Hi, Amanda! Have you heard from anyone, as yet? Jeanne in Dayton
-------Original Message-------
From: Amanda Diskey
Date: 4/19/2009 1:22:04 PM
To: tmic-list@eskimo.com
Subject: [TMIC] quadraplegia
I was wondering if there is anyone here who is a c6 quad with very little
use of their hands and no use of their legs that lives independently. I am
needing to talk to someone who can offer some advice on how I can do some
things.
From: "tmic-digest-requ...@eskimo.com" <tmic-digest-requ...@eskimo.com>
To: tmic-dig...@eskimo.com
Sent: Sunday, April 19, 2009 10:48:07 AM
Subject: tmic-digest Digest V2009 #291
-----Inline Message Follows-----
tmic-digest Digest Volume 2009 : Issue 291
Today's Topics:
Re: [TMIC] leg and foot comfort in b [ "Janice" <jan...@centurytel.net> ]
Re: [TMIC] leg and foot comfort in b [ "Janice" <jan...@centurytel.net> ]
-----Inline Message Follows-----
I am soooo fortunate that I don't have the skin sensitivity that so many of
you talk about. If I pull up something really soft, like my gown or robe,
I will spasm for a minute, but I don't really have pain, just discomfort and
only for a minute. I would think that
the cotton knit would be a blessing. I like 100% cotton to sleep in for
summer - it helps keep me cool.
Janice
----- Original Message -----
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 12:20 AM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn
t it great when we find something that works for us, most of the time????
It's just amazing! It's definately a game of trial and error, that's for
sure. Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-----Original Message-----
From: Janice <jan...@centurytel.net>
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs too.
But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes care of
any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
----- Original Message -----
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some point
during our TM lives, skin sensitivity against fabric, and it's the worst
when we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years (T
8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying that I can
always have my legs against them, because I cannot, I lay on my back many
nights with my knees bent so nothing touches my legs. Blankets are much
worse, so you need to get the most comfortable sheet you can near your skin.
If you have any "old" pajama bottoms, those are also some of the most
comfortable, or I wear the short ones.
I've bought some microfiber plush pants this year from OldNavy.com and they
have been warm on my legs and haven't irritated them. I am very much
looking forward to warmer weather when I can wear short pants all the time
and not being uncomfortable.
Hugs to all, Barbara A in CA
Great deals on Dell s most popular laptops Starting at $479
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-----Inline Message Follows-----
Just thought I'd let you know that I am completely opposite. I can not
sleep on my back. I really spasm around my middle
section trying to get in that position and trying to get back up is a
nitemare. I stick to sleeping on my side with a pillow between
my legs to lessen spasms. Also take baclofen for spasms - helps a lot.
I also have developed a thing of needing to have
air movement when I go to bed. I have the ceiling fan going on no matter
what the room temperature is. I just need air movement.
This has really been an adventure/nitemare. Love the support of family and
friends - and other TM'ers!
----- Original Message -----
From: Gillian Clark
To: TM list
Sent: Thursday, April 16, 2009 10:04 PM
Subject: Re: [TMIC] leg and foot comfort in bed
It has only just occurred to me that sleeping on my back is the only way I
have slept now for years. Since the day of the attack I haven't been able to
sleep any other way, in the beginning, I couldn't move at all from that
position, I can now at least move my legs into a more comfy position. I can
t sleep with them bent up though Barb, that causes huge spasms.
Everything hurts, no matter what but it's trying to minimize the pain is the
answer isn't it? I know that when you are new to this crap it's so hard to
realise the things that you suddenly have to pay attention to. Not only
what you wear but where you are walking, avoiding anything that will brush
on you. Shopping is a nightmare when someone brushes past etc.
Since I was born being unconventional a lot of things came easily for me.
If you were not born that way, it's time to change and not give an obese
rodent's derriere what anyone else thinks. Find what works for you and don't
worry about what the "normal" people are doing.
I think I've just about got my life into a reasonable degree of comfort but
sometimes it just changes again.
hugs all
Gilly
----- Original Message -----
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Thursday, April 16, 2009 2:50 PM
Subject: Re: [TMIC] leg and foot comfort in bed
I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn
t it great when we find something that works for us, most of the time????
It's just amazing! It's definately a game of trial and error, that's for
sure. Life is so much fun when you have TM.
The majority of my sensitivity is in the evening and during the night.
There are times when I cannot even stand skin to skin contact. That's why I
sleep on my back with my knees bent many nights.
Take care everyone!
Hugs, Barbara A
-----Original Message-----
From: Janice <jan...@centurytel.net>
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Wed, 15 Apr 2009 8:30 pm
Subject: Re: [TMIC] leg and foot comfort in bed
I have the sensitivity of cloth rubbing (or barely touching) my legs too.
But, I have no problem with sheets and blankets on
me at nite. I sleep with a pillow between my knees and that takes care of
any problems I guess. I have slept with a summer
gown all winter, otherwise I get too hot. Janice
----- Original Message -----
From: balmat...@aol.com
To: tmic-list@eskimo.com
Sent: Wednesday, April 15, 2009 12:23 AM
Subject: [TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some point
during our TM lives, skin sensitivity against fabric, and it's the worst
when we are trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years (T
8-10, 6/1/99), and I have had this sensitivity for most of that time. It
started as sensitivity and is so often PAIN. I've gone from egyptian cotton
very good quality flannel, jersey (like T-shirt material) and all sorts of
thread counts of cotton. In sheets, I think that most of the time, my most
comfortable sheet happens to be the jersey. I'm not saying that I can
always have my legs against them, because I cannot, I lay on my back many
nights with my knees bent so nothing touches my legs. Blankets are much
worse, so you need to get the most comfortable sheet you can near your skin.
If you have any "old" pajama bottoms, those are also some of the most
comfortable, or I wear the short ones.
I've bought some microfiber plush pants this year from OldNavy.com and they
have been warm on my legs and haven't irritated them. I am very much
looking forward to warmer weather when I can wear short pants all the time
and not being uncomfortable.
Hugs to all, Barbara A in CA
Great deals on Dell s most popular laptops Starting at $479
Why pay full price? Check out this month's deals on the new AOL Shopping.
