Hi again Greenie, Like you said, don't look back but only forward.
By the way, I am an animal lover whether it be dogs, cats, birds or fish. I am glad to hear that you threw back those fish where they belong. 18's, Marty On Thu, Jan 15, 2015 at 2:17 PM, Myvety2k via CMLHope < cmlhope@googlegroups.com> wrote: > Marty, My aunt left me some stock and money and one of the stocks was > Novartis and my stock guy told me to sell it. That was before Gleevec was > in any kind of study. Because of him I also lost $43,000.00 and I pulled > my money out and fired him. If I, would have, could of. Of course I wish I > would have kept some of my early Corvette's that I had I would be worth a > more money then Novartis. But can't look back, just look forward. > > Thanks for your reply, also I live in South Fort Myers not far from the > beach. In fact I went fishing yesterday by the beach and caught 8 fish. > But I do not keep any, back into the water they go where they belong. > > greenie > > > > In a message dated 1/15/2015 1:09:00 P.M. Eastern Standard Time, > wa2...@gmail.com writes: > > Hi Greenie, > > First, where in Florida do you live? I am on the east coast, Boynton > Beach. If we are not to far maybe we can do lunch one of these days. If my > memory serves me right I think that you may be in Ft Meyers??? If so then I > guess that lunch is out of the question... > > About STI571. Do you know how it came about? As everyone already knows Dr. > Brian Druker who was the one that had first discovered it. He tried finding > a drug company that would produce it and finally found Novartis which was > at the time an agricultural drug company. > > One of Dr. Drukers patients was Zavie Miller who was trying out STI571 and > it was working. Novartis didn't want to produce it in quantity because of > the start up costs. Both Zavie and I got in touch with one of the > principals of Novartis and told him that we may be able to bring a lot of > investors into the company. > > At the time there was another CML site and we got on and asked if people > would like to invest in the Novartis stock. At that time their stock price > was $1,200 a share but there were also what is called American registry > shares of Novartis that was selling for only $20.00 a share. > > Everyone started buying those shares and Novartis then started production > but only after it was approved by the FDA which normally takes about 10 > years. With pressure being put on the FDA STI571 was approved in about one > and a half years, and became Gleevec. > > I bought many shares of Gleevec at $20.00 a share and have nor will I ever > sell them because of my support for Novartis. As of my December stock > portfolio Novartis is listed at 92.6600. Novartis stock has continuously > gone up and up over the years. > > I am however disappointed in the price they are getting, most notably > there are people with CML that can not afford it. Now Novartis does have > some options for those that are having a difficult time but it still would > be nice if Novartis would look back at what they were and what they are > now, and maybe consider dropping their price for Gleevec. Wishful thinking? > Maybe but maybe not, hopefully... > > But Greenie, as you mentioned it is all about greed and money. > > 18's, > > Marty > > On Thu, Jan 15, 2015 at 9:32 AM, Myvety2k via CMLHope < > cmlhope@googlegroups.com> wrote: > >> Thank you Marty, Everything you wrote is so true about Gleevec and >> CML. It's unfortunate that greed and money has to be in the equations in >> the final outcome. After Interferon that almost killed me all that was >> left was Hydrea. So when Doctor Tallman called me and wanted be in his >> study for STI571 I had no idea what was going on. Within 3 months I was >> 85% clean and after 6 months I was clean. Yes their have been over the >> years some up's and down's put that's part of life. Like my late Aunt used >> to always say when she was in her 80's I just take one day at a time. >> >> I wound like to see a cure in my life time because the old hour glass is >> starting to run low on sand.. And the way these people drive here in >> Florida the end could come anytime I leave the friendly confines and that's >> not any guarantee because most of the people speed and run the stop signs >> in this 55 and older community. >> >> Keep in touch, >> >> Greenie >> >> In a message dated 1/15/2015 8:11:39 A.M. Eastern Standard Time, >> wa2...@gmail.com writes: >> >> >> Hi Greenie, >> >> So you have been on Gleevec for 15 years. That is something good to know >> because what would you have done without Gleevec? This drug is responsible >> for saving countless lives. Thank GOD it is here or you wouldn't be here >> right now. >> >> If it weren't for dialysis neither would I be here right now. This is the >> advancement of what medicine has on our lives today. I always say that >> there will be a cure for CML and you can mark my words it WILL come soon. >> Just like all of the things that were not around years ago now they are >> coming. >> >> GOD bless you Greenie! >> >> 18's, >> >> Marty >> >> On Thu, Jan 15, 2015 at 5:47 AM, Shannon L <shannonl.cam...@gmail.com> >> wrote: >> >>> Hi Greenie 15 yrs on glivec, i will be 14yrs this yr (started roughly 3 >>> yrs after dx) >>> Shannon >>> >>> On Saturday, January 10, 2015 at 12:11:08 AM UTC+11, greenie wrote: >>>> >>>> Jeanie, as of Jan. 10th I will have been on Gleevec for 15 years. >>>> Starting to retain fluid around my ankles a little but that could be and >>>> age thing. 75 years old. >>>> >>>> greenie >>>> >>>> In a message dated 1/9/2015 7:53:41 A.M. Eastern Standard Time, >>>> cml...@googlegroups.com writes: >>>> >>>> Hi Richard and thanks for the update. My onc doesn't like for me to be >>>> informed either; he just ignores what I say and goes on to tell me what he >>>> thinks. >>>> My uric acid was high along with my WBC and Platelets. He seemed to be >>>> more concerned with the high uric acid--even called me on my cell >>>> personally twice; never had that happen before. >>>> He took me off Sprycel adn put me on Hydrea and allopurinol; it's funny >>>> the same thing they did 11 years ago when I was first dx. >>>> He took another blood sample to see if I have a mutation against the >>>> Sprycel. It seems strange that I had a mutation with Gleevec after 5 >>>> years. Is five years a cut off point? Has anyone else have this happen? >>>> Anyone else been on Hydrea after tki? >>>> Going next week to Moffitt to see if I have the mutation. Will let >>>> everyone know. >>>> The leukemia has reared it's ugly head once again!! >>>> Pray for me and everyone in need. >>>> Blessings >>>> Jeanie >>>> (18) >>>> >>>> >>>> In a message dated 1/8/2015 11:59:08 P.M. Eastern Standard Time, >>>> rbhuf...@gmail.com writes: >>>> >>>> WOW! Just read todays posts. I am praying for the group. I will >>>> add my problem to the list. Dec. 30 I contacted ONC about gaining 9.5 >>>> pounds water weight in 20 days after restarting Gleevec. His nurse called >>>> that he was out of the country on vacation with his family. She checked >>>> with the DR. covering for him and he asked me to stop Gleevec as he thought >>>> I was gaining weight too fast also. My ONC did return to the office on >>>> Monday but finally had a conference with his Associate and he agreed with >>>> that decision. They both thought that I should be on a different >>>> treatment. My ONC was to draft an e-mail to the VA ONC (the one >>>> controlling my prescriptions) about my reaction to Gleevec and to recommend >>>> the treatment he thinks I should be on. So I am still in a wait and see >>>> stage. My ONC tells me I am too informed about my condition and that >>>> challenges most blood cancer specialists that rarely see CML. >>>> So let the fun and games continue. I am still feeling great, but the >>>> "Gleevec Brain" was also starting to show itself, but nine days off has >>>> cleared it. I'm as sharp as a busted tack, but that is "normal" for me. >>>> >>>> As always, "life" and may your tomorrow be beautiful and better than >>>> today. >>>> >>>> Richard H. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To post to this group, send email to cml...@googlegroups.com >>>> To unsubscribe from this group, send email to CMLHope-u...@ >>>> googlegroups.com >>>> For more options, visit this group at http://groups.google.com/ >>>> group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google >>>> Groups "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send >>>> an email to cmlhope+u...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A 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