Dalton, can’t believe it. Thought you finally had the right meds. Keep
your chin up, we are all behind you and pray only the
best for you. Keep us posted – often.
Janice
From: Dalton Garis
Sent: Wednesday, April 27, 2011 11:40 AM
To: James Berg ; john snodgrass
Cc: transverse myelitis ; tmic-digest-requ...@eskimo.com
Subject: Re: [TMIC] They're baaack
Well, the cramping-spasticity-contractions—whatever-yoy-wanna-call-them, came
back this morning.
The first sign was that I knocked over a perfectly good, and totally full, cup
of coffee all over the kitchen table, including on my meds. By the time I got
to work my limb coordination was diminishing.
But I got through the lecture—barely! Then informed my reassuring, but
write-it-all-down-for-future-reference boss that I was heading home early.
OK now, just sore and embarrassed. It is hard to be better than normal as
worse than normal as both situations land me in trouble.
Dalton
Abu Dhabi, United Arab Emirates
Office: +971-02-607-5070/5297
Mobile: +971-50-668-5760
From: James Berg <molokai...@gmail.com>
Date: Tue, 26 Apr 2011 09:51:27 -1000
To: john snodgrass <jcs...@yahoo.com>
Cc: transverse myelitis <tmic-list@eskimo.com>
Subject: Re: [TMIC] revisiting an old issue
Resent-From: <tmic-list@eskimo.com>
Resent-Date: Tue, 26 Apr 2011 12:52:04 -0700
thanks for the input
On Tue, Apr 26, 2011 at 9:08 AM, john snodgrass <jcs...@yahoo.com> wrote:
ativan along with hydrocodone use to ease the banding but that does not
have much effect anymore for me
--- On Tue, 4/26/11, James Berg <molokai...@gmail.com> wrote:
From: James Berg <molokai...@gmail.com>
Subject: Re: [TMIC] revisiting an old issue
To: "john snodgrass" <jcs...@yahoo.com>
Cc: "transverse myelitis" <tmic-list@eskimo.com>
Date: Tuesday, April 26, 2011, 2:28 PM
I am having a bad day--the thrumming is at its worst and the banding
has gotten wider and tighter--to the point I couldn't eat dinner or breakfast
this morning. Baclofen does nothing. It took four glasses of red wine and two
alergy pills to get me to sleep. Being in the chair now is making the banding
pain worse.
any suggestions?
On Tue, Apr 26, 2011 at 1:11 AM, john snodgrass <jcs...@yahoo.com>
wrote:
I remember hearing the concern of thrumming in the legs.
You know,,like the sound that a power transformer makes
except it's a feeling,a buzzing or even sometimes like energy going up and down
your leg or legs.
I gert this a lot and when it is real bad it is from the top
of my head to the bottom of my feet.
sometimes it even feels like something poking at the bottom
of my feet from the inside trying to get out.
perhaps i could harness it and drive a car with it!
I am taking the maximum dosage of baclofen and neurontin and
was wondering if anyone ever ran across something to either slow this part down
or even stop it.
sometimes it will last all day and can go from irritating to
depressing.
most of the time when this does stop that's when the burning
begins.
this on top of the wast banding and pain can drive me to
thinking thoughts that are not normal for me.
thoughts like,,perhaps i should find some marijuana and smoke
it or perhaps i should drink enough to pass out or maybe i should punch someone
and they will knock me out!
my Doc's know about it but have no answer.
losing insurance on may 5th.
