Thank you so much, Greenie!!! I've been so busy since Saturday I'm just now
able to read these replies...you guys are the greatest! I'll e-mail tomorrow,
real sick with a chest cold...
Susan F. Zimmerman
-----Original Message-----
From: Myvety2k <myvet...@aol.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Sat, May 18, 2013 2:00 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today
Hi Susan, my daughter's name is Susan. I live in South Fort Myers, minutes
from the Golf, it's a 55 and older community . I've been going to Northwestern
University School of Medicine since 1999. It's just 2 blocks south of the John
Hancock building. They call it the Robert H. Lurie Comprehensive Cancer Center
of Northwestern University. 675 North St. Clair Street Suite 21 which is the
21st floor. Chicago, IL. 60611. You can call 312-695-0990. They have a team
of Doctors that you would work with. My Doctors name is Jessica K. Altman MD.,
theirs Olga Frankfurt, MD,MS. theirs Dr. Leon C. Platanias, MD, PhD, just to
name a few. How you would get in their I don't know unless you just call, or
have your Doctor refer you to Northwestern. I know one thing they are good and
the area is very safe, easy parking right across the street. Parking garage 10
stories high. I think they charge $10.00 for 7 hours and you get your receipt
stamped at the desk before you leave. Their pretty tight lipped and won't give
out any information about other patients. Which is O. K. by me. And they have
a great cafeteria to eat your lunch. It's a big place, takes up a couple city
blocks. You should check it out and it's and easy drive. If you want you can
email me and give me your phone number and I'll call you and we can talk.
myvet...@aol.com.
Hope this helps,
greenie
In a message dated 5/18/2013 8:58:57 A.M. Eastern Daylight Time,
rszim0...@aol.com writes:
Hi Greenie,
I am from Indiana also, and looking for a good doctor in the Chicago area
that knows a lot about CML. Do you suggest someone at Northwestern or do you
know anyone at University of Chicago? Dr. Druker's nurse told my friend of a
name, Dr. Larsen who is at U. of Chicago if he has not retired or moved. My
latest FISH test showed 17.74 number, which gives me some cause for alarm.
Anyone have any opinion about that? I'm the one who hasn't had any medicine
for six years and 2 months now.
I live in the South Bend/Granger area, and do not have faith in any of these
local doctors. Where do you live, Greenie?
Thanks and 18's,
Susan F. Zimmerman
"Look among the nations and watch; be utterly astounded! For I will work a
work in your days which you would not believe, though it were told you."
Hab. 1:5
-----Original Message-----
From: Myvety2k <myvet...@aol.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Thu, May 16, 2013 6:32 am
Subject: Re: [CMLHope] Re: posting my blood panel results today
Hi Beth, when I first started STI571 at Northwestern back in Jan. of 2000 in
a study sponsored by Novartis, Northwestern not Novartis told me that as long
as I stay alive they would supply me with the drug. This new study is
sponsored by Northwestern, I didn't mean to get Novartis involved with my
email I think they wanted someone that was of my age, 73 that's been on
Gleevec for over 13 years. I don't know anything about the 2 other people
involved in this study. I asked one time about the 7 other people that were
in the first study back in 2000 and they said they can't give out any
information about them. Seven of them were from Chicago land and I was the
only one from Indiana. I don't even know if any of them are still in any
study or alive.
greenie
In a message dated 5/15/2013 8:03:53 P.M. Eastern Daylight Time,
bkbar...@aol.com writes:
OK. I just got confused, You said you were in a new study with two others.
Always looking at options! Thanks. Feel good!! Beth
-----Original Message-----
From: Myvety2k <myvet...@aol.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Wed, May 15, 2013 6:33 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today
Hi Beth, I'm not taking anything put I am going to check into it.
greenie
In a message dated 5/15/2013 6:11:22 P.M. Eastern Daylight Time,
bkbar...@aol.com writes:
Greenie, are you on ponatinib? Let me know. Beth
-----Original Message-----
From: Myvety2k <myvet...@aol.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, May 14, 2013 6:36 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today
Hi Beth, Northwestern University and it's supported by Novartis.
Greenie
In a message dated 5/14/2013 6:15:54 P.M. Eastern Daylight Time,
bkbar...@aol.com writes:
GReenie, glad your cml is doing so well. What new study are you in? Beth
-----Original Message-----
From: Myvety2k <myvet...@aol.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, May 14, 2013 3:56 pm
Subject: Re: [CMLHope] Re: posting my blood panel results today
HI Suzieq, I went to Chicago on May 1st to see my Doctor, get my blood
work and pickup my med's. My son and is wife and my 7 month old
grandson picked me up at Midway. Doctor told me that I need not come
back for (1) year only to pickup same. She said if I want to I could
see a cancer Doctor here in Fort Myers once a year that way I would be
getting my month work every 6 months instead of every 3 months. It's
up to me. So that's good news and they put me into another study with
2 other people plus some in other countries. Good to here your doing
O. K.
Greenie
In a message dated 5/14/2013 4:43:53 P.M. Eastern Daylight Time,
sheila.a.wat...@gmail.com writes:
Jeanie:
So glad to hear these test results. Just awesome. I remember your
past struggles.
I go tomorrow for my sixth month Doctor visit. Am curious to see if
mine are still stable being on 200mgs instead of the 400. Will be
hoping for these good blood counts as yours. :)
God Bless,
Suzieq
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