Dear Friends,

I've been meaning to send the following to you for ages, but have been
delayed because of because I became so time-consumingly (and unexpectedly)
involved in presidential electoral politics.  Respecting this group's
non-political ground rules I won't say on whose side, though those of you
who know me can probably guess - and I'm happy to tell others off-list if
you email me.  I've been in Wisconsin for much of the past two weeks.

But back to my point: though the Harvard CML Study has been working to
recruit volunteers for some time, they still need help.   It's described
clearly below, so I won't repeat any of it - but will say that getting as
many of us as possible involved will result in information that will benefit
all of us here, as well as other sufferers from this disease who are not so
fortunate as to be part of this (usually, except when we're fighting)
wonderful family.  Please join the study if you're can.

Love,
Richard R
__________________

Harvard Chronic Myeloid Leukemia

(CML) Study

 
A study for people with CML
 
Toll Free:
1-866-HAVE-CML
(1-866-428-3265)
 
What is the Harvard CML Study?
 
The Harvard CML Study is for people across the United States who have
chronic myeloid leukemia (CML). The goal of the study is to learn more about
people in the United States with CML, and how their disease is being
treated. 

 Your participation in this study will help us learn important things about
people with CML, such as:
 
� How are treatment decisions made?
� What kinds of things are associated with good or poor responses to
treatment?
� What are the long-term effects of treatment?
� What health, emotional, insurance, and work issues are important to people
with CML?
 
Researchers on the study will learn about people with CML by analyzing
survey information and blood samples.
 
Who can join?
 
You are eligible to join if you:
 
�  have been diagnosed with CML in the last one year
�  are age 18 or older
 
 

What will I be asked to do if I join the Harvard CML Study?

 

If you would like to take part in the study, we would ask you to:

 

� Complete a survey every six months. Each survey would be mailed to your
home and would take between 20 and 30 minutes to complete.  The surveys will
contain questions about your diagnosis of CML, your treatment, your quality
of life, your symptoms and general health, and your experiences as a CML
patient. 

� Donate blood samples every six months. Specimen kit used for drawing blood
will also be sent to your home and 35-50 cc�s (about 7-10 teaspoons) of
blood will be collected when your blood is being drawn for routine care. You
may choose to allow us to provide your doctor with any standard test results
performed on your blood samples that your doctor could have ordered.  To
receive the results, you would need to contact your physician.

� Sign a release of medical information form. This will allow us to request
copies of medical records that relate to your CML diagnosis and treatment.

 

How do I find out more?
 
If you are interested in joining the study or would like more information,
please call our toll-free number 1-866-HAVE-CML (1-866-428-3265) or email
[EMAIL PROTECTED]
 
 




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CML (Chronic Myelogenous Leukemia Support List) 
---------------------------------
Part Of CMLHope.Com
An International Community Of CML Patients
For more information: http://cmlhope.com 

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