The first doctor discharged me from ER even tho I was getting progressively worse. Hubby took me to another hospital. They admitted me, I had a Neuro the following morning, MRI in the afternoon and the steroids were waiting for me when i got back to my room. I'm so thankful it turned out that way. So much depends on whether the doctor or neuro has heard of TM.
Patti - Michigan ---- Patricia Cooley <patticoo...@wi.rr.com> wrote: > I agree Gerry. When I was in the E.R., the first doctor had no clue, but > when the other one came on duty he ordered an MRI and knew immediately and I > was put on steroids right away. I am very thankful for the second doctor. > > > > Patti - Wisconsin > > > > From: Janice Nichols [mailto:jan...@centurytel.net] > Sent: Wednesday, May 19, 2010 11:03 AM > To: Gerry Surette; tmic-list@eskimo.com > Subject: Re: [TMIC] RE: tmic-digest Digest V2010 #197 > > > > I don't understand how a doc can fool around for a year and not have a > diagnosis. All my docs had to do was delete by testing what I did not > have, and do a spinal > > tap and MRI to find what I did have. How totally unfair to you. > > Janice > > > > > > From: Gerry <mailto:suret...@sympatico.ca> Surette > > Sent: Wednesday, May 19, 2010 7:07 AM > > To: tmic-list@eskimo.com > > Subject: [TMIC] RE: tmic-digest Digest V2010 #197 > > > > hi Janet i know how you feel it took the dr.s close to a year to diagnoise > tm I had to wait unti li was paralized to get any help > > > > > _____ > > Date: Wed, 19 May 2010 04:47:54 -0700 > From: tmic-digest-requ...@eskimo.com > Subject: tmic-digest Digest V2010 #197 > To: tmic-dig...@eskimo.com > > > > --Forwarded Message Attachment-- > > tmic-digest Digest Volume 2010 : Issue 197 > > > > > > Today's Topics: > > > Re: [TMIC] Neurontin [ "Janice Nichols" > <jan...@centurytel ] > > > > --Forwarded Message Attachment-- > Date: Tue, 18 May 2010 22:36:24 -0500 > From: jan...@centurytel.net > To: j.d...@shaw.ca; pieterheat...@shaw.ca; rp...@neillsupply.com; > tmic-l...@eskimo.net > Subject: Re: [TMIC] Neurontin > > Janet, > > I hope you get more help from the docs for your son and that he does get off > the percocet easily. Please keep us posted on both of you. > > Janice > > > > > > > > From: Janet Dunn <mailto:j.d...@shaw.ca> > > Sent: Tuesday, May 18, 2010 1:00 PM > > To: 'Pieter and <mailto:pieterheat...@shaw.ca> Heather' ; 'Robert Pall' > <mailto:rp...@neillsupply.com> ; tmic-l...@eskimo.net > > Subject: RE: [TMIC] Neurontin > > > > Hi Heather > > > > Thanks for asking. I just don't know what to think. After raising the TM > alarm bells (significantly), the neurologist sent a letter to the family > doctor, stating that the "problem" is organic in nature. That the pain is > coming from the brain itself, and not from the spinal cord lesion. That he > does have reduced feeling and strength. That he does have decreased > sensation. That it is not TM and not MS, but he does not know what it is. > > > > Geesh, thanks for scaring the crap out of us. He does have a lesion at T2. > He does have significant pain and weakness. > > > > They have put him on Baclofen 10 mg 2 times a day, and Carbamazepine CR > 200mg twice daily. The goal being to manage the pain and to get him off of > the percocet. The neurologist is hoping that he will heal, as he has youth > on his side. > > > > Am I angry? Yes. Am I frustrated? Yes. This young man has been dealing > with this for over a year now, and it has not gotten any better, and > fortunately not much worse, other than the pain. The prognosis is just what > I said: hopefully he will heal. > > > > You would think, that in this day and age, when we can do so much, that > somehow they could figure out what is wrong with him. > > > > So, a big thank you to all of my TM family. While this is not TM (sorry for > passing that on, but that was the info that I had) this is a Spinal Cord > Injury. It does not change the tears that I have shed, and will shed. I am > at a loss as to what to say, do or think. > > > > Janet > > > > From: Pieter and Heather [mailto:pieterheat...@shaw.ca] > Sent: May 18, 2010 10:09 AM > To: Janet Dunn; 'Robert Pall'; tmic-l...@eskimo.net > Subject: Re: [TMIC] Neurontin > > > > Janet, > > > > How did your son make out at the doctors? Are they going to be putting him > on some meds to help with his pain? This has to be just so hard for him. > > > > Heather in Calgary > > ----- Original Message ----- > > From: Janet Dunn <mailto:j.d...@shaw.ca> > > To: 'Robert Pall' <mailto:rp...@neillsupply.com> ; tmic-l...@eskimo.net > > Sent: Monday, May 17, 2010 10:45 AM > > Subject: RE: [TMIC] Neurontin > > > > Hi Rob. > > > > I couldn't take neurontin. I am on Lyrica, have been for four years now. > 75 mg a.m. and 150 mg p.m. It has virtually stopped the banding, and the > burning in the feet. I am actually going to lower the dosage to 75 twice a > day. However, that has been delayed because of my "inability to pace > myself" so I have paid for it with high pain levels in my legs - but not > nerve pain. I am also taking effexor, welbutrin, and long acting oxycodone. > I supplement that, as needed, with regular oxy during the day - so if the > pain is high - then oxy during the day, or baclofen, - it is a tricky road > so I monitor my symptoms constantly. > > > > I am seeing a pain specialist in Vancouver BC three times a year - he just > writes a script for many months, and I fill as I see fit. That is how it > works here in Fort St John. > > > > Now, with my son exhibiting what the neurologist is labeling TM, I have no > idea what the doctor is going to do here in town. We will find out today - > right now he is not managing his pain - he is simply coping with it - " I am > tough, I can take it" (he is 15). He takes 2 percocet in the evening so he > can walk the dog - he uses a cane. > > > > Good luck with the neurontin - my money is on the lyrica and the effexor - > in combination they work wonderful. I do not know what is in Cymbalta, and > honestly - I will google it asap. > > > > Janet >
