<http://www.aarda.org/survey.php>Anybody who is willing to take the
time, please fill out this short survey for the AARDA; it's extremely
important that they have accurate statistical information on the
autoimmune community, /especially/ if your family suffers from more than
one autoimmune disease - even if it's not the same one! See the website
for a full list if you're not familiar with other autoimmune disorders,
though if your family members have them, I'm sure you're already
somewhat familiar, ha ha. Thank you so much for your time, it's greatly
appreciated! The more accurate information the AARDA gets from the
actual community, the better they can shape and create the trials
necessary to assist us! And if anyone is interested, there is also a
portion included at the bottom of the survey where you can include your
personal information so that you can be contacted if you fit criteria
for research purposes, so if you're interested in participating in a
study that they might be doing, by all means, list your information.
But keep in mind - studies can also be rigorous and can require a lot of
time and energy, for some (actually, probably many of us) with TM and
many other autoimmune disorders, this is an undertaking not to be
considered lightly; so include your information if you're interested,
but if you are contacted, be sure to intimate what your limits are, and
be clear what you are and are not capable of and how much you will
participate in. EG: filling out forms, talking on the phone, forwarding
medical records, to actually going in and having physicals or
participating in the whole studies if desired. Thanks for reading and
the consideration - and spread the word if you know another community
where this website would be applicable and appreciated!
On a more personal note, sorry I haven't been online guys, but all hell
has broken loose in the family medically, and I don't get on the
computer much anymore. Hope everyone is doing as well as can be, and
certainly better than I feel, har har har. *grin* Special thoughts and
prayers to Jude, and anyone else in similar situations. Will try to be
more forthcoming with information and better at interacting in the near
future - a silver lining is coming (it's gotta be *grin*).
Namaste ~
Bernie
http://www.aarda.org/survey.php
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