Hey Kelly, A lot of the things that are happening to you does sound like TM and the doctors don't know how long you had it before YOU find it. It was you that asked for the MRI that found your lesions. For some of us, it took months to get a MRI. I did highlight your e-mail of things that did sound like TM. We could had been sick or gotten an injection that may or may not have given us TM. We just don't know. Try everything & anything that you thing might work for you, some will work & some will not and everyone is different. Glad you found us, but sorry you needed to, Todd in Corpus Christi, TX
--- On Thu, 6/3/10, Kelly Jean Craig <n2resea...@yahoo.com> wrote: From: Kelly Jean Craig <n2resea...@yahoo.com> Subject: [TMIC] new member To: tmic-list@eskimo.com Date: Thursday, June 3, 2010, 11:58 AM Hi Everyone, Well, I was reluctantly admitted to the TM group last week. My name is Kelly Jean and I am 28 years old. I am a cancer research scientist, athlete, wife and pug lover. I was diagnosed after a strange string of events. I woke up two weeks ago with a coughing episode that left me feeling like there was a constrictive band around my chest. I thought I was having a heart attack. The ER visit left me feeling better after they gave me a Toradol injection in the left cheek . However, the next morning my toes felt numb and tingly on the injection side. As the day went on I noticed, the numbness and sensitivity was growing. By the next day, I couldn't stand to touch myself on the left leg. The worst pins/needles sensation you could imagine. Myy husband, splashed water on my leg near the garden and I fell down in pain. It was like someone poured liquid nitrogen down my body. I received my PhD studying a movement disorder (Parkinson disease), so I thought this could be peripheral neuropathy. I just knew that the nurse who gave my that Toradol injection damaged by nerves and I was having sensory neuron damage...little did I know. After 5 doctor visits and everyone saying these sensations would pass, I finally convinced another ER doc to give me an MRI. Almost 10 days later, they found a T3 lesion on my spinal column and 2 small lesions in my brain. They admitted me to the hospital and began my solumedrol treatments 1000mg/day x 5 days. The solumedrol nearly incapacitated me. I couldn't walk, lift my head, speak or chew. I was release from the hospital and I am just now on day 2 of my oral taper prednisone doses. I still feel like I am in a fog. My abdomen feels like a tons of bricks. After nearly two weeks of bed rest, I am feeling crippled physically and emotionally. My head aches just after sitting up for a few minutes. Does anyone else have this sort of reaction to the steroids? They did a lumbar puncture and we are awaiting the CSF lab results to rule out MS. Perhaps, the puncture hasn't fully healed yet. The doctors are guessing this was an infectious case of TM. I am praying that this is a monophasic event and this suffering will soon be over. Does anyone have any suggestions? Massage therapy? Physical therapy? Acupuncture? Reflexology? Homeopathic meds? I am desperate to be better. Any and all advice is welcomed. Sorry if this email seems to dance all over the place. Typing and reading this email has tuckered me out today. Thanks for your support, Kelly Jean
