Hi all For some reason I couldn't understand what 163.28 C means in my WBC. I know they are high. Can anyone explain this?? Jeanie Sent from my iPhone
> On Jan 10, 2015, at 10:45 AM, "'Icandoallttc' via CMLHope" > <cmlhope@googlegroups.com> wrote: > > Thanks Joyce > Yes I'm going to have another BMT fri. > They will find out what's going on. > Staying positive and trusting in The Lord. > Blessings > Jeanie > 18's 🐟 > > Sent from my iPhone > >> On Jan 10, 2015, at 1:47 AM, Joyce Mesnarich <joy...@htc.net> wrote: >> >> Jeanie, >> So sorry to hear about your set-back. Glad you are going to Moffitt to try >> to sort things out. Remember that we have several other drugs to >> use.....just have to get over this rough patch. you are in my prayers and >> thoughts. >> Joyce in IL >> >> >> >> Begin forwarded message: >> >>> From: ICANDOALLTTC via CMLHope <cmlhope@googlegroups.com> >>> Date: January 9, 2015 6:53:38 AM CST >>> To: cmlhope@googlegroups.com >>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>> Reply-To: cmlhope@googlegroups.com >>> >>> Hi Richard and thanks for the update. My onc doesn't like for me to be >>> informed either; he just ignores what I say and goes on to tell me what he >>> thinks. >>> My uric acid was high along with my WBC and Platelets. He seemed to be >>> more concerned with the high uric acid--even called me on my cell >>> personally twice; never had that happen before. >>> He took me off Sprycel adn put me on Hydrea and allopurinol; it's funny the >>> same thing they did 11 years ago when I was first dx. >>> He took another blood sample to see if I have a mutation against the >>> Sprycel. It seems strange that I had a mutation with Gleevec after 5 >>> years. Is five years a cut off point? Has anyone else have this happen? >>> Anyone else been on Hydrea after tki? >>> Going next week to Moffitt to see if I have the mutation. Will let >>> everyone know. >>> The leukemia has reared it's ugly head once again!! >>> Pray for me and everyone in need. >>> Blessings >>> Jeanie >>> (18) >>> >>> >>> In a message dated 1/8/2015 11:59:08 P.M. Eastern Standard Time, >>> rbhuffm...@gmail.com writes: >>> WOW! Just read todays posts. I am praying for the group. I will add my >>> problem to the list. Dec. 30 I contacted ONC about gaining 9.5 pounds >>> water weight in 20 days after restarting Gleevec. His nurse called that he >>> was out of the country on vacation with his family. She checked with the >>> DR. covering for him and he asked me to stop Gleevec as he thought I was >>> gaining weight too fast also. My ONC did return to the office on Monday >>> but finally had a conference with his Associate and he agreed with that >>> decision. They both thought that I should be on a different treatment. My >>> ONC was to draft an e-mail to the VA ONC (the one controlling my >>> prescriptions) about my reaction to Gleevec and to recommend the treatment >>> he thinks I should be on. So I am still in a wait and see stage. My ONC >>> tells me I am too informed about my condition and that challenges most >>> blood cancer specialists that rarely see CML. >>> So let the fun and games continue. I am still feeling great, but the >>> "Gleevec Brain" was also starting to show itself, but nine days off has >>> cleared it. I'm as sharp as a busted tack, but that is "normal" for me. >>> >>> As always, "life" and may your tomorrow be beautiful and better than today. >>> >>> Richard H. >>> >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
