Dear RP friends,
Don't get panic on RP and its final stage.
Try to learn mobility at first.
Don't hesitate to use white cane on travel.
Now a days, technology is helping us.
Learn using computers with screen readers.
Make yourself comfortable in handling smart phones using talk back.
Absorb the situation around us up to certain extent.
Share the issues with other RP friends to get solutions from their
experiences.
Be happy on what we can do.
Don't hurt on what we can't do.
We will be learning many things on each & every situation what we face.
Surely, you will feel better on experiencing your life.
Thanks
Saravanan.K
+91 9916512402
On 7/5/2018 4:05 PM, Renuka Warriar Edakkunni wrote:
Hello!
First accept the situation as it is and try to rehabilitate yourself
with assistive technology. Once you get confidence by this, your
behaviour will also be improved.
With love,
RenukaE.
Assistant Registrar,
CHMohammed Koya Library,
University of Calicut,
Kerala.,
On 7/5/18, sazid shaik <ashwaqahmed....@gmail.com> wrote:
hi dear list members,
I am also suffering from rp. I observed lot of changes in my
behaviour as well as my attitude. Insecured feeling is more. Getting
angry, losing my patience and many more. All this was happened after
my dad's death. Since 3 years I am suffering with this type of
problem. how to get rid from this?
thanks and regards,
sazid
On 7/5/18, Saravanan <sarva...@greytip.com> wrote:
Hai Mohit,
Now itself, try to customize your life with assistive devices.
Put your effort in making yourself independent even you lost your vision.
It is very hard to accept the truth that blindness is the final result
of RP.
First, you get yourself mentally prepared for facing this world without
sight.
Next, you make yourself prepared physically in facing the situations.
For more information, keep in touch with me & other friends.
Thanks
Saravanan.K
+91 9916512402
On 7/5/2018 10:19 AM, Amar Jain wrote:
Mohit,
While I don’t have RP, but I know many who have it.
In the current scenario, there is no full proof cure of RP, and the best
advice will be to take the treatment to keep the loss in control.
It’s harsh to hear this, more hard to digest, and gutsy to accept and
move
on with life. So far as this hospital is concerned, you are best advised
not to waste time, money and effort.
Regards,
Amar Jain
Sent from my iPhone
On 05-Jul-2018, at 9:58 AM, pratik shah <pratiktu...@gmail.com> wrote:
hello ,
I have undergone treatment there during May,2017. I have wasted my
time and money there. I am suffering from RP only. As suggested, there
is no treatment for it till now in world. My mobile no. is 8347010528.
On 7/3/18, Mohit Gupta <mohitchan...@gmail.com> wrote:
Dear friends,
If anyone having retinitis pigmentosa has taken treatment form
shreedhariyam eye hospital, please share their contact detail with me.
I would like to talk with them.
--
Thanks and Regards,
Mohit Gupta.
Rajasthan.
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"Condemn none: if you can stretch out a helping hand, do so. If you
cannot, fold your hands, bless your brothers, and let them go their
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Mr. Pratik Shah
Assistant professor at SEMCOM
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Mobile number- 8347010528.
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