Marwan, You need your son's doctor to contact Novartis, the manufacturer of Gleevec and ask for a compassionate basis supply for your son of this drug. You have nothing to lose so do it as soon as possible.
Marty On Sat, Jun 16, 2012 at 10:24 PM, Marwan Abdeh <[email protected]>wrote: > Hello dear friends > My son is diagnosed with dermatofibrosarco and badly needs Gleevec. > Pls Help. Do all your best to find him doners or friends who have > excta quantity of Gleevec. > I appreciate your help > Sincerely > Marwan Abdeh > > Damascus/ Syria > > On 17 June 2012 08:13, judy <[email protected]> wrote: > > thanks for answering back the bun to 48 and the creatinine is 2.4 they > > wanted me to take a class but the lady doesn't call bak any way I > volunteer > > at the masonic rest home and got to talk to one of the patients and he > told > > me things like the arm surgery(day surgery) and going to the center for > the > > dialasys ( he goes 3 times a week. WHOW. for 4 hrs each time. anything > > else is I am learning as I go alone any help is greatly appreciated. > please > > put my name in the subject column so I really pay attention and don't > delite > > you.thank you so much. JUDY > > > > > > From: Martin Gartenberg <[email protected]> > > To: [email protected] > > Sent: Saturday, June 16, 2012 9:10 PM > > Subject: Re: [CMLHope] Re: Millie that food sounds good question-- about > > dialysis > > > > Hi Greenie and Jeanie, > > > > Jeanie, I think that your making a mistake about your Creatinine level > being > > at 103. You probably misread it The correct number should be 1.03 or 1.3 > > just like Greenie's is and has been for years. > > > > Greenie, I don't know why your doctor is telling you that your > Creatinine is > > high. With a count like yours it is perfectly normal. I wish mine were > that > > low... > > > > 18's, > > > > Marty > > > > On Sat, Jun 16, 2012 at 2:42 PM, <[email protected]> wrote: > > > > Jeanie, my creatinine is between 1.3 and 1.4, it's been that way for > years. > > My Doctor keeps telling me it's high but it was that way before I had > CML. > > > > greenie > > > > In a message dated 6/14/2012 5:10:21 P.M. Eastern Daylight Time, > > [email protected] writes: > > > > Hi all, my creatine was up to 103. Should I be worried? Why did you > have > > to have dialysis? What were your symptoms? My Creatine and bun levels > are > > normal. I have had my blood cleaned several times. They hook you up to > a > > cleaning machine and it takes about 2-3 hours. My brother just had to > have > > it done as he is in the hospital and his kidneys shut down. It is a > little > > uncomfortable but you can bear it. > > Thanks Jeanie<3 > > > > In a message dated 6/14/2012 6:17:11 A.M. Eastern Daylight Time, > > [email protected] writes: > > > > Hi Judy, > > > > Sorry to hear about you needing to be on dialysis. Can you tell me what > your > > Creatinine and Bun levels are? Have they placed an access in your chest > or > > arm yet? Do you know anything about Peritneial dialysis? > > > > Try not to be to scared because it is just something that you have to > do. If > > you would like to learn more about it then let me know and I would be > happy > > to help you. I have been on it for about a year and all it takes is some > > getting used to. > > > > 18's, > > > > Marty > > > > On Tue, Jun 12, 2012 at 11:33 PM, judy <[email protected]> wrote: > > > > > > > > From: Martin Gartenberg <[email protected]> > > To: [email protected] > > Sent: Tuesday, June 12, 2012 8:23 AM > > Subject: Re: [CMLHope] > > Re: Millie that food sounds good > > Please excuse the tag on I have to have dialisis and I am scared to > > death. even more scared than when they told me I had CML could you > please > > tell me what happens I see the Dr next week Thank you JUDY > > > > Hi Millie, > > > > There is so much to answer I will write in between your lines so I won't > > miss anything. > > > > Hi Marty.....Didn't know that you also have a home in PA. I'm between > > Tamaqua and Pottsville in a valley called Lewistown. We've been here > > since my husband retired from the Navy forty some years ago. It's quiet > > and nice living in the country. I love it. Originally I'm from San > > Francisco, but it's been a lot of years. This is home now. > > > > YES, I LIVE IN TWO PLACES. ONE AS YOU ALREADY KNOW, IN BOYNTON BEACH IN > > SOUTHEASTERN FLORIDA AND MY SECOND HOME IN A SMALL TOWN CALLED LACKAWAXEN > > WHICH IS IN PIKE COUNTY RIGHT OFF OF THE DELAWARE RIVER. THIS REGION IS > > CALLED THE UPPER DELAWARE REGION AND IT IS TRULY BEAUTIFUL. > > > > BEFORE WE MOVED TO FLORIDA WE USED TO LIVE IN STATEN ISLAND FOR 35 YEARS > AND > > SINCE WE HAD SMALL CHILDREN AT THE TIME WE DECIDED TO BUY A HOME IN > > PENNSYLVANIA SO THE CHILDREN COULD GO THERE FOR VACATIONS. WE WOULD > USUALLY > > GO UP THERE ON EVERY HOLIDAY AND WEEKENDS. WE HAVE THIS HOUSE FOR MORE > THEN > > 25 YEARS NOW AND LOVE THE SCENERY. OUR HOME IS ACTUALLY CUT INTO THE > FORREST > > AND WE HAVE ALL OF THE BEAUTIUL DEER COME VISIT US FOR SNACKS THAT WE > GIVE > > THEM. > > > > We had storms last night and got 2-3 inches of rain in a short time. > > The creek overflowed and it scared me for a while, but we're okay. > > Allentown got hit hard. I must go down that way on Wed. morning, so > I'm > > hoping that the weather will cooperate as I have to be there by > 10:00. If > > you ever get down this way....you would always be welcome to stop by. > > > > THANK YOU FOR YOUR INVITATION BUT SINCE I HAVE TO GO TO GET DIALYSIS > > TREATMENTS EVERY MON, WED AND FRIDAY IT WOULD BE VERY DIFFICULT FOR ME. I > > WAS LUCKY TO BE ABLE TO FIND DIALYSIS CENTER UP HERE IN A TOWN CALLED > > HONESDALE WHICH IS ABOUT FOURTY MINUTES AWAY FROM HERE. BEFORE I LEFT > > FLORIDA I HAD TO GET A TREATMENT AT 3:00 AM OF FRIDAY MORNING THEN SPENT > TWO > > DAYS ON THE ROAD DRIVING UP HERE AND THEN ON MONDAY MORNING BACK TOME > > DIALYSIS TREATMENT. IT IS NOT FUN BUT I HAVE TO DO IT IN ORDER TO > SURVIVE. > > > > Today I'm busy cooking for Memorial Day tomorrow. I am not going > > overboard, but will make another pie since the strawberry one is gone. > > I'll make a lemon sponge, which they love too. Hope that your Memorial > > Day is a good one. > > > > IT SOUNDS LIKE YOUR A REAL GOOD COOK. STRAWBERRY PIE... YUMMY!!! MY > > FAVORITE IS CHERRY OR PECAN PIE. BUT DON'T PUT ANY OF THEM IN FRONT OF ME > > BECAUSE I WILL GOBBLE THEM UP > > > > Take care of yourself. I will have blood work done soon and talk to > my > > doctors. My heart medication lowers my blood pressure and they won't > > change that. Like you, I deal with other things besides the CML, so > just > > thank God that I'm still here and able to do a few things. > > > > YES THANK GOD THAT WE ARE BOTH STILL HERE. I WISH YOU GOOD LUCK ON YOUR > > BLOOD TEST. > > > > > > I'm also Diabetic and so can't have to much pie, etc......:>))))) > > > > WELL I USED TO BE DIABETIC AND HAD A STEM CELL PROCEDURE CONSISTING OF A > LOT > > OF NEUPOGEN INJECTIONS AND MY DIABETES DISAPPEARED. ALSO THERE IS ANOTHER > > REASON. WHEN YOUR KIDNEYS FAIL YOUR BODY PRODUCES MORE INSULIN AND IT > > MATOBLIZES IT FASTER. BET YOU DIDN'T KNOW THAT... > > > > Blessings and 18's to you and yours, > > Millie > > > > AND RIGHR BACK AT YOU. MANY 18'S TO YOU MILLIE, STAY WELL AND GOD BLESS > YOU. > > > > MARTY > > > > On Mon, Jun 11, 2012 at 10:33 AM, Suzieq <[email protected]> > wrote: > > > > Jeanie: > > What's "tomato Gravy"? > > > > Love to all, > > Suzieq > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com/ > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com/ > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com/ > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com/ > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com/ > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com/ > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com/ > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > > > > > -- > > [CMLHope] > > A support group of http://cmlhope.com > > ------------------------------------------------- > > > > You received this message because you are subscribed to the Google Groups > > "CMLHope" group. > > To post to this group, send email to [email protected] > > To unsubscribe from this group, send email to > > [email protected] > > For more options, visit this group at > http://groups.google.com/group/CMLHope > > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at > http://groups.google.com/group/CMLHope > -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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