Oh Skip, you are NEVER boring, you are inspirational!
From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of Skip Duffie Sent: Wednesday, July 17, 2013 3:51 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Photos From: Pat Elliott <pfemail...@gmail.com> Pat I tried that hangout, No one there. I read the posts and find I wish I could speak to the problems that our fellow travellers have, I can only tell everyone that there, are more and more options for those who are still online. I as the longest survivor in the world(they think) have gone through just about everything that is being offered plus one or two more. I wish I could put my arms around each and everyone here. I pray every night for you all, I remember around 33 years ago I was getting close to the 2 years the cancer centre gave me. As time went on to about 6 months left on my 2 years I sat In the waiting room with survivors and each month there were less and less of us until I was the only one. left in our group on the last Tuesday every month. I look at the group now, so many more that the NIB's have helped (imatinib,nilotinib ,dasatinib myleran,Hydroxurea ) 5, 10, even 15 years and more posting online, every one a warrior. How wonderful it is but there are pains and there are fallbacks, Marty says it best when he say 18 which is life. But we all must hold our pain with a smile and that sick feeling we get amd put it into G--'s hands As far as I know HE will not give us more than we can handle, My routine is twice weekly I get a bag of platelets, and once week I get red cells. I have been off the NIB's for about 3 years my bone marrow is shot, but could it be that my WBC count is 1.3 to 1.8 twice a week I have almost no Neutfils, I lose about 9 thousand red cells a week. My platelets around 5 to 13 per every four days. Is it possible with almost no white count that the leukemia cannot do damage, I use to have 300,000 white counts they would let my count ride and then knock it down with Myleran. I guess this long and boring email is to say, the clouds do lighten up sun shines pain seems to be in the past but hang in look I did this with G--'s help and 36 years just flew past I feel great and enjoy my life as I did in the past.. Skip Duffie Dxéd 36 years ago Dear Group, Another option is to use Google Hangout, then people would be able to see each other. It’s somewhat like a conference call only you are on the call on your computer’s webcam. I’ve never set one up but here is a link to more info if Marcie or someone else wants to learn more. There are some cancer support programs now done on Google Hangout as well as wonderful virtual photo tours that enable people to travel all over the world from their computers. It’s amazing technology. Pat http://www.google.com/+/learnmore/hangouts/ From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of Susan Zimmerman Sent: Wednesday, July 17, 2013 8:54 AM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Photos I vote for Millie's, also! And....I want a pic of Richard who has been off gleevec like me for so long....but now I want to take something, and am having stroke-like symptoms when I take tasigna, so at a loss about what to do.... Conference calls only need to find a host....we can get them free if I ask a friend of mine...would recommend once a month, I guess....can google the different places that offer it.... Love, Susan -----Original Message----- From: margood18 <margoo...@aol.com> To: CMLHope <CMLHope@googlegroups.com> Sent: Sat, Jul 13, 2013 8:27 am Subject: [CMLHope] Photos Isn't it great that at least a group of us can put the face with the name? I'm going to find out how we can do a call in conference call. Rather, either my husband or the IT group from Baltimore County Government where I work, will tell me how to do it. We could set it up for once a week, every other week, or once a month. That would be cool, to have a number we call into and connect. I'd love to plan a get together but don't know if it is possible. If it is, I vote we go to Millie! Marcie -- -- [CMLHope] A support group of http://cmlhope.com/ ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. 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