thanks for answering back the bun to 48 and the creatinine is 2.4 they wanted me to take a class but the lady doesn't call bak any way I volunteer at the masonic rest home and got to talk to one of the patients and he told me things like the arm surgery(day surgery) and going to the center for the dialasys ( he goes 3 times a week. WHOW. for 4 hrs each time. anything else is I am learning as I go alone any help is greatly appreciated. please put my name in the subject column so I really pay attention and don't delite you.thank you so much. JUDY
________________________________ From: Martin Gartenberg <[email protected]> To: [email protected] Sent: Saturday, June 16, 2012 9:10 PM Subject: Re: [CMLHope] Re: Millie that food sounds good question-- about dialysis Hi Greenie and Jeanie, Jeanie, I think that your making a mistake about your Creatinine level being at 103. You probably misread it The correct number should be 1.03 or 1.3 just like Greenie's is and has been for years. Greenie, I don't know why your doctor is telling you that your Creatinine is high. With a count like yours it is perfectly normal. I wish mine were that low... 18's, Marty On Sat, Jun 16, 2012 at 2:42 PM, <[email protected]> wrote: Jeanie, my creatinine is between 1.3 and 1.4, it's been that way for years. My Doctor keeps telling me it's high but it was that way before I had CML. > >greenie > > >In a message dated 6/14/2012 5:10:21 P.M. Eastern Daylight Time, >[email protected] writes: >Hi all, my creatine was up to 103. Should I be worried? Why did you have to >have dialysis? What were your symptoms? My Creatine and bun levels are >normal. I have had my blood cleaned several times. They hook you up to a >cleaning machine and it takes about 2-3 hours. My brother just had to have it >done as he is in the hospital and his kidneys shut down. It is a little >uncomfortable but you can bear it. >>Thanks Jeanie<3 >> >>In a message dated 6/14/2012 6:17:11 A.M. Eastern Daylight Time, >>[email protected] writes: >>Hi Judy, >>> >>>Sorry to hear about you needing to be on dialysis. Can you tell me what your >>>Creatinine and Bun levels are? Have they placed an access in your chest or >>>arm yet? Do you know anything about Peritneial dialysis? >>> >>>Try not to be to scared because it is just something that you have to do. If >>>you would like to learn more about it then let me know and I would be happy >>>to help you. I have been on it for about a year and all it takes is some >>>getting used to. >>> >>>18's, >>> >>>Marty >>> >>> >>>On Tue, Jun 12, 2012 at 11:33 PM, judy <[email protected]> wrote: >>> >>> >>>> >>>> >>>> >>>>From: Martin Gartenberg <[email protected]> >>>>To: [email protected] >>>>Sent: Tuesday, June 12, 2012 8:23 AM >>>>Subject: Re: [CMLHope] >>>> Re: Millie that food sounds good >>>>Please excuse the tag on I have to have dialisis and I am scared to >>>>death. even more scared than when they told me I had CML could you >>>>please tell me what happens I see the Dr next week Thank you JUDY >>>> >>>> >>>>Hi Millie, >>>> >>>>There is so much to answer I will write in between your lines so I won't >>>>miss anything. >>>> >>>>Hi Marty.....Didn't know that you also have a home in PA. I'm between >>>>Tamaqua and Pottsville in a valley called Lewistown. We've been here >>>>since my husband retired from the Navy forty some years ago. It's quiet >>>>and nice living in the country. I love it. Originally I'm from San >>>>Francisco, but it's been a lot of years. This is home now. >>>> >>>>YES, I LIVE IN TWO PLACES. ONE AS YOU ALREADY KNOW, IN BOYNTON BEACH IN >>>>SOUTHEASTERN FLORIDA AND MY SECOND HOME IN A SMALL TOWN CALLED LACKAWAXEN >>>>WHICH IS IN PIKE COUNTY RIGHT OFF OF THE DELAWARE RIVER. THIS REGION IS >>>>CALLED THE UPPER DELAWARE REGION AND IT IS TRULY BEAUTIFUL. >>>> >>>>BEFORE WE MOVED TO FLORIDA WE USED TO LIVE IN STATEN ISLAND FOR 35 YEARS >>>>AND SINCE WE HAD SMALL CHILDREN AT THE TIME WE DECIDED TO BUY A HOME IN >>>>PENNSYLVANIA SO THE CHILDREN COULD GO THERE FOR VACATIONS. WE WOULD USUALLY >>>>GO UP THERE ON EVERY HOLIDAY AND WEEKENDS. WE HAVE THIS HOUSE FOR MORE THEN >>>>25 YEARS NOW AND LOVE THE SCENERY. OUR HOME IS ACTUALLY CUT INTO THE >>>>FORREST AND WE HAVE ALL OF THE BEAUTIUL DEER COME VISIT US FOR SNACKS THAT >>>>WE GIVE THEM. >>>> >>>> We had storms last night and got 2-3 inches of rain in a short time. >>>>The creek overflowed and it scared me for a while, but we're okay. >>>>Allentown got hit hard. I must go down that way on Wed. morning, so I'm >>>>hoping that the weather will cooperate as I have to be there by 10:00. >>>>If you ever get down this way....you would always be welcome to stop by. >>>> >>>>THANK YOU FOR YOUR INVITATION BUT SINCE I HAVE TO GO TO GET DIALYSIS >>>>TREATMENTS EVERY MON, WED AND FRIDAY IT WOULD BE VERY DIFFICULT FOR ME. I >>>>WAS LUCKY TO BE ABLE TO FIND DIALYSIS CENTER UP HERE IN A TOWN CALLED >>>>HONESDALE WHICH IS ABOUT FOURTY MINUTES AWAY FROM HERE. BEFORE I LEFT >>>>FLORIDA I HAD TO GET A TREATMENT AT 3:00 AM OF FRIDAY MORNING THEN SPENT >>>>TWO DAYS ON THE ROAD DRIVING UP HERE AND THEN ON MONDAY MORNING BACK TOME >>>>DIALYSIS TREATMENT. IT IS NOT FUN BUT I HAVE TO DO IT IN ORDER TO SURVIVE. >>>> >>>>Today I'm busy cooking for Memorial Day tomorrow. I am not going >>>>overboard, but will make another pie since the strawberry one is gone. >>>>I'll make a lemon sponge, which they love too. Hope that your Memorial >>>>Day is a good one. >>>> >>>>IT SOUNDS LIKE YOUR A REAL GOOD COOK. STRAWBERRY PIE... YUMMY!!! MY >>>>FAVORITE IS CHERRY OR PECAN PIE. BUT DON'T PUT ANY OF THEM IN FRONT OF ME >>>>BECAUSE I WILL GOBBLE THEM UP >>>> >>>> Take care of yourself. I will have blood work done soon and talk to my >>>>doctors. My heart medication lowers my blood pressure and they won't >>>>change that. Like you, I deal with other things besides the CML, so just >>>>thank God that I'm still here and able to do a few things. >>>> >>>>YES THANK GOD THAT WE ARE BOTH STILL HERE. I WISH YOU GOOD LUCK ON YOUR >>>>BLOOD TEST. >>>> >>>> >>>> I'm also Diabetic and so can't have to much pie, etc......:>))))) >>>> >>>>WELL I USED TO BE DIABETIC AND HAD A STEM CELL PROCEDURE CONSISTING OF A >>>>LOT OF NEUPOGEN INJECTIONS AND MY DIABETES DISAPPEARED. ALSO THERE IS >>>>ANOTHER REASON. WHEN YOUR KIDNEYS FAIL YOUR BODY PRODUCES MORE INSULIN AND >>>>IT MATOBLIZES IT FASTER. BET YOU DIDN'T KNOW THAT... >>>> >>>>Blessings and 18's to you and yours, >>>>Millie >>>> >>>>AND RIGHR BACK AT YOU. MANY 18'S TO YOU MILLIE, STAY WELL AND GOD BLESS YOU. >>>> >>>>MARTY >>>> >>>> >>>>On Mon, Jun 11, 2012 at 10:33 AM, Suzieq <[email protected]> wrote: >>>> >>>>Jeanie: >>>>>What's "tomato Gravy"? >>>>> >>>>>Love to all, >>>>>Suzieq >>>>> >>>>> >>>>>-- >>>>>[CMLHope] >>>>>A support group of http://cmlhope.com/ >>>>>------------------------------------------------- >>>>> >>>>>You received this message because you are subscribed to the Google Groups >>>>>"CMLHope" group. >>>>>To post to this group, send email to [email protected] >>>>>To unsubscribe from this group, send email to >>>>>[email protected] >>>>>For more options, visit this group at >>>>>http://groups.google.com/group/CMLHope >>>>-- >>>>[CMLHope] >>>>A support group of http://cmlhope.com/ >>>>------------------------------------------------- >>>> >>>>You received this message because you are subscribed to the Google Groups >>>>"CMLHope" group. >>>>To post to this group, send email to [email protected] >>>>To unsubscribe from this group, send email to >>>>[email protected] >>>>For more options, visit this group at http://groups.google.com/group/CMLHope >>>> >>>>-- >>>>[CMLHope] >>>>A support group of http://cmlhope.com/ >>>>------------------------------------------------- >>>> >>>>You received this message because you are subscribed to the Google Groups >>>>"CMLHope" group. >>>>To post to this group, send email to [email protected] >>>>To unsubscribe from this group, send email to >>>>[email protected] >>>>For more options, visit this group at http://groups.google.com/group/CMLHope >>>-- >>>[CMLHope] >>>A support group of http://cmlhope.com/ >>>------------------------------------------------- >>> >>>You received this message because you are subscribed to the Google Groups >>>"CMLHope" group. >>>To post to this group, send email to [email protected] >>>To unsubscribe from this group, send email to >>>[email protected] >>>For more options, visit this group at >>>http://groups.google.com/group/CMLHope-- >>[CMLHope] >>A support group of http://cmlhope.com/ >>------------------------------------------------- >> >>You received this message because you are subscribed to the Google Groups >>"CMLHope" group. >>To post to this group, send email to [email protected] >>To unsubscribe from this group, send email to >>[email protected] >>For more options, visit this group at http://groups.google.com/group/CMLHope >-- >[CMLHope] >A support group of http://cmlhope.com/ >------------------------------------------------- > >You received this message because you are subscribed to the Google Groups >"CMLHope" group. >To post to this group, send email to [email protected] >To unsubscribe from this group, send email to >[email protected] >For more options, visit this group at http://groups.google.com/group/CMLHope -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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