Lisa,
My Onc. told me to stay off of it (gleevec) for two weeks. It has been one. The pain in my arms and legs is almost entirely gone but in it's place I have had the worst headache I have had in years!!! And yesterday morning I woke up with my head just exploding in a migraine, It hurt at just the thought of moving my arm to get the tylenol #3! But I finally did and took one and a phenergen then went and laid back down, when I got up a couple of hours later it was just like tension in my head and then by last night it left but is trying to come back tonight. I am heading it off though (hopefully) with some tylenol #3 and phenergen before it gets a good foothold. Anyway I have an app. with my Onc. on Thurs. I will let you know what he says. Oh yeah and he doesnt want to change me to sprycell until the gleevec stops working for me.
Hugs,
Katy
--
SHIH-POO Puppies now available! First shot and wormed. Email me for more info!
xanga.com/katybug45
SHIH-POO Puppies now available! First shot and wormed. Email me for more info!
xanga.com/katybug45
-------------- Original message --------------
From: "lisa mcneil" <[EMAIL PROTECTED]>
>
> Hi Katy
>
> How long does your doctor want to keep you off of Glivec? When I have gone
> off Glivec twice due to the pain it went away and then came back. It could
> take a few weeks to come back. Its up to you & your doctor but it would be
> interesting to see if your pain stays away or comes back. For me that is
> where the mystery lies. Stopping Glivec improved my pain for a short period
> then it starts to come back & eventually its as bad as it always was. I have
> been off Glivec for nearly 12 weeks and on Dasatinib for 4 weeks. My pain
> went away for 1 week then it has come back stronger & stronger each week.It
> is so bad again I have had to stop the codeine and start MS Contin
& gt; )morpheine 30mgs.
> I hope your pain does not come back. Is it possible for you to change drugs
> to Dasatinib?
> I am very interested to know how it all goes. Please keep in touch.
>
> Best wishes
> Lisa
>
> >From: [EMAIL PROTECTED]
> >Reply-To: CMLHope@googlegroups.com
> >To: CMLHope@googlegroups.com
> >Subject: [CMLHope] Re: BY THE WAY..........
> >Date: Sun, 24 Sep 2006 02:58:50 +0000
> >
> >I have been off of gleevec now for a week and the pain in my arms and legs,
> >all the stinging and burning, itching and aching is almost completely gone!
> >Guess it was gleevec. Wonder what my doc will do now?
> >Hugs,
> >Katy
> >
> >--
> >SHIH-POO Puppies now available! First shot and wormed. Email me for more
> >info!
> >
> >xanga.com/katybug45
> >
& gt; >-------------- Original message --------------
> >From: "Terry Dailey" <[EMAIL PROTECTED]>
> >
> >Hi Chrissy,
> >
> >Yeah I have not read up much on Legionnaire's, but from what I do know it
> >is very contagious, so it would not surprise me that it could go through a
> >water supply. About three years ago when I lived in Louisville Kentucky,
> >there was a major problem with a hospital and people coming down with staff
> >infections, that should not have. I think allot of it has to do with poor
> >ventilation systems and such. Think about it, I know when I was working in
> >my office, if a person came down with the flu, for instance, even if they
> >were on the other side of the building, it always made it's way to my side
> >of the building and soon a bunch of people would come down sick. So yeah it
> >is pretty scary stuff. Take c are,
> >
> >Terry
> >
> >
> >On 9/23/06, Chrissy <[EMAIL PROTECTED]>wrote:
> >
> >Hi Terry,
> >
> >Yes, that's what I thought Legionnaire's was 'limited' to...I'd heard
> >of air-conditioning units in retirement homes containing the bacteria.
> >I had no idea that it could be carried throughout an entire hospital
> >via its water system. Scary.
> >
> >Take care, Chrissy
> >
> >
> >
> >
> >
>
>
>
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