My wife's first attack was on 97 September, just before we were about to move from EssEff to Memphis. She had a second attack at a different spot in 99 Feb. She went on Avonex the following month, and still gets an injection every 8 or 9 dayze. She's not been 'cured' but can function almost normally, except for fatigue, and the hot summers don't help one bit.... heat slows her down but doesn't stop her.
To all of you waiting for a 'quick fix'..... am afraid there just ain't one, not just yet. But hang in there, one step at a time. And write to any of us when you need to vent. BobbyJim in Elvisland, where it hit 62ยบ today....... some winter, eh.....???? ----- Original Message ----- From: pjv1...@chartermi.net To: tmic Sent: Friday, December 16, 2011 9:04 PM Subject: [TMIC] How to educate medical prodessionals One of the best tools that I have used in talking to my doctors is repeating something that I learned from someone in TMIC, my "online support group". I quote some of you. I ask my doctors about the meds some of you are taking. I Show the combinations that are working and let my doctor that I'm not the only TM patient with such and such a symptom. I asked my doctor about Lyrica after reading about it from people on TMIC. The same thing happened when some of you had success with Cymbalta. My doctor's have been impressed with the knowledge of our group. My personality was effected by TM. TM was a humbling experience. My brain was clouded and fuzzy. I stumbled and bumped into walls. My income was cut in half. I became a "housewife" instead of having the prestige of my 35 year career. There were times I had a hard time thinking of words or forming a complete sentence. I felt lke a zombie. I've come a long, long way in my eight years with TM, but when I first had TM and Barbara Harper told me she was still getting better after eight I was appalled. I had been a goal oriented person and I was seeking a quick-fix answer. The oldies on TMIC know there is no quick-fix for TM. We have found happiness in something besides ourselves. It isn't mind over matter. It isn't "getting over yourself" as one friend said to me. It's accepting who you are right now and hoping it will get better. I have improved year after year after year. My life changed, but I appreciate much more now than I did eight years ago when I thought I was on top of the world. HOPE! Patti - Michigan
