Hi

A small piece of advice, be very sure before embarking for any therapy which claims cure / arrest of deterioration for RP patients.

The experience is generally frustrating and leaving behind a bitter experience.

Harish


On 19/04/2022 23:08, Rakshit Malik wrote:
Apurwa, I did email you personally around 2:45 p.m. Let me write to you again.

On 19/04/2022, APURWA SABDE <apurwa.sa...@gmail.com> wrote:
Hi Rakshit,
Please share me the details too.
My mail id is :- apurwa.sa...@gmail.com

TIA

On Tue, Apr 19, 2022, 10:22 PM Rakshit Malik <rakshitmali...@gmail.com>
wrote:

Hi Mohib and Saravanan,

I believe you should immediately Google Karela's Sreedhareeyam
Hospital, in context of their Ayurvedic medication for RP. I am based
in Delhi, where they organize related appointments only twice a year.
A friend did have his deterioration come to a standstill because of
their medication. This would be ideal, right?

Recently, though, a to-be eye-specialist suggested a medicine that,
according to her, delays the deterioration, while not stopping it
altogether. I am happy to share the name/image of the med as well as
the contact details of the aforementioned specialist (over personal
chat). Let me know.

Hope this helps.

Best,
Rakshit



On 19/04/2022, 'Saravanan K' via AccessIndia
<accessindia@accessindia.org.in> wrote:
Hai Rakshit,

I am also interested in taking up the treatment for RP.
How much it is fruitful.
Is it will help in improving the eye sight or balancing from further
decreasing vision.
Please provide more details.
Share the response.

Regards.
Saravanan.K
+91 9916512402


On 4/19/22, Mohib Anwar Rafay <mohibra...@gmail.com> wrote:
Hi Rakshit, please give me the contact number of the person who could
provide me the medication  to prevent further deterioration of sight
due to RP. My contact number is 9999996464

On 4/19/22, APURWA SABDE <apurwa.sa...@gmail.com> wrote:
Hi Rakshit,

Please share me the contact details or contact me on 8087316347.

TIA

On Tue, Apr 19, 2022, 2:37 PM Rakshit Malik
<rakshitmali...@gmail.com>
wrote:

Dear Apurwa,

My brother and I also have RP. There is medication available that
stops deterioration from continuing. I am happy to share more on
this,
if you have not explored the alternative already. Besides, it can be
great to have a disability-sensitive mental health professional. I
would be more than willing to share some contacts. Let me know.

Best,
Rakshit

On 19/04/2022, George Abraham <george.abrah...@gmail.com> wrote:
If you think it prudent, you can call me on 9810934040.



George







From: accessindia@accessindia.org.in [mailto:
accessindia@accessindia.org.in]
On Behalf Of APURWA SABDE
Sent: Tuesday, April 19, 2022 2:23 PM
To: accessindia@accessindia.org.in
Subject: [AI] Panic attack



Hi All,



My brother is suffering from Retinitis pigmentosa. and it's been a
month
he
thinks that the deterioration is way quicker than it should be. He
is
having
panic attacks and I don't know how to handle him as his triggers
are
visual.
Please help me what to do.

He is just 21 years old.



TIA.

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Phone: +919999996464

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