>________________________________
>
>From: Pat Elliott <pfemail...@gmail.com>
> Pat I tried that hangout, No one there. I read the posts and find I wish I
>could speak to the problems
>that our fellow travellers have, I can only tell everyone that there, are
>more and more options for
>those who are still online. I as the longest survivor in the world(they
>think) have gone through just
>about everything that is being offered plus one or two more. I wish I could
>put my arms around each
>and everyone here. I pray every night for you all, I remember around 33
>years ago I was getting close
>to the 2 years the cancer centre gave me. As time went on to about 6 months
>left on my 2 years
> I sat In the waiting room with survivors and each month there were less and
>less of us until I was the only one.
>left in our group on the last Tuesday every month. I look at the group now,
>so many more that the NIB's have helped (imatinib,nilotinib ,dasatinib
>myleran,Hydroxurea ) 5, 10, even 15 years and more posting online, every one a
>warrior. How wonderful it is but there are pains and there are fallbacks,
>Marty says it best when he say 18 which is life.
>But we all must hold our pain with a smile and that sick feeling we get amd
>put it into G--'s hands As far as I know HE will not give us more than we can
>handle, My routine is twice weekly I get a bag of platelets, and once week I
>get red cells.
>I have been off the NIB's for about 3 years my bone marrow is shot, but could
>it be that my WBC count is 1.3
>to 1.8 twice a week I have almost no Neutfils, I lose about 9 thousand red
>cells a week. My platelets around 5 to 13 per every four days.
>Is it possible with almost no white count that the leukemia cannot do damage,
>I use to have 300,000 white counts
>they would let my count ride and then knock it down with Myleran.
>
>I guess this long and boring email is to say, the clouds do lighten up sun
>shines pain seems to be in the past
>but hang in look I did this with G--'s help and 36 years just flew past I feel
>great and enjoy my life as I did
>in the past..
>Skip Duffie Dxéd 36 years ago
>
>
>
>Dear Group, Another option is to use Google Hangout, then people would be able
>to see each other. It’s somewhat like a conference call only you are on the
>call on your computer’s webcam. I’ve never set one up but here is a link to
>more info if Marcie or someone else wants to learn more. There are some cancer
>support programs now done on Google Hangout as well as wonderful virtual photo
>tours that enable people to travel all over the world from their computers.
>It’s amazing technology. Pat
>http://www.google.com/+/learnmore/hangouts/
>
>
>From:cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of
>Susan Zimmerman
>Sent: Wednesday, July 17, 2013 8:54 AM
>To: cmlhope@googlegroups.com
>Subject: Re: [CMLHope] Photos
>
>I vote for Millie's, also! And....I want a pic of Richard who has been off
>gleevec like me for so long....but now I want to take something, and am having
>stroke-like symptoms when I take tasigna, so at a loss about what to do....
>Conference calls only need to find a host....we can get them free if I ask a
>friend of mine...would recommend once a month, I guess....can google the
>different places that offer it....
>
>Love,
>Susan
>
>-----Original Message-----
>From: margood18 <margoo...@aol.com>
>To: CMLHope <CMLHope@googlegroups.com>
>Sent: Sat, Jul 13, 2013 8:27 am
>Subject: [CMLHope] Photos
>Isn't it great that at least a group of us can put the face with the name?
>I'm going to find out how we can do a call in conference call. Rather, either
>my husband or the IT group from Baltimore County Government where I work, will
>tell me how to do it. We could set it up for once a week, every other week,
>or once a month. That would be cool, to have a number we call into and
>connect. I'd love to plan a get together but don't know if it is possible.
>
>If it is, I vote we go to Millie!
>
>Marcie
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