Hi Beth and Fellow Warriors: I pray for all of us to do well and live long, happy, pain free lives. What Millie wrote is so true. People who don't have CML or those who aren't related or very close to a CML patient don't get it. My sister is in from Florida because our 92 year old father had a stroke 3 weeks ago. Tonight we had dinner with cousins who kept saying to me, I guess you aren't really sick because you look great. Really? I'm wearing a wig, just started with false eyelashes, had a week with such bad Gleevec stomach that I can barely sit because my bottom is so sore, muscle cramps and terrible bone pain. But life goes on and I'm determined to live my life, not focus on my death. That will happen whenever the Heavenly Father determines that it is my time.
The point I guess I'm making is that there is so much isolation and fear because we have something rare and it is scary to us and others to hear the word cancer. The silver lining is that we have an illness that can be managed, albeit with horrific side effects for many, for quite a long time. Plus new treatment options. And we have one another which is a true blessing. Beth, I send good wishes your way and will say prayers for you. My heartfelt thanks to all of you for the kindness you always extend. One last thing. I'm going to Israel the end of May. There is a tradition in my religion, Judaism, that if you write a note or prayer on a small piece of paper and fold it up and place it in a crack in the Western Wall in Jerusalem that God will answer your prayers. I've had miraculous experiences, including that more than 28 years ago we were told it was IMPOSSIBLE for me to get pregnant. I gave a prayer to a friend who was going to Israel that asked God to bless us with a baby and within 6 weeks got pregnant. We only have one very beautiful 25 year old daughter. If anyone would like me to place notes for them, please let me know and I'll give you my private email. I figure a prayer to God is always a good thing and I am happy to do this for anyone that would feel some comfort and hope in this old tradition. Marcie Sent from my iPad On Apr 20, 2013, at 4:04 AM, "C.M. Houtz" <ho...@ptd.net> wrote: > Hi Beth, > > I know you struggle with your meds and that you have had so many side > effects. I'm so sorry that this new drug has caused you such problems. I am > not sleeping well tonight, so decided to get up and do some things on here > that I've been meaning to do. I wanted to print out some patterns to hand > stitch. I haven't been feeling well, and am seeing an Gastrointerologist > (spelling is wrong), but at 4:00 A.M., what do you expect :>). When I came > off of two months of Home Care....due to a hip problem, I thought I'd be > feeling better, but started with nausea. It's not every day, but enough that > I am having trouble dealing with it. I also was in severe pain due to my > polymyalgia. After years on Tasigna and dealing with constipation, I'm > dealing with the opposite most days. I had a sinus infection and my doctor > put me on an antibiotic and that got rid of it, but the stomach problems have > stayed with me. I also was taking meds for acid reflux and now, after a year > on the stuff, Express Script has told me that it can interfere with the > Tasigna, so had to stop that. My pain and whatever has made me so weak that > it's almost impossible for me to get up from a chair without help. I'm not > sure if the Arthritis has caused this, or if it's a medication problem, but I > can understand where you are coming from. I'm anxious to see my Oncologist > next month and, hopefully, I'll still be in remission. We all have issues, > but must stay strong and fight it as hard as we can. I know that it sounds > easy, and know that it isn't, but just remember that we're all here to help > one another, and you all have helped me so much. People look at you and > think...you look well, and don't realize how difficult this CML is to fight. > I look in the mirror and wonder who this old lady is as my hair if all but > gone and I no longer have eye lashes, but I try to laugh and just put my wig > on and go out whenever I can do it. Lately, that hasn't been to often. The > weather is getting better so one of these days, I'm going to go out with my > jazzy chair and enjoy the warmer days. I fill in the rest of my time with > needle work. I'm doing a lot of embroidery right now, and quilting. I have > two quilt tops to finish up and then will have someone get them ready for me > to quilt. I try to fill my head with things that I love to do, and that > seems to help. I wish there was more that I could say and do to help you. I > will keep you in my thoughts and prayers and hope that you will be in > remission soon. Take care.......Hugs, Millie > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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