Hi Millie, I just got back from my Onc's office visit. He put me on Tasigna; I was wanting Sprycel, but this is what he recommended. I need to know what to expect. Did you clean out the Gleevec before starting the Tasigna? As you can see, I'm a little nervous about the new drug. He wants EKG every week. Thanks for all you input. Blessings, Jeanie<3 In a message dated 9/17/2008 2:06:00 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes:
Hi Jeanie.....Just on my way out to take my Tasigna, but it can wait a moment. I then will start supper and that will give me time to wait the extra hour. It's not difficult, once I started. No, I didn't need the EKG's every day, but probably once a week, for a while. They just did another one yesterday, but it's been a while since I had one. Everything is great with that. I've noticed a few things since on the new med. I don't have the weight gain, or the swelling (water), and don't miss it at all. On Gleevec I had diarrhea and that seems to be gone too. I feel my life is so much better. Please let me know what your doctor decides for you. As I said before, I don't know why he switched me.....just said the Gleevec wasn't working as well as he wanted it too. You're in my thoughts and prayers. Millie ----- Original Message ----- From: [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) To: [EMAIL PROTECTED] (mailto:CMLHope@googlegroups.com) Sent: Wednesday, September 17, 2008 4:52 PM Subject: [CMLHope] Re: CML HAS GONE INTO ACCELERATED PHASE to millie Hi Millie and thanks so much for your prayers and uplifting note. Did you go into accelerated phase when he switched you? On the Tasigna, did you have to have cardiograms daily? Yes, that would be hard; I remember taken an antibiotic that had to be taken on an empty stomach; hard to time it. I am just waiting for my Dr to call and tell me what he wants to do. I think they are still doing cytogenics on the test and they aren't ready yet. I'm 70, and am still hanging in there. I noticed my left leg was swelling today, and that has never happened to me before. I do know some of our cml'ers have swelling. Also the front of leg is hurting. Blessings to you and your e-mail has helped me so much. Jeanie<3 In a message dated 9/16/2008 1:48:48 P.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Hi Jeanie<3 I've been reading some of the messages you've posted and know that you are having a time with it all. Just recently my meds had to be changed. You might laugh, but my Onc. of 15 yrs and I have decided that I don't need to know everything and it works best for me. If it's something I must know, he'll tell me. All I know is that my Gleevec wasn't working for me anymore. He switched me to Tasigna and , although I worried a lot about the side effects, things have worked out for me. I'm not having nearly as many side affects and that's a good thing. The hardest part about taking it is doing it every 12 hours and trying to fit my meals in so that I can do this. It has ended up that I have to set the alarm for 5:00 A.M. and take my meds then, and that's fine. You can't eat 2 hours prior, or an hour after taking the meds. At any rate this has worked out for me. I'm due to take it in about 15 min. and then will start working on my supper for the day. I do have a heart condition too...I have a Pace Maker..just had a new one put in a few months ago. All in all am doing well for a 69 yr. old. I am in a wheel chair and walker, do to other problems, but am not giving up the fight. You take care and know that we're all out there keeping up with what you're dealing with and always hoping for the best. None of can give up. My thoughts and Prayers to you, Millie **************Looking for simple solutions to your real-life financial challenges? Check out WalletPop for the latest news and information, tips and calculators. (http://www.walletpop.com/?NCID=emlcntuswall00000001) --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to [EMAIL PROTECTED] For more options, visit this group at http://groups.google.com/group/CMLHope -~----------~----~----~----~------~----~------~--~---
