Hi Greenie, So you have been on Gleevec for 15 years. That is something good to know because what would you have done without Gleevec? This drug is responsible for saving countless lives. Thank GOD it is here or you wouldn't be here right now.
If it weren't for dialysis neither would I be here right now. This is the advancement of what medicine has on our lives today. I always say that there will be a cure for CML and you can mark my words it WILL come soon. Just like all of the things that were not around years ago now they are coming. GOD bless you Greenie! 18's, Marty On Thu, Jan 15, 2015 at 5:47 AM, Shannon L <shannonl.cam...@gmail.com> wrote: > Hi Greenie 15 yrs on glivec, i will be 14yrs this yr (started roughly 3 > yrs after dx) > Shannon > > On Saturday, January 10, 2015 at 12:11:08 AM UTC+11, greenie wrote: >> >> Jeanie, as of Jan. 10th I will have been on Gleevec for 15 years. >> Starting to retain fluid around my ankles a little but that could be and >> age thing. 75 years old. >> >> greenie >> >> In a message dated 1/9/2015 7:53:41 A.M. Eastern Standard Time, >> cml...@googlegroups.com writes: >> >> Hi Richard and thanks for the update. My onc doesn't like for me to be >> informed either; he just ignores what I say and goes on to tell me what he >> thinks. >> My uric acid was high along with my WBC and Platelets. He seemed to be >> more concerned with the high uric acid--even called me on my cell >> personally twice; never had that happen before. >> He took me off Sprycel adn put me on Hydrea and allopurinol; it's funny >> the same thing they did 11 years ago when I was first dx. >> He took another blood sample to see if I have a mutation against the >> Sprycel. It seems strange that I had a mutation with Gleevec after 5 >> years. Is five years a cut off point? Has anyone else have this happen? >> Anyone else been on Hydrea after tki? >> Going next week to Moffitt to see if I have the mutation. Will let >> everyone know. >> The leukemia has reared it's ugly head once again!! >> Pray for me and everyone in need. >> Blessings >> Jeanie >> (18) >> >> >> In a message dated 1/8/2015 11:59:08 P.M. Eastern Standard Time, >> rbhuf...@gmail.com writes: >> >> WOW! Just read todays posts. I am praying for the group. I will add >> my problem to the list. Dec. 30 I contacted ONC about gaining 9.5 pounds >> water weight in 20 days after restarting Gleevec. His nurse called that he >> was out of the country on vacation with his family. She checked with the >> DR. covering for him and he asked me to stop Gleevec as he thought I was >> gaining weight too fast also. My ONC did return to the office on Monday >> but finally had a conference with his Associate and he agreed with that >> decision. They both thought that I should be on a different treatment. My >> ONC was to draft an e-mail to the VA ONC (the one controlling my >> prescriptions) about my reaction to Gleevec and to recommend the >> treatment he thinks I should be on. So I am still in a wait and see >> stage. My ONC tells me I am too informed about my condition and that >> challenges most blood cancer specialists that rarely see CML. >> So let the fun and games continue. I am still feeling great, but the >> "Gleevec Brain" was also starting to show itself, but nine days off has >> cleared it. I'm as sharp as a busted tack, but that is "normal" for me. >> >> As always, "life" and may your tomorrow be beautiful and better than >> today. >> >> Richard H. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to cml...@googlegroups.com >> To unsubscribe from this group, send email to CMLHope-u...@ >> googlegroups.com >> For more options, visit this group at http://groups.google.com/ >> group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+u...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> >> -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
