Hello everyone, Thanks for all of the responses. I am glad to be able to ask
someone besides my therapist! The only things I take are baclofen, gabapentin,
and potassium. The gabapentin I am trying to work my way off of. I also wonder
if anyone else gets a burning sensation in their spine? Would that be nerve
pain? Hope you are all having a wonderful day!
Amanda
--- On Fri, 2/27/09, tmic-digest-requ...@eskimo.com
<tmic-digest-requ...@eskimo.com> wrote:
From: tmic-digest-requ...@eskimo.com <tmic-digest-requ...@eskimo.com>
Subject: tmic-digest Digest V2009 #113
To: tmic-dig...@eskimo.com
Date: Friday, February 27, 2009, 10:32 AM
tmic-digest Digest Volume 2009 : Issue 113
Today's Topics:
[TMIC] RE: tmic-digest Digest V2009 [ marieke dufresne
<marieke...@hotmai ]
RE: [TMIC] Muscle Spasms [ "Butcher, Bernard G (NY80)"
<Bernie ]
RE: [TMIC] RE: tmic-digest Digest V2 [ "Butcher, Bernard G (NY80)"
<Bernie ]
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Amanda, you can take a max dose of 100-120mg a day of Baclofen and/or ask for
Tizanidine (Zanaflex) as well. I take 100mg of Baclofen a day (20-20-20-40) and
2mg of Zanaflex at night as well. I used to take more Zanaflex throughout the
day too.
Marieke TM @T1 2004
--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 16:56:29 -0800
From: adis...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] Muscle Spasms
--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 19:37:45 -0700
From: cherp...@msn.com
To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; bernie.butc...@.com
Subject: Re: [TMIC] Is anybody there??
Linda
----- Original Message -----
From: Butcher, Bernard G (NY80)
To: jrushton ; tmic
Sent: Thursday, February 26, 2009 12:35 PM
Subject: RE: [TMIC] Is anybody there??
yes
BERNARD BUTCHER
From: jrushton [mailto:jrush...@columbiaenergyllc.com]
Sent: Thursday, February 26, 2009 12:06 PM
To: tmic
Subject: [TMIC] Is anybody there??
--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 19:47:22 -0800
From: jillybean60...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] For you MSr's
I know some of us TMr's turned into MSr's and I was just wondering have any of
you experienced that "Lhermette's sign" when you bend your neck forward and get
electric down your legs? And does that ever go away???
Thanks,
Jill in Chicago
TM '04
MS '09 :(
So many new options, so little time. Windows Live Messenger.
yes. I take Tizanidine for twitching at night - it helps alot, and helps me
sleep. My neuro also prescribed 60mg/day baclofen, but I found that after 30mg
for a couple of days, I became like a rag doll, I couldn't sit up without
flopping over & had a hard time standing up! - I do need baclofen for spasms, I
find 15mg/day does it
Barney
From: Amanda Diskey [mailto:adis...@yahoo.com]
Sent: Thursday, February 26, 2009 7:56 PM
To: tmic-list@eskimo.com
Subject: [TMIC] Muscle Spasms
My doc has me taking 20mgs 3x's/day of baclofen for muscle spasms, they still
keep me up half the night my legs shake so bad and I am staying pretty tight
even though I stretch twice a day. Does anyone have any suggestions? Is there
something else I could take or do? I am miserable!
Amanda
--- On Thu, 2/26/09, tmic-digest-requ...@eskimo.com
<tmic-digest-requ...@eskimo.com> wrote:
From: tmic-digest-requ...@eskimo.com <tmic-digest-requ...@eskimo.com>
Subject: tmic-digest Digest V2009 #110
To: tmic-dig...@eskimo.com
Date: Thursday, February 26, 2009, 2:06 PM
tmic-digest Digest Volume 2009 : Issue 110
Today's Topics:
RE: [TMIC] ANOTHER QUESTION [ "Patricia Cooley"
<patticoo...@wi.r ]
[TMIC] Re: Imuran (Azathioprine.) [ "Grace M."
<grace...@gmail.com> ]
[TMIC] Is anybody there?? [ "jrushton"
<jrush...@columbiaenergy ]
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PAM:
THANKS FOR THE INFO. I SAW MY DOCTOR YESTERDAY AND TOLD HER THAT I WAS
DISCONTINUING WITH THE AXATHIOPRINE BECAUSE OF HAIR LOSS. I SAID THIS DISEASE
IS BAD ENOUGH WITHOUT LOOKING LIKE A BALD EAGLE, SO I WAS GOING TO TAKE MY
CHANCES. IF I NOTICE NO NEW HAIR GROWTH AFTER SEVERAL MONTHS I WILL FIGURE THE
DAMAGE IS PERMANENT AND CAN GO BACK ON AN IMMUNE DESPRESSANT DRUG AS I NOTHING
MORE TO LOSE.
I DON’T KNOW WHAT I WOULD DO WITHOUT ALL THE TM FRIENDS. I APPRECIATE ALL THE
RESPONSES I RECEIVED. YOU ARE ALL THE BEST. YOU ARE ALL IN MY PRAYERS WITH A
SPECIAL PRAYER FOR JUDE AND DAVE.
PATTI - WISCONSIN
From: montzma...@aol.com [mailto:montzma...@aol.com]
Sent: Sunday, February 22, 2009 4:41 PM
To: patticoo...@wi.rr.com
Subject: Re: [TMIC] ANOTHER QUESTION
PATTI, I TOOK IMURAN 50 MGS A DAY FOR FOUR YEARS. IT MADE MY HAIR FALL OUT A
BIT. IT DID NOTHING TO MY NAILS.
THEN IT STARTED MAKING MY HAIR FALL OUT, I GOT OFF THE DRUG. I DO NOT HAVE WHAT
YOU AND LINDA HAVE.
I AM VERY VAIN. YES WE SHOULD WANT TO LOOK NICE.ITS A AUTI IMMUNE DEPRESSANT
WHICH I KNOW YOU KNOW. I WOULD STOP IT. I DID WITHOUT ASKING MY DOCTORS.
MY HAIR CAME BACK VERY FAST AND THICKER. I HAVE NOT BEEN ON A AUTO IMMUNE DRUG
IN OVER 2 YEARS I AM DOING GREAT, THANK THE LORD.
YOU ASK YOUR DOCTOR ABOUT ALL THE SIDE EFFECTS. WHERE I LIVE FOR CERTAIN DRUGS
WE HAVE TO SIGN THE RELEASE FOR THESE DRUGS HAVE MANY SIDE EFFECTS.
IN THE BAG MY SCRIPTS COME IN EVERY DRUG IS DESCRIBED AND IT TELLS YOU ALL
ABOUT IT.
BEST WISHES , TIAD PAM!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Need a job? Find an employment agency near you.
My dosage was 150mgs per day for over two years. I had no significant hair
loss and only stopped the treatment because I failed on it and continued to
have debilitating attacks.
Gracie (Devic's NMO since 2005)
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I take up to 28mg of Tizanidine per day, but only in the evening & during the
night. I tried during the day, but it makes me sleepy
Barney
From: marieke dufresne [mailto:marieke...@hotmail.com]
Sent: Friday, February 27, 2009 3:54 AM
To: tmic-list@eskimo.com
Subject: [TMIC] RE: tmic-digest Digest V2009 #111
Amanda, you can take a max dose of 100-120mg a day of Baclofen and/or ask for
Tizanidine (Zanaflex) as well. I take 100mg of Baclofen a day (20-20-20-40) and
2mg of Zanaflex at night as well. I used to take more Zanaflex throughout the
day too.
Marieke TM @T1 2004
--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 16:56:29 -0800
From: adis...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] Muscle Spasms
--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 19:37:45 -0700
From: cherp...@msn.com
To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; bernie.butc...@.com
Subject: Re: [TMIC] Is anybody there??
Linda
----- Original Message -----
From: Butcher, Bernard G (NY80)
To: jrushton ; tmic
Sent: Thursday, February 26, 2009 12:35 PM
Subject: RE: [TMIC] Is anybody there??
yes
BERNARD BUTCHER
From: jrushton [mailto:jrush...@columbiaenergyllc.com]
Sent: Thursday, February 26, 2009 12:06 PM
To: tmic
Subject: [TMIC] Is anybody there??
--Forwarded Message Attachment--
Date: Thu, 26 Feb 2009 19:47:22 -0800
From: jillybean60...@yahoo.com
To: tmic-list@eskimo.com
Subject: [TMIC] For you MSr's
I know some of us TMr's turned into MSr's and I was just wondering have any of
you experienced that "Lhermette's sign" when you bend your neck forward and get
electric down your legs? And does that ever go away???
Thanks,
Jill in Chicago
TM '04
MS '09 :(
So many new options, so little time. Windows Live Messenger.
