I feel so sorry about all these... My friends, please, remember that the purpose of this group is to help each other - let´s focus on this purpose.
On Fri, Jul 2, 2010 at 3:45 PM, <myvet...@aol.com> wrote: > WOW, what a milestone. That gives us other folks some hope. Greenie > Good luck to you. > > In a message dated 7/2/2010 1:37:56 P.M. Central Daylight Time, > skipd_2...@yahoo.com writes: > > Hello to the group, > Jeanie I agree with you, if we have a difference of opinion then, we should > take it off > the group and try to make nice. I neither agree or disagree when I do see > a tiff coming on > I have had CML most likely the longest in the world, and the way things are > going > think this may be the end of it. One of you will become the longest etc > etc. I look > at Lottie and see a bright spirit and wish we all could be like her. Folks > I have seen > many very nice people who did not make it, and wish I could talk with them > again, > they were wonderful people trying to work through their Cancer. This past > two > years I have failed all those new drugs (you call them new) and now I am on > nothing. > I look forward to reading email on the site, every day. You have > wonderful people > on these groups treat them kindly, you just never know. > thank you group for just being there > Skip Duffie > dx'ed 33 ++ years ago. > > ------------------------------ > *From:* "icandoall...@aol.com" <icandoall...@aol.com> > *To:* cmlhope@googlegroups.com > *Sent:* Fri, July 2, 2010 12:39:53 PM > *Subject:* Re: [CMLHope] Re: I wrote to Sheila offline to spare her > embarrassment > > This group is a wonderful griyo and I have been on it since the beginning > way back when it was a yahoo list. > Sometimes arguments like this happen, but it doesn't in anyway diminish > what this group accomplishes. It has helped me in more ways than I could > say. For you to say this list is a "joke" then you just don't know much > about this group and the people that on it daily. I just sent the > information on Dr Talpaz and from the article it certainly looks like he was > on the team that developed Gleevec. > Let's all come together and fight this CML like the Warriors we are. > Blessings > Jeanie<3 > > In a message dated 7/2/2010 7:15:14 A.M. Pacific Daylight Time, > dsh...@midwaynet.net writes: > > You really crack me up that you posted this for everyone to see. Like > I told you this does not embarass me, and no I wasn't having a bad day > I was actually having an awesome day. I don't know how you don't > think that the first e-mail you sent me was agressive??? All I was > doing why trying to give Greenie some inside on Dr. Talpaz and then > you come along and tell me that I don't kow what I'm talking about > when I was told by Zavie a few years back (and I'm really sure I could > find the e-mail) that Talpaz was on the gleevec team, plus Talpaz told > me himself...and I wasn't personally calling Zavie a liar (sorry if > that's the way you took it Zavie and Marty) I was asking you Susan if > you thought he was a liar, sorry if you can't understand my sarcasm. > I used to find his group helpful and now all it is is people > constantly nit picking everything, what a joke anymore! Also you > didn't post my last e-mail to you yesterday so I will paste it here, > don't want to leave anything out do we? Since I'm such a mean > agressive person :) > > To: educatorsu...@aol.com > Subject: Re: about your comment on Dr. Talpaz > > Is this a threat...WOW grow up and if you feel the need to post this > so go right ahead I really don't care and if you think this would be > embarrass me you are so wrong. What a joke you are and I thought > this site was something good well with people like you "lurking" I > guess I was wrong. Like I said grow up and if you feel like > "tattling" on me to the group because apparently you know it go right > ahead :) > > > > > > > > > > On Jul 1, 1:06 pm, educatorsusan <educatorsu...@aol.com> wrote: > > Dear Everyone: > > > > I need a little help here. I responded to Sheila privately to spare > > her anything embarrassing. However, she was VERY aggressive and I > > HAVE NEVER been treated like this before. I conferred with Zavie as > > well and he semi-agreed with me...let me know what you think and how I > > could do better the next time. Like I said, I have NEVER been told > > anything negative and my last email to Sheila was that I was going to > > have to bring this to the group. > > > > This is pasted from the emails sent (my original comments should be > > read from the bottom up so you are current with the whole > > conversation: > > > > Sheila: > > > > You are going to force me to send this whole correspondence to the > > CMLHOPE group. This is not even funny. I am sorry that you feel this > > way about me. > > > > Hugs, > > Susan > > > > In a message dated 7/1/2010 11:32:54 A.M. Eastern Daylight Time, > dsh...@midwaynet.net writes: > > > > Not really being polite in my book. Zavie Miller told me he was on > > the team that invented gleevec so I guess now he's lieing...whatever > > really don't care. Like I said I'll never reply again to a post. You > > came off as being a no it all bitch...sorry > > > > > > > > -------Original Message------- > > > > From: educatorsu...@aol.com > > Date: 7/1/2010 10:25:58 AM > > To: dsh...@midwaynet.net > > Subject: Re: about your comment on Dr. Talpaz > > > > Sheila: > > > > I was being polite. I was not "ass chewing". I am a "lurker" on the > > group and keep up daily with the digests. I know that you are proud > > that he is your doctor. I just wanted you to be informed. "Ass > > Chewing" would have been replying via the digest...I thought I was > > being considerate... > > > > Hugs, > > Susan > > > > In a message dated 6/30/2010 1:14:52 P.M. Eastern Daylight Time, > > dsh...@midwaynet.net writes: > > OK???? I didn't mean to get an ass chewing...I was told by someone > > else in the group a few years back that he was involved SORRY, guess I > > won't be posting anything again, just trying to help a fellow CMLer > > along > > > > -------Original Message------- > > > > From: educatorsu...@aol.com > > Date: 6/30/2010 11:00:12 AM > > To: dsh...@midwaynet.net > > Subject: about your comment on Dr. Talpaz > > > > Sheila: > > > > Dr. Talpaz did not NOR did he have any input on the development of > > Gleevec. His main focus was the old drug Interferon, of which he is > > still experimenting with this drug to help Gleevec along. > > > > The only way Dr. Moshe Talpaz became involved was when at MD Anderson, > > he chose to become involved since he realized his pet, Interferon, was > > going nowhere fast!!! This is the scoop! > > > > I did not want to embarrass you in front of the group so I am choosing > > to just email you privately. > > > > I just thought I would give you a little bit of history. This does > > not make Dr. Talpaz in my opinion any less of a doctor...BUT he had NO > > INVOLVEMENT in the trials with Gleevec. > > > > Hugs, > > Susan Rosenthal > > > > AGAIN, please advise me as to how to handle this in the future...just > > reply to the group instead of individually? I am just assuming that > > Sheila had a very bad day! > > > > Hugs, > > Susan Rosenthal > > > > Miami, Florida > > dx. January 8th, 2003 > > Began Gleevec: 4/10/2003 > > Ceased Gleevec: 4/21/2003 > > "Rebegan" Gleevec: 4/25/2003 > > Tranfusion dependent: May 2004-November 2005 > > Gleevec reduced to 400mg: 8/2004 > > Gleevec reduced to 300mg: 8/2005 > > Gleevec reduced to 200/300 alternating days: November 7, 2006 to > > present day except now I am taking 250 every day now... > > Still undetectable 9/24/2008 > > BMB/BMA PCRU!!! FISH 0% YEAH!!!!! > > Next appointment with Dr. Druker: Thursday,April 09, 2009 > > Gleevec PK Level taken every 3 months monitored by Novartis and Dr. > > Druker. PCR taken every 3 months! > > PCR-in June was a weak positive but Dr. Druker felt that it was the > > same as undetectable...repeated PCR in August 2008-undetectable!!! > > (BMB/BMA PCRU!!! FISH 0% YEAH!!!!!) > > I was told that I would not need another BMB as long as my numbers > > stay where they are!!! YIPEEEE! > > 3/2009 PCRU!!!! Yippee!!! Nested test not being done any longer at > > OHSU. > > 6/2009 PCRU!!!! Yippee!!! Counts on Gleevec PK went up a little > > bit...not too happy about that! > > This past October, my PCR was undetectable again!!! My Gleevec PK was > > a little raised in numbers but still okay...but I am getting some side > > effects AGAIN! > > This past March, 2010, I was "low traceable" which Dr. Druker says is > > the same as undetectable! > > June 2010-UNDETECTABLE!!! YEAH!!!!- Hide quoted text - > > > > - Show quoted text - > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- Ricardo -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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