Hi Janice, I agree with Heather.? I am always careful checking the water temp with my hands before getting into the shower.? I cannot handle a hot tub or cold swimming pool as it makes me spasm.? Water must be at least 80-82 degrees in the pool, and nothing over 100 degrees is comfortable in the tub.?
Once I started getting feeling back (T8-10, June 1, 1999), I have had the pins and needles and burning/freezing pain.? I take Neurontin and Lyrica for it and it helps take the edge off.? It's kind of like having a horrible sunburn while sitting in a tub full of ice, NOT FUN!!!? It has progressed as the feeling increased over the past 9 years. Take care Janice, Hugs, Barbara A -----Original Message----- From: Pieter and Heather <pieterheat...@shaw.ca> To: Janice <jan...@centurytel.net>; transverse myelitis <tmic-list@eskimo.com> Sent: Sat, 21 Mar 2009 10:29 pm Subject: Re: [TMIC] Janice, ? I have the temperature problem as well.? I cannot tell hot or cold water on my left leg.? My right leg has some sensation regarding the water temps but I still do not trust that feeling when it comes to the hot or cold water.? I always have to start my shower get the temperature regulated priot to stepping into the shower.? Since I am not affected by TM in my arms I always test the water temps with my hands and arms.? I? have had this since day one back in year 2003. ? Not quite sure what it is you mean by 'buzzing' in your legs.? My buzzing would refer to the constant pins and needles pain I feel in my legs.? And no that has not gone away either.? I did not have it the first little while but once I was able to start learning to walk again etc then this pain started and has been my constant companion.? Using Gabpentin/Neurontin is the only thing that tempers the pain so it is tolerable. ? Heather in Calgary ----- Original Message ----- From: Janice To: transverse myelitis Sent: Saturday, March 21, 2009 3:15 PM Subject: [TMIC] This is Janice - yet again with another question.?? ? It has been 2 years since the onset of TM.?? From the top of my ribs to my toes I can not tell water temperature on my skin.? I have to be very careful with taking my showers.?? ?Do any of you have that??? I am wondering if it is something that will eventually go away or if it is something I will live with. ? Also, one improvement I have just noticed lately is the constant "buzzing" that I had in my legs as soon as feeling started coming back.?? Did you all have that and have any of you also lost it? ? Thanks again, Janice
