perhaps i should talk to the HR person where I work and see what can be done?



----- Original Message ----
From: Roger & Terese Pratt <r.c.pr...@frontier.com>
To: john snodgrass <jcs...@yahoo.com>
Sent: Thu, September 9, 2010 10:15:57 PM
Subject: Re: [TMIC] Medications

John,  I am on disability and collect both from my employer's disability 
program 
and from Social Security Disability.  It adds up to about 60% of what I was 
making.  It wouldn't hurt to talk to someone and find out.  I've been on 
disability for about 16 years.  My wife works, which helps alot.

- Roger in Kennewick, WA

----- Original Message -----
From: "john snodgrass" <jcs...@yahoo.com>
To: "Janice Nichols" <jan...@centurytel.net>
Cc: "transverse myelitis" <tmic-list@eskimo.com>
Sent: Thursday, September 9, 2010 1:40:47 PM
Subject: Re: [TMIC] Medications



I am going to fight this thing as long as i can without stoping working. 
if i go on disability i will get @ 1400 a month if i am lucky. 
  
thats opposed to the @3000 i get working. 
  
still paying for my home. 




From: Janice Nichols <jan...@centurytel.net> 
To: john snodgrass <jcs...@yahoo.com>; Janet Dunn <j.d...@shaw.ca> 
Cc: transverse myelitis <tmic-list@eskimo.com> 
Sent: Thu, September 9, 2010 4:09:59 PM 
Subject: Re: [TMIC] Medications 


I have stopped going to my neuro.   If there is a change, or something I don't 
understand, I will go back.     He just did not have anything new for me - 
either 

meds or advice.     My meds now come from my family doctor - who was right with 
me all the 9 weeks in the hospital calling in specialists for each problem 

that developed.   Also, my other  meds come from my Pain Management Doc who has 
been very helpful.    At this point, I really don't need a neuro. 

  
John, why not disability?     You are in pain quite a bit.   I don't know how 
old you are, but I could understand doing it. 

Janice 




From: john snodgrass 
Sent: Thursday, September 09, 2010 2:57 PM 
To: Janet Dunn 
Cc: transverse myelitis 
Subject: Re: [TMIC] Medications 



it really bothers me to hear of these instances of people not getting to the Dr 
or having to travel vast distances and wait times when I can go to my family Dr 
on a whim and my neurologist works at the same place as my sister-n-law and is 
always asking about me and making sure i have appointments every 3 months. 

however,,,,,,going to the Dr doesnt make me any better than i would be if i 
didnt go at all now. 

I just get my scripts on time and they watch for other things i reckon. 
(depression talking) 
  
as for working,my boss and superintendant allow me to work but keep suggesting 
that i go on disability. 

so does my Dr's. 
one of my Dr's is a senator in this state and told me today that should i ever 
not be able to go on that he would go to bat for me. 

thought that was interesting. 
  
I still dont understand why a dr is a senator or why is a senator is a Dr..... 
  
His name is Ron D Stollings 
  
as for hydrocodone,,,,i read on one of the med-sites that if you take 2 tylenol 
with the hydrocodone that it will do better than either one of them by 
themselves.So I did,and it does. 

  
then you have the extended use of acetaminophen effect that might eat your 
liver 
or something. 


Pill time,,,bye bye. 


From: Janet Dunn <j.d...@shaw.ca> 
To: transverse myelitis <tmic-list@eskimo.com> 
Sent: Thu, September 9, 2010 10:59:59 AM 
Subject: [TMIC] Medications 




Hello to all 

  

I find it very interesting the number of us that are on or have taken 
hydrocodone, especially when it is “said” that opoids do not help with the pain 
of TM 


  

For me personally, I wouldn’t make it if I didn’t have a member or two of the 
hydrocodone family in my drug repertoire.   I take 20mg  or 40mg of long acting 
 HCL in the morning, depending on the legs, and have perocdan as a filler for 
the day.  I also take Lyrica, Effexor, Wellbutrin and baclofen.    Even today, 
after 2 days of working 8 hours, and moving around and doing housework, I 
hurt.  
I want to lay in bed.  But . . . just like the rest of us . . . duty and life 
are calling. 


  

I really appreciate the medication information simply because I live so far 
away 
from the nearest neurologist, and the wait time is up to a year, if we can get 
in at all.  Then we must travel either 400 miles out of province, or 850 miles 
to Vancouver.  So the information on here is absolutely priceless.  However, 
you 
cannot have my MasterCard!  ;) 


  

Janet 

  



From: john snodgrass [mailto:] 
Sent: September 8, 2010 2:09 PM 
To: Rev. Craig Crossman 
Cc: transverse myelitis 
Subject: Re: [TMIC] Neurologist visit 

  



I have been taking gabapentin 400mg  for the last 2 years 3 times a day. some 
people say that they can take 1 and it knocks them out. i have never 
experienced 
that. perhaps because of the extreem pain. 



I also take hydrocodone,baclofen, and lorazepam. 




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