I was on Gleevec for 3 months when I developed very bad skin lesions that were diagnosed to be erythema multiforme. Due to this reaction and I was taken off Gleevec. The cure for this was high doses of prednisone. Due to a connective tissue disorder (similar to lupus but not lupus), I have been on various amounts of prednisone for 3 to 4 years because of the undifferentiated connective tissue disorder which has now caused some myopathy in my legs. Needles to say, I try to maintain the lowest level of predisone possible. I started Sprycel 5 weeks ago but now due to pleural effusion and pleurisy I was taken off of it 2 days ago. I will await a new chest x-ray in a few days to see if the fluid dissipates before going on a lower dose of Sprycel. If I increase my prednisone I know I would feel better but I am concerned about the strength of my legs.
I was diagnosed with CML in October, 2009. A few weeks prior to the pleural pain, I cut my prednisone back from 20 to 15 to 10 and I am currently taking 10. Are any of you long term prednisone users? Any familiarity with this cycle of cutting back on prednsone and then getting pleural pain? Were any of your skin lesions diagnosed as erythema multiforme? Thank you for any feedback -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope
