Dear Marcie, I too have been to Israel and also placed several "notes" into the cracks of the Western Wall for others suffering from cancer.
I would very much like if you could place a piece of paper in one of the cracks of that wall. My email address is wa2...@juno.com. If you would kindly contact me I would appreciate it. 18's Marty On Sun, Apr 21, 2013 at 12:57 AM, Marcie Goodman <margoo...@aol.com> wrote: > Hi Beth and Fellow Warriors: > > I pray for all of us to do well and live long, happy, pain free lives. > What Millie wrote is so true. People who don't have CML or those who aren't > related or very close to a CML patient don't get it. My sister is in from > Florida because our 92 year old father had a stroke 3 weeks ago. Tonight we > had dinner with cousins who kept saying to me, I guess you aren't really > sick because you look great. Really? I'm wearing a wig, just started with > false eyelashes, had a week with such bad Gleevec stomach that I can barely > sit because my bottom is so sore, muscle cramps and terrible bone pain. But > life goes on and I'm determined to live my life, not focus on my death. > That will happen whenever the Heavenly Father determines that it is my > time. > > The point I guess I'm making is that there is so much isolation and fear > because we have something rare and it is scary to us and others to hear the > word cancer. The silver lining is that we have an illness that can be > managed, albeit with horrific side effects for many, for quite a long time. > Plus new treatment options. And we have one another which is a true > blessing. > > Beth, I send good wishes your way and will say prayers for you. My > heartfelt thanks to all of you for the kindness you always extend. > > One last thing. I'm going to Israel the end of May. There is a tradition > in my religion, Judaism, that if you write a note or prayer on a small > piece of paper and fold it up and place it in a crack in the Western Wall > in Jerusalem that God will answer your prayers. I've had miraculous > experiences, including that more than 28 years ago we were told it was > IMPOSSIBLE for me to get pregnant. I gave a prayer to a friend who was > going to Israel that asked God to bless us with a baby and within 6 weeks > got pregnant. We only have one very beautiful 25 year old daughter. If > anyone would like me to place notes for them, please let me know and I'll > give you my private email. I figure a prayer to God is always a good thing > and I am happy to do this for anyone that would feel > some comfort and hope in this old tradition. > > Marcie > > Sent from my iPad > > On Apr 20, 2013, at 4:04 AM, "C.M. Houtz" <ho...@ptd.net> wrote: > > *Hi Beth,* > ** > *I know you struggle with your meds and that you have had so many side > effects. I'm so sorry that this new drug has caused you such problems. I > am not sleeping well tonight, so decided to get up and do some things on > here that I've been meaning to do. I wanted to print out some patterns to > hand stitch. I haven't been feeling well, and am seeing an > Gastrointerologist (spelling is wrong), but at 4:00 A.M., what do you > expect :>). When I came off of two months of Home Care....due to a hip > problem, I thought I'd be feeling better, but started with nausea. It's > not every day, but enough that I am having trouble dealing with it. I also > was in severe pain due to my polymyalgia. After years on Tasigna and > dealing with constipation, I'm dealing with the opposite most days. I had > a sinus infection and my doctor put me on an antibiotic and that got rid of > it, but the stomach problems have stayed with me. I also was taking meds > for acid reflux and now, after a year on the stuff, Express Script has told > me that it can interfere with the Tasigna, so had to stop that. My > pain and whatever has made me so weak that it's almost impossible for me to > get up from a chair without help. I'm not sure if the Arthritis has caused > this, or if it's a medication problem, but I can understand where you are > coming from. I'm anxious to see my Oncologist next month and, hopefully, > I'll still be in remission. We all have issues, but must stay strong and > fight it as hard as we can. I know that it sounds easy, and know that it > isn't, but just remember that we're all here to help one another, and you > all have helped me so much. People look at you and think...you look well, > and don't realize how difficult this CML is to fight. I look in the mirror > and wonder who this old lady is as my hair if all but gone and I no longer > have eye lashes, but I try to laugh and just put my wig on and go out > whenever I can do it. Lately, that hasn't been to often. The weather is > getting better so one of these days, I'm going to go out with my jazzy > chair and enjoy the warmer days. I fill in the rest of my time with needle > work. I'm doing a lot of embroidery right now, and quilting. I have two > quilt tops to finish up and then will have someone get them ready for me to > quilt. I try to fill my head with things that I love to do, and that seems > to help. I wish there was more that I could say and do to help you. I > will keep you in my thoughts and prayers and hope that you will be in > remission soon. Take care.......Hugs, Millie* > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/groups/opt_out. > > > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out.
