I was determined I could get right back to work as soon as I could stand and move with a cane, by golly! It actually set me back a bit because I pushed myself too hard.

The best way is to go on line. If I was starting out, I would go to the college and go into the nursing department and talk to one of the advisors. They would be wonderful in getting you started. You will have your parallels that you'll need to get out of the way. You'll need to get your school transcripts and you will get credit for a lot you've already taken in the maths, sciences, and humanities. Some classes you can probably challenge and may not even need to take them. All of these things your advisor can help you with. The biggest part is walking through that college door to get started! You may go into the program thinking you want to go in a certain field and halfway through change your mind which is perfectly all right! You can't always tell until you get into your studies and clinicals and see what is actually done.

I wish you ALL of the best in whichever direction you decide upon!! Please keep me up to date on your decision?? Jeanne


-------Original Message-------


From: [EMAIL PROTECTED]
Date: 4/3/2008 12:13:13 PM
To: [EMAIL PROTECTED]
Subject: Re: [TMIC] When do you know if it is time to quit!

Thanks for the reply Jeanne, how many years has it been since you had to quit your head nursing job? And what is the best way to get just how many different fields a person can specialize in , in the health care field?


In a message dated 4/3/2008 12:56:52 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes:





Yes, I do, Galon. Nurses put miles on (not literally, but it feels like it!) and even more so in a hospital setting. Most all of the medical field is computerized with way more sitting at the computer and not nearly as much moving around working with paper and charts but there is still a lot of moving and walking.

Also, there are the hospitals, etc. that have gone to the longer shifts but then you get a longer period of time that you have off. They are also the ones that pay the best. In the clinical settings, you get more regular hours and days but the pay is not as good. Drawbacks in each. BUT!! I don't regret one second of all of the time I was able to be a nurse. Life is way to short to give up your dream and you may be able to work it out just great!

There are so many fields in nursing you can get into and I do so encourage you to look into it further!

I don't think you would put on as many miles being a radiologist and you might really enjoy that, also! All sorts of directions you can go! The world is open to you!

My motto?? JUST DO IT!!! And think of the cheering squad you have here through TMIC no matter which direction you go!!!

Jeanne


-------Original Message-------


From: [EMAIL PROTECTED]
Date: 4/3/2008 10:53:37 AM
To: [EMAIL PROTECTED]
Subject: Re: [TMIC] When do you know if it is time to quit!

Jeanne, I have been strongly considering going back to school in the health care industry, but when my mother just a few weeks ago was in the hospital with a brain tumor and operation the daily walking back and forth from her rooms and the parking garage day after day for over a week had me walking very slowly for the last few days of her stay in the hospital. The distance was great and my fatigue was extreme. This has caused me to rethink this field because I watched all the different nurses and how much they have to walk in a days time. Since you are experienced in this area I would like to ask you a question. If I were to study the Radiologic field do you think the amount of walking would be drastically reduced since most of the time the patients would be coming to me instead of having to go to the patients all day over and over again? What do you think about this theory?


In a message dated 4/3/2008 11:09:13 A.M. Eastern Daylight Time, [EMAIL PROTECTED] writes:





Oh, Rob, to us there is no complaining when it comes to our TM. If that were the case, we might as well back out of TMIC and crawl in a hole and be alone, again!!

One of the most difficult moments of this entire TM time is when I had to walk in and give my notice having to tell my 'other family' of many years that I just could not do what I did before I was stricken. Nursing was so wonderful and the people I worked with and were truly my friends plus I was a lead nurse boss and by golly, I liked that!! I was sad to be giving up all of the patients that I had gotten to know so well over the years, also. The clinic would have let me continue working but my ability and stamina were not even half of what they were before. There was just too much pain and by noon I could hardly motivate. Plus I then had an hour drive back home which was stressful even with hand controls (that I didn't use) (another story)..

So, Jack and I talked it over and me, being spoiled rotten (at work and) at home finally decided I had to quit. I was able to get onto disability quite fast and have not regretted it one moment. I miss my people from the bottom of my heart but I just couldn't keep on. Jack then took early retirement and we have had the most wonderful time together. THE BEST PART???? NO ALARM CLOCK!! We are so busy and able to help the kids and grandkids more plus get back into volunteering in our little town, again. When the weather is halfway nice, we are outside. (I have a picture of me on the tractor if you want to see it!)

Anyway, just my two cents worth. Seriously, it's a very personal decision. That's where the prayer comes in....

Jeanne


-------Original Message-------


From: Robert Pall
Date: 4/3/2008 8:32:19 AM
To: tmic-list@eskimo.com
Subject: [TMIC] When do you know if it is time to quit!

I am obviously on a letter writing campaign…this is due to what I perceive as a worsening of my condition…ok here is my question….I have been working full time for the past 10 years after contacting TM (obviously this was after the hospital and rehab)…I drive more than 2 hours a day (welcome to New York City) and for the first time I am really wondering how much longer I will be able to keep this up…it just keeps getting harder. On the one hand if I stop working I will have all the time in the world to think of my condition (bad!), on the other hand work just keeps getting harder and harder both physically and mentally(bad too!). Please don't tell me to just cut down..that cannot work…..therefore what I have done mentally is say to myself that if I can just work 2 more years then I can retire…only problem is that 2 years seems like a very very long time!

I am going for a spinal MRI next week and Dr Kerr hooked me up with an excellent Dr. in New Jersey whom I will be seeing in a couple of weeks…so I am trying to be proactive…just not sure how much longer my "positive attitude" will be enough to get me by!

Sorry about this I truly hate complaining when I know so many of you are so much worse than I am!

Thanks for everything!

Rob in New Jersey
















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--Forwarded Message Attachment--
Date: Thu, 3 Apr 2008 11:05:46 -0700
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] urogenital system operation

Hello I would like to ask you to read the news from the following link: http://www.payvand.com/news/07/sep/1256.html And inform me if you know anything about this kind of devices or is anyone using it? If yes how much does it help you? Thank you very
 much




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