Carol it sounds like you are doing fairly well considering that you have TM. I do have braces that I must admit I haven't been faithfully wearing them lately. I was told they would help me with my balance, but they are a pain to put on and take off. But you have shamed me into wearing them agan and see what happens. The only meds I take are gabapentin. I am taking 300 mg at night. I used to take 600 mg at night, but it seems since taking it I have put on 15 pounds which I don't want or need so I am weaning myself off and then will stop completely. I have been taking it for almost a year and I have found that it does absolutely nothing for the pins/kneedles or burning/freezing so why continue taking it. Hopefully, I will be able to loss the extra weight. My feet bother me more in the evening after dinner and I am just sitting reading the paper or watching TV;. Maybe that is because my mind is not busy and is all I think about. Fortunately, I am able to fall asleep without too much trouble. I do get various pains in my feet that feel as though something is stabbing me, but I know it is just my nerves talking to me. I know that this is the way it will be, but I wish and pray that no more children or young women get this terrible terrible condition. I can't imagine how these young women with children are able to manage their lives.
Bless you too and keep thinking positive. Patti in Wisconsin On Fri, Jan 6, 2012 at 12:57 PM, pat cooley <patticoole...@gmail.com> wrote: > Carol your story sounds just like mine. I too now get around the house > without cane/walker but I do use a cane when I gol out. I am able to walk > around most stores hangingj on to the cart but if I go to stores where I > have to do a lot of walking I take my electric scooter and then I can power > shop with the best of them. I still have the pins & needles and the > burning/freezing in my feet and up to my knees. I know this is the way it > will always be since it has been almost 4 yrs, but I see that I am not > suffering as much as so many of us TMers. > > Patti in Wisconsin > > On Thu, Jan 5, 2012 at 5:27 PM, Carol E <snow121...@hotmail.com> wrote: > >> Jim, >> June 2005, I went to bed with severe pins and needles feeling in my >> right leg. When I woke up, it was as limp as a noodle. I was admitted >> through the ER and received IV steroids, I think it was 9 hours. During my >> 5 week stay in the hospital, I received intensive PT. About 3 weeks into >> my physical therapy, I remember the therapist told me to try to wiggle my >> toes. I looked her like she was *seriously crazy*. I tried....and they >> moved (very little, but they moved). Brought both of us to tears. Before >> my discharge, I was walking small distances with a walker and I know use a >> cane. I continued with out patient physical therapy for about 2 months. >> My power shopping days are over, LOL! but I can walk in, get what I need, >> and leave. On bad days, I don't even try it. Both legs feel very heavy, >> but my right leg is worse. I too have pins and needles torture from my >> toes up to my waist. >> >> >> *Carol * >> >> ------------------------------ >> Date: Tue, 3 Jan 2012 11:55:22 -1000 >> From: molokai...@gmail.com >> To: tmic-list@eskimo.com >> Subject: [TMIC] Extent of your TM? Pins and Needles >> >> From the discussion of Pins and Needles it seems that most of you are >> able to get around and have some use of your legs. I have pins and needles >> from my feet to my belly and no use of my legs at all. And they weigh a >> ton. Been like this since day one. Did any of you lose the use of your >> legs and then get them back? If so, how long did it take and how did you >> do it? >> >> Jim >> > >
