Thank you Pat! I have found that when I am off sprycel the numbers right themselves. so I think it's caused by the drug. There had been some question as to if the sprycel had created a situation where another disease process could have been evoked by it's use. I have had extensive tests AMA panel etc...they cannot seem to find the culprit. Thank you again for your help Pat and all you do for all of us. Best, Beth
-----Original Message----- From: Pat Elliott <pfemail...@gmail.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Fri, Aug 2, 2013 10:29 am Subject: RE: [CMLHope] Re: Back on Gleevec Hi Beth- I’m not sure what you’re asking, but there’s clinical trial data showing elevated CPK levels are a rare side effect found with Gleevec. Clinical Laboratory Tests: Estimated 0.1%-1%: blood CPK increased //Source: http://www.drugs.com/pro/gleevec.html I didn’t find data indicating this as a side effect with Sprycel but Gleevec has been studied in trials longer and there’s typically more data available there. You may find it helpful to research information for other conditions that cause an elevated CPK level and, of course, to work with your medical team too. This link provides some basic info on CPK levels and also lists other conditions: http://www.nlm.nih.gov/medlineplus/ency/article/003503.htm Hope this helps you get some answers soon! Take care. Pat From: cmlhope@googlegroups.com [mailto:cmlhope@googlegroups.com] On Behalf Of bkbar...@aol.com Sent: Thursday, August 01, 2013 10:58 PM To: cmlhope@googlegroups.com Subject: Re: [CMLHope] Re: Back on Gleevec Dear Sylvia, I am sorry your break did not hold your numbers. I am however, grateful that you respond to gleevec and that " your old friend" is, with side effects and all, still a very powerful allie. You have a great attitude about it. Just so you don't feel alone, I went off sprycel for 7 weeks, and lost my MMR during that time. I was dissapointed, but relieved that when I went back on, the med worked quickly to get me back in line. Now it's just trying to navigate the side effects...Still trying to find a way to bring down my CPK....I am researching this as much as I am able...anyone who has any ideas about it, please let me know!!! Pat? Any suggestions?? Take care Sylvia, we are all here to chat with...so we are walking the path together. Warm thoughts and good care to all.Take good care, Beth -----Original Message----- From: Richard H <richard1huff...@comcast.net> To: cmlhope <cmlhope@googlegroups.com> Sent: Thu, Aug 1, 2013 9:29 pm Subject: [CMLHope] Re: Back on Gleevec Sorry to hear that the vacation didn't work. Richard H. On Thursday, August 1, 2013 8:04:09 PM UTC-5, Sylvia wrote: Hi everyone I wrote about 2 months ago that after 12 yrs on Gleevec I was going to take a break and go off for a while. My dr wasn't too pleased and said i needed to come back in a month for a PCR. Well my results went from a 4.5 log reduction to a 2.8 log reduction. That's a lot in 1 month. So I am back on Gleevec. It's like welcoming back an old friend. I am thankful for Gleevec as many of my CML friends didn't live long enough to try it. Blessings to all Sylvia Guenther Dx 6/98 -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/groups/opt_out. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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