Dear fellow cml-ers, I was very disappointed and even a little bit shocked, when my onc phoned me yesterday telling me the results of the last PCR. I am on gleevec since march 2003, started with 400 mg and changed into 600 after a couple of years because of not satisfying results. Since 11 months he PCR tests had as a result: CML not detectable. Of course I was glad and because I was and still am full of energy, I thought I won the fight against the CML. But yesterday my onc told me that the last result was that CML was detectable again, in his words: nothing to be worried about, but some action must be undertaken. He told me to continue the 600 mg and to have another test in October. If then CML is not detectable again, I will continue taking the 600 mg every day. A mutation analysis will be made (how does that work) in order to see if my body still responds to gleevec. If CML is detectable again and I still respond to gleevec, I will have to take 800 mg every day. If CML is still detectable and gleevec does not work anymore, I will get other medication. I would like to know if I can do something myself in order to have good results (food recommendation??) I live in southern Europe (Italy and the south of France) and my results always are worse in the summer. Could sunshine be of some influence?? Then a last question. Due to surgery - had because of colon cancer 12 years ago, I live with a colostoma. I irrigate my colon every 48 hours, and have no problems with my 'handicap' in daily life. Should I wait a certain time after have taken gleevec befor irrigating??? How many hours??? Thank you in advance for every suggestion. I am doing fine, I have the well known side effects (especially cramps and sometimes nausea) and do not like the idea of increasing the quantity of gleevec.... Best wishes to you all - this site is great! Ciao, Rien Sent from my BlackBerry® wireless device --~--~---------~--~----~------------~-------~--~----~ [CMLHope] A support group of http://cmlhope.com -------------------------------------------------
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