I was treated like an SCI patient the whole way through and never had a
problem. The irony is that when this happened, they stopped my MS meds since
they obviously weren't helping any.
Laura

http://practical-homeschooling.org
www.laurascoolstuff.com



On Sat, Jun 19, 2010 at 9:39 PM, Akua <a...@artfarm.com> wrote:

>  That's the rub-- insurance would have paid for it--- if the physician(s)
> prescribed it-- if there were a history/protocol for a course of treatment.
>
> EG Stroke patients got more therapy than i did-- I had the equivalent of a
> spinal stroke.
>
>
>
>
>
> IF;
>
>
>
> You could pay for it all!
>
>
>
> *Dalton Garis*
>
> *Office: +971-2-607-5070/-5297*
>
> *Fax: +971-2-607-2500*
>
> *Mobile: +971-50-668-5760*
>
> *In New York: 718-271-2738*
>
>  ------------------------------
>
> *From:* Akua [mailto:a...@artfarm.com]
> *Sent:* Saturday, June 19, 2010 9:06 PM
>
> *To:* tmic-list@eskimo.com
> *Subject:* [TMIC] What's in a name (Diagnosis)
>
>
>
> Here in the U.S., if I had MS, i would have had REAL help: therapy,
> infrastructure, assistance, a drug course, transportation, LOTS AND LOTS of
> things that I did not get and do not have.
>
>
>
> As soon as they deteremined that what I had was NOT MS -- this was at
> Strong Hospital--
>
> A whole level of attention and assistance was dropped like a hot potato.
> They didn't know about TM but they knew about MS. So basically nothing
> happened for me. I was warehoused for months
>
> and fought for every little bit that was done, which in retrospect was
> shockingly little eg. no water therapy, very little exercise, my leg
> machines discontinued....
>
>
>
> So diagnosis is critical to treatment in my experience.
>
>
>
> Akua
>
>
>
> Hi Dalton,
>
>
>
> I don't disagree with what you are saying, however it depends upon how far
> down the line you are. I think we all need that diagnosis, we need to know
> what has gone wrong, we need a label. It takes a long time to accept what's
> done is done···when we have got there you're right, the label/diagnosis
> becomes irrelevant. Until we get there , well there's some comfort in a
> label . After all, without that label /diagnosis  none of us would be here
> sharing our experiences on the web.
>
>
>
> Steve (one of 300 of the population of the uk diagnosed in a year, we are a
> rare breed my gp has never seen a tm before)
>
>
>
>
>
>
> --
>
>

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