keep it up Dalton and Im going to ask gunny to pick up your license!
--- On Sun, 8/14/11, Dalton Garis <malugss...@gmail.com> wrote:
From: Dalton Garis <malugss...@gmail.com>
Subject: Re: [TMIC] Fwd: MY STORY
To: "Louise Croyden" <louisecroy...@cogeco.ca>, "john snodgrass"
<jcs...@yahoo.com>, tmic-list@eskimo.com, deer...@aol.com
Date: Sunday, August 14, 2011, 2:18 PM
Hey;
Sorry for all that un-asked-for philosophy earlier. Actually, I had another
attack when I went to the bank today, and had to have someone help me home and
back up to my bed in the flat. Couldn't get my arms and legs to do what I
wanted. And my face, too, got all contorted. And when your face begins
looking funny to people, then you get treated a lot differently.
Dalton
From: Louise Croyden <louisecroy...@cogeco.ca>
Date: Sat, 13 Aug 2011 22:03:19 -0400
To: Dalton Garis <malugss...@gmail.com>, john snodgrass <jcs...@yahoo.com>,
<tmic-list@eskimo.com>, <deer...@aol.com>
Subject: Re: [TMIC] Fwd: MY STORY
Hi Dalton, I'm really confused because, as far
as I know (and my neurologist concurs), TM is not a disease unto itself but
an attack of inflammation that is caused by something else -- which could be a
disease such as MS, Lupus, West Nile Virus... or they may not be able to
find a cause and the attack is then labelled ideopathic. Quite a
large number (can't remember the %) of the ideopathic group have had a
viral or bacterial infection prior to the inflammatory attack. In my case they
could not determine a definitive cause but they think it may have
been triggered by a sinus infection I'd had a couple of weeks before.
Somehow something got through the brain/blood barrier and attacked the spinal
cord at T12/L1. Of course, the immune system doesn't help as it identifies
a problem which it tries to fix so it attacks the same area making the
situation worse. My neuro agrees that TM is not a
disease so we are not living with a disease called Transverse Myelitis
(Transverse simply means across the spinal cord and Myelitis means
inflammation) but with the aftermath of that inflammatory attack on
our spinal cords, i.e., neuropathic pain and everything that includes.
So, when you say you "caught" the
Indian form of TM, that is completely contrary to everything I've been told
during the past six years. I don't write in often because everyone talks
about living with this disease called TM and I believe that's because many
doctors really don't understand the process themselves and don't explain it
well enough to their patients. Let's face it when we have lived through
this traumatic situation, and are now suffering on a daily basis, it
is difficult to sort it all out. I've come up with an analogy of
driving to work one day and having a car accident that injured my spinal
cord. I say that now I'm living with the results of that day when I was
struck down with the paralysis. That seems to put it into perspective for
my family and friends. Luckily, I'm no longer paralyzed but
I was unable to continue working and can't travel or do a lot of the things I
used to enjoy or hoped to enjoy in retirement. I'm one of the "walking
wounded". I have a lot of deficits and various types of neuropathic
pain, stiffness, etc. I think the worst thing for me is the debilitating
weakness that consumes the core of my body. There is no pattern -- it
comes suddenly and leaves when it wants to. Then I pick myself up and
carry on. I call it "riding the wave". For some unknown reason, for the past
week I've had horrible muscle spasms that have attacked both my legs (mainly
during the night) from my toes and including my calves and hamstrings. I'm
hoping it will pass soon. I have even been hit with them during my
exercises in the morning. I work out about 1 and 1/2 hours a day to
keep going and a spasm even hit my right calf when I was on the recumbent bike
and I had to stop. That has never happened before. I've read all your e-mails
over the
months with interest and have felt very sorry for what you are going
through. It sounds like you have good support from your family and friends
and I hope you can keep "riding the wave" with courage. Regards. Louise
----- Original Message -----
From:
Dalton
Garis
To: john snodgrass ; tmic-list@eskimo.com ; deer...@aol.com
Sent: Saturday, August 13, 2011 4:15
PM
Subject: Re: [TMIC] Fwd: MY STORY
My Neurologist says I happened to catch the Indian variety of TM?we have
so many Indians and other South Asians working here as expats. The Indian
variety is actually new and as yet not fully described. The Japanese form is
what afflicts most, unfortunately, since it most always paralyzes and comes
on very quickly.
I am very happy nonetheless. These lost says are OK for me now,
since I am in my 60's and have no physical goals or burdens to deal with, now
that I can no longer work as Associate Professor and lecturer.
Never mind; lots of stuff to write, study and think about. And I
got a mandolin to learn to play. My brother plays and we will make music
together, as we did when we were all kids. That's what you did in those
days, we made our own music. My mother sang, Dad played his mandolin, my
sister played the piano, and my brother was on the guitar.
So, what's the problem? I was just curious if anyone else had these
continuous and on-going spells.
Thanks, all,
Dalton
Dalton H. Garis, Ph.D
(no longer) Associate
Professor,
Commodity Price
Behavior
The Petroleum
Institute
P.O. Box 2533, Umm al Nar
Abu Dhabi, United Arab
Emirates
Office: +971-02-607-5070/5297
Mobile:
+971-50-668-5760
New York: (718)
271-2738
From: john snodgrass <jcs...@yahoo.com>
Date: Sat, 13 Aug 2011 12:15:37 -0700
(PDT)
To: <tmic-list@eskimo.com>, <deer...@aol.com>
Subject: Re: [TMIC] Fwd: MY STORY
Resent-From: <tmic-list@eskimo.com>
Resent-Date: Sat, 13 Aug 2011 12:17:11
-0700
it is documented that TM can come on in a short time or
over a period of time. mine came over a period of time but nonetheless
when the time came I went to the hospital!but with mostly the same
symptoms as others with the banding in the side and the tingling and
loss of coordination and well,,,,,stuff.
it is a scary feeling when you are walking and it is as if the
earth is moving away from your feet!and when cold feels hot and hot
feels cold.
--- On Sat, 8/13/11, deer...@aol.com <deer...@aol.com> wrote:
From:
deer...@aol.com <deer...@aol.com>
Subject:
[TMIC] Fwd: MY STORY
To: tmic-list@eskimo.com
Date:
Saturday, August 13, 2011, 11:41 AM
From: deer...@aol.com
To: tmic-list@eskimo.com
Sent:
8/11/2011 5:38:07 P.M. Eastern Daylight Time
Subj: Fwd: MY
STORY
From: deer...@aol.com
To:
sthrnbll...@yahoo.com
Sent:
8/7/2011 11:19:36 A.M. Eastern Daylight Time
Subj: MY
STORY
HI ANNIE I READ YOUR STORY AND WAS THINKING I SHOULD TELL
MINE. I AM NOW 76 AND HAVE HAD TM FOR 10 YEARS. I AWOKE ONE
MORNING AND GOT OUT OF BED AND MY LEGS WOULD NOT HOLD ME. I JUST
MADE IT TO THE PHONE TO CALL MY HUSBAND AND SAID SOMETHING IS
HAPPENING TO ME. HE WAS HOME BEFORE THE EMS . THEY TOOK ME TO THE
HOSPITAL BUT NO ONE NEW WHAT WAS WAS WRONG, I COULD NOT MOVE AT
ALL. I WAS SO SCARED AND SO WERE MY FAMILY.. THEY THEN SENT
ME TO YALE HOSPITAL. THEY TOOK ALL TEST AND THEN SAID IT WAS TM.
WHO KNEW WHAT TM WAS. I WENT TO GAYLORE FOR REHAB AND AFTER A
MONTH I STARTED TO MOVE MY ARMS BUT WITH PAIN. THATS HOW FAR I
GOT. I AM NOW IN A WHEEL CHAIR . MY PAIN IS UNDER CONTROL AS BEST
IT CAN BE. I HOPE YOU WILL KEEP TRYING TO TAKE CARE. MY PRAYERS
ARE WITH YOU. I HAVE A WOUNDERFUL HUSBAND THAT TAKES CARE OF
ME SO I AM
BLESSED. MARIE
