Hi all,
I’m also searching medication for RP. If any provide then I’ll be
thankful. By the way I’m using Eye support capsules, alma capsules and
spirulina capsules by Vestige. At present I lost my vision but, from 4 months I
using these supplements for my eye health now I can see shadow and sunlight
from my eyes but I’m not satisfy with these supplements because, its benefiting
very slowly. I decided that I’ll take it for 3 to 4 months more and lets see
what will be result is.
Thanks / Regards
Mohammed Arif [OS]
NRBH HQ DELHI
Mob: 9013155115
E-mail:
arriff.k...@gmail.com
> dd
> On 30-Chaitra-1944 Saka, at 11:43 AM, Ajay Minocha <ajayminoc...@gmail.com>
> wrote:
>
> I completely second Harish ji's thoughts.
> Nothing against any person/ institution but I know more than 10
> people in my close circle who either haven't seen any improvement or
> have lost their complete eyesight despite taking expensive treatments
> from the mentioned institution/s.
> There can be more than 60 different genetic mutations which can cause
> RP and in each case, rate/ degree of vision loss is different. It is
> next to impossible to actually verify the tall claims made by these
> institutions.
> In my view, acceptance and rehabilitation is the only sustainable choice.
>
> Cheers,
> Ajay
>
> On 20/04/2022, Mohib Anwar Rafay <mohibra...@gmail.com> wrote:
>> I heard, one person took some kind of acupressure treatment to cure
>> RP, initially he experienced good improvement, but later he lost his
>> remaining sight too.
>>
>> On 4/20/22, Harish Kotian <hpkot...@outlook.com> wrote:
>>> Hi
>>>
>>>
>>> A small piece of advice, be very sure before embarking for any therapy
>>> which claims cure / arrest of deterioration for RP patients.
>>>
>>> The experience is generally frustrating and leaving behind a bitter
>>> experience.
>>>
>>> Harish
>>>
>>>
>>> On 19/04/2022 23:08, Rakshit Malik wrote:
>>>> Apurwa, I did email you personally around 2:45 p.m. Let me write to you
>>>> again.
>>>>
>>>> On 19/04/2022, APURWA SABDE <apurwa.sa...@gmail.com> wrote:
>>>>> Hi Rakshit,
>>>>> Please share me the details too.
>>>>> My mail id is :- apurwa.sa...@gmail.com
>>>>>
>>>>> TIA
>>>>>
>>>>> On Tue, Apr 19, 2022, 10:22 PM Rakshit Malik <rakshitmali...@gmail.com>
>>>>> wrote:
>>>>>
>>>>>> Hi Mohib and Saravanan,
>>>>>>
>>>>>> I believe you should immediately Google Karela's Sreedhareeyam
>>>>>> Hospital, in context of their Ayurvedic medication for RP. I am based
>>>>>> in Delhi, where they organize related appointments only twice a year.
>>>>>> A friend did have his deterioration come to a standstill because of
>>>>>> their medication. This would be ideal, right?
>>>>>>
>>>>>> Recently, though, a to-be eye-specialist suggested a medicine that,
>>>>>> according to her, delays the deterioration, while not stopping it
>>>>>> altogether. I am happy to share the name/image of the med as well as
>>>>>> the contact details of the aforementioned specialist (over personal
>>>>>> chat). Let me know.
>>>>>>
>>>>>> Hope this helps.
>>>>>>
>>>>>> Best,
>>>>>> Rakshit
>>>>>>
>>>>>>
>>>>>>
>>>>>> On 19/04/2022, 'Saravanan K' via AccessIndia
>>>>>> <accessindia@accessindia.org.in> wrote:
>>>>>>> Hai Rakshit,
>>>>>>>
>>>>>>> I am also interested in taking up the treatment for RP.
>>>>>>> How much it is fruitful.
>>>>>>> Is it will help in improving the eye sight or balancing from further
>>>>>>> decreasing vision.
>>>>>>> Please provide more details.
>>>>>>> Share the response.
>>>>>>>
>>>>>>> Regards.
>>>>>>> Saravanan.K
>>>>>>> +91 9916512402
>>>>>>>
>>>>>>>
>>>>>>> On 4/19/22, Mohib Anwar Rafay <mohibra...@gmail.com> wrote:
>>>>>>>> Hi Rakshit, please give me the contact number of the person who
>>>>>>>> could
>>>>>>>> provide me the medication to prevent further deterioration of sight
>>>>>>>> due to RP. My contact number is 9999996464
>>>>>>>>
>>>>>>>> On 4/19/22, APURWA SABDE <apurwa.sa...@gmail.com> wrote:
>>>>>>>>> Hi Rakshit,
>>>>>>>>>
>>>>>>>>> Please share me the contact details or contact me on 8087316347.
>>>>>>>>>
>>>>>>>>> TIA
>>>>>>>>>
>>>>>>>>> On Tue, Apr 19, 2022, 2:37 PM Rakshit Malik
>>>>>>>>> <rakshitmali...@gmail.com>
>>>>>>>>> wrote:
>>>>>>>>>
>>>>>>>>>> Dear Apurwa,
>>>>>>>>>>
>>>>>>>>>> My brother and I also have RP. There is medication available that
>>>>>>>>>> stops deterioration from continuing. I am happy to share more on
>>>>>>>>>> this,
>>>>>>>>>> if you have not explored the alternative already. Besides, it can
>>>>>>>>>> be
>>>>>>>>>> great to have a disability-sensitive mental health professional. I
>>>>>>>>>> would be more than willing to share some contacts. Let me know.
>>>>>>>>>>
>>>>>>>>>> Best,
>>>>>>>>>> Rakshit
>>>>>>>>>>
>>>>>>>>>> On 19/04/2022, George Abraham <george.abrah...@gmail.com> wrote:
>>>>>>>>>>> If you think it prudent, you can call me on 9810934040.
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>> George
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>> From: accessindia@accessindia.org.in [mailto:
>>>>>>>>>> accessindia@accessindia.org.in]
>>>>>>>>>>> On Behalf Of APURWA SABDE
>>>>>>>>>>> Sent: Tuesday, April 19, 2022 2:23 PM
>>>>>>>>>>> To: accessindia@accessindia.org.in
>>>>>>>>>>> Subject: [AI] Panic attack
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>> Hi All,
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>> My brother is suffering from Retinitis pigmentosa. and it's been
>>>>>>>>>>> a
>>>>>>>>>>> month
>>>>>>>>>> he
>>>>>>>>>>> thinks that the deterioration is way quicker than it should be.
>>>>>>>>>>> He
>>>>>> is
>>>>>>>>>> having
>>>>>>>>>>> panic attacks and I don't know how to handle him as his triggers
>>>>>>>>>>> are
>>>>>>>>>> visual.
>>>>>>>>>>> Please help me what to do.
>>>>>>>>>>>
>>>>>>>>>>> He is just 21 years old.
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>>
>>>>>>>>>>> TIA.
>>>>>>>>>>>
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>>>>>> .
>>>>>>>>
>>>>>>>> --
>>>>>>>> Mohib Anwar Rafay
>>>>>>>>
>>>>>>>> Phone: +919999996464
>>>>>>>>
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>>>>>
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>>>
>>
>>
>> --
>> Mohib Anwar Rafay
>>
>> Phone: +919999996464
>>
>> --
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>>
>
>
> --
> Ajay Minocha
> Mobile: +91-9584076767
> Email: ajayminoc...@gmail.com
> p13aj...@iimidr.ac. <p13aj...@iimidr.ac.in>in
>
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