Finished Bma --waiting on doctor-- great he had to attend computer seminar.
Every thing went very well-- was asleep about 20 minutes. Went down and had breakfast--coffee finally!!!! Blessings Jeanieđ Sent from my iPhone > On Jan 16, 2015, at 5:20 AM, "'Icandoallttc' via CMLHope" > <cmlhope@googlegroups.com> wrote: > > Hi Beth. > Thanks for the uplift. We took aspirin for years before they told us to eat > with them. My dad and brother has ulcers. > Hard to heal. > My brother ended up having one-half his tummy out. > I feel I might have them. > Blessings > Jeanieâ¤ď¸ > > > Sent from my iPhone > >> On Jan 15, 2015, at 5:29 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> >> wrote: >> >> >> good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for >> results of endoscopies, I had a small stomach ulcer..the result of taking >> NSAIDS on an empty stomach... to battle a broken hand. it was years ago but >> Iearned my lesson. >> I never take any pain med without food. >> >> thinking of you. big hug,. Beth >> -----Original Message----- >> From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> >> To: cmlhope <cmlhope@googlegroups.com> >> Sent: Thu, Jan 15, 2015 12:34 pm >> Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. >> >> Hi all and thanks so much for the updates in endoscopy. >> Did anyone have anything discovered during the procedure? >> I have had an ongoing pain in my right side. I am hoping they can solve the >> mystery. >> Getting the Bma early in the morning. No food or drink after midnight. >> Sure will miss my morning cup if coffee. >> They also want to do a ct scan but put that off for a couple of weeks. >> I had one done last year. >> Blessings >> Jeanie >> >> >> Sent from my iPhone >> >> On Jan 15, 2015, at 12:43 AM, Richard H <rbhuffm...@gmail.com> wrote: >> >>> You are correct about both. One time, I had both back to back. The Dr. >>> didn't care for my remark about using clean equipment so now they schedule >>> them at different times. >>> >>>> On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote: >>>> Yes Jeannie, I have had an endoscopy....NO problem...at least for me. >>>> Twilight meds, remember nothing....not even a sore throat >>>> afterwards....I've had two of them. several years apart. Hope yours goes >>>> as well as mine. Easier on the body than a colonoscopy. Good luck with the >>>> bone marrow biopsy Friday. glad they will take a good look at what is >>>> going on and can reset from there...So sorry you are so nauseated.....Take >>>> good care...and jeannie, if you feel at all like talking, happy to listen. >>>> Feel free to email me at personal email and I can give you phone number. >>>> >>>> Beth >>>> >>>> >>>> -----Original Message----- >>>> From: 'Icandoallttc' via CMLHope <cml...@googlegroups.com> >>>> To: cmlhope <cml...@googlegroups.com> >>>> Sent: Wed, Jan 14, 2015 4:23 pm >>>> Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. >>>> >>>> Anyone have an endoscopy ? Jeanie >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 14, 2015, at 2:14 PM, "'Icandoallttc' via CMLHope" >>>> <cml...@googlegroups.com> wrote: >>>> >>>> Maybe they can find out why my side is hurting. >>>> Blessing everyone >>>> Jeanie >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 14, 2015, at 10:57 AM, "'Icandoallttc' via CMLHope" >>>> <cml...@googlegroups.com> wrote: >>>> >>>> They put you to sleep for Bma. >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope" >>>> <cml...@googlegroups.com> wrote: >>>> >>>> Hi it's not me who lost their dad-- I lost mine many years ago. >>>> I am still so nauseas. >>>> Hanging in there. >>>> Doing Bma fri. >>>> Blessings >>>> Jeanie >>>> >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 13, 2015, at 4:06 AM, sherri swanson <swanson....@gmail.com> wrote: >>>> >>>> Jeanie, >>>> >>>> I'm so sorry for your loss. You will always have them in your heart. >>>> I lost my parent a long time ago but I miss them as if it were yesterday. >>>> When I read your message, I looked at their photo and asked them to take >>>> good care of your dad. >>>> >>>> L'chaim, >>>> >>>> Sherri >>>> >>>> >>>> On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope >>>> <cml...@googlegroups.com> wrote: >>>> Thank you Greenie >>>> I need that. >>>> Blessings >>>> Jeanie >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope >>>> <cml...@googlegroups.com> wrote: >>>> >>>> Hi Jeanie, hang in their, I'm thinking good thoughts and passing them on >>>> to you. >>>> >>>> greenie >>>> >>>> In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, >>>> cml...@googlegroups.com writes: >>>> Thanks Susan. >>>> I'm hanging in there!!! >>>> Blessings. >>>> Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png> >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope" >>>> <cml...@googlegroups.com> wrote: >>>> >>>> Awwwww Marcie! >>>> >>>> I am so sorry for your loss, dear one. I know you've been being a good >>>> caregiver for several years to your dad. You will be rewarded some day >>>> for that. My heart hurts for you, so will surely be lifting you in >>>> prayer. No matter what the age, the loss is huge when we are the ones >>>> left behind. It was so kind of your rabbi to mention your CML battle. I >>>> pray you stop having those horrible cramps, too. Traveling mercies for you >>>> all. >>>> >>>> And Jeanie, also know what it's like to have a bad day from hydrea. Many >>>> (including me) felt like they have the flu with the nausea, and I pray >>>> this will not last long at all. A new day is coming, and I sure do hope >>>> your doc puts you on something that works! (maybe bosulif?) Here's >>>> wishing you the best, dear one. >>>> >>>> Love and 18's, >>>> >>>> Susan >>>> >>>> -----Original Message----- >>>> From: 'Marcie Goodman' via CMLHope <cml...@googlegroups.com> >>>> To: cmlhope <cml...@googlegroups.com> >>>> Sent: Sun, Jan 11, 2015 10:59 pm >>>> Subject: Re: [CMLHope] Jeanie's relapse >>>> >>>> Hi Jeanie, >>>> >>>> So sorry you are having a tough time. I'm praying for you to have good >>>> test results and a much better week. >>>> >>>> My 94 year old father passed away on Friday, funeral was today. During >>>> evening prayers our rabbi asked that everyone pray for not only my father >>>> and our family but for our group struggling with the impact of CML. My dad >>>> hated the fact that I had this illness and knew that I had such a >>>> wonderful online support family. >>>> >>>> So lots of prayers for you and all of us headed out from Baltimore all >>>> week! >>>> >>>> Much love, >>>> >>>> Marcie >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope >>>> <cml...@googlegroups.com> wrote: >>>> >>>> Hi Marty. >>>> I feel so bad today!!! >>>> Thinks it's from the hydrea. >>>> I will print that out and keep it close. >>>> I love psalms also. >>>> Keep praying. >>>> Jeanie 18's >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>> >>>> Jeanie, I know that your feeling low right now but things will work out >>>> for you. You must have this in your heart and I know that you do. FOCUS. >>>> >>>> This was something that was given to me by one of my close friends >>>> when I had to live in that plastic bubble for all of those many months. I >>>> would read it all the time and I am now passing it on to you, and it is >>>> being sent to you from my heart because I remember my doubts but then >>>> again I also remember my strengths. >>>> >>>> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF >>>> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN >>>> YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET >>>> (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. >>>> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF >>>> MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING >>>> INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU >>>> THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. >>>> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE >>>> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE >>>> SUCCESSFUL OUTCOME... >>>> FOCUS... >>>> >>>> Yes Jeanie you just keep on focusing because you are much more powerful >>>> then you think. >>>> >>>> Now you know why I keep on sending 18's. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope >>>> <cml...@googlegroups.com> wrote: >>>> Hi Marty >>>> Thanks for you uplifting message. >>>> I am back to square one with my counts-- >>>> 700 thousand platelets >>>> 163.28 WBC >>>> ANC high >>>> Creatine high >>>> Potassium high >>>> Took me off sprycel. >>>> Allipurinoll 2 pills >>>> Hydrea 3 twice a day >>>> Yes I will fight!!! >>>> Just so tired. >>>> I think dr will put me on new drug mon. >>>> Got to see if there is a mutant. >>>> Prays and love to all. >>>> 18's. <emoji_u1f41f.png> >>>> Jeanie >>>> >>>> >>>> Sent from my iPhone >>>> >>>> On Jan 10, 2015, at 4:31 AM, sherri swanson <swanson....@gmail.com> wrote: >>>> >>>> Hi Richard, >>>> >>>> If it's one thing I got, It's Attitude! At least that's what my mom would >>>> tell me when I was a teenager. LOL >>>> >>>> Sorry to hear about the car. This cold weather can be brutal on a car's >>>> battery. Glad you were able to get a new and now youâre good to go. >>>> >>>> >>>> Uor wind chills have been bad too. And we have some open fields so there >>>> is nothing to block that wind. The other morning it was so cold that the >>>> water froze in our community and none of had any water for awhile. It's a >>>> good thing I'm an early raiser and I took my shower while we had water. >>>> >>>> Currently, it is -7 with a wind chill of -25 where I live and >>>> it isn't going to be above zero until 9 am. That's cold. >>>> >>>> Stay warm Richard and think spring! >>>> >>>> L'chaim, >>>> >>>> Sherri >>>> >>>> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>> Hi Jeanie, >>>> >>>> So many things effect your kidneys. The simple ageing factor is just one >>>> of them. Some medicines will also contribute to kidney function probably >>>> some of these TKI's. Mine finally gave out from all of the chemotherapy >>>> and radiation I had more then 25 years ago. >>>> >>>> I can make a suggestion: If you are not diabetic try drinking cranberry >>>> juice. Not the ones that are mixed up with juices like grape juice. Ocean >>>> Spray has pure cranberry juice so you might want to try it. Even if you >>>> are diabetic they also make a light cranberry juice. >>>> >>>> You know what? You have been through so much that this is only a bump in >>>> the road for you, and so it is for me. >>>> >>>> We have two choices. One, continue to fight and the other is not an option >>>> for me or you. >>>> That is why I always end any of my posts with 18's. You just hang in there >>>> sweetie. >>>> >>>> Marty >>>> >>>> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope >>>> <cml...@googlegroups.com> wrote: >>>> Hi Sherri, >>>> I think the tki's contribute to kidney disease. I think that I am in the >>>> beginning of the disease and I have been on tki's for 11 years now. >>>> Hang in in there; blessings >>>> Jeanie<3 >>>> >>>> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, >>>> swanson....@gmail.com writes: >>>> Hi Marty, >>>> >>>> Thanks for the prayers and right back at ya. >>>> >>>> I've been struggling with my kidney disease for many years and didn't know >>>> it, and then one day voilĂ the doctors found that there was a problem and >>>> that I'd been fighting it for years hence the diagnoses of Chronic Kidney >>>> Disease. And the funny thing is, I'm the only one in my entire family that >>>> has any of these diseases. My family had its share of health issues from >>>> heart disease to diabetes. But never anything like what I have. All my >>>> doctors just shake their heads. I tell them that I like to keep things >>>> interesting. And what they like is that I have a sense of humor. And at >>>> this point, it is much better to joke and laugh than to worry and cry. >>>> While I still take what I have seriously, I'm just happy to be here. >>>> >>>> I would be a lot happier if the weather here would warm up. For crying out >>>> loud it was -5 here yesterday and I was out in it. Now that is one hearty >>>> person or a very foolish one. The jury is still out on that one. Today it >>>> is going to be a balmy 8. Woohoo! A heat wave. And, >>>> again I'll be out in it as I have to go and get a Rx that I need. >>>> >>>> L'chaim, >>>> >>>> Sherri >>>> >>>> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <wa2...@gmail.com> wrote: >>>> Dear Sherri, >>>> >>>> Yes, you are a fighter and it takes one to know one. I >>>> pray that everything turns out well for you. >>>> >>>> And you are correct that all of the radiation and chemotherapy did destroy >>>> both of my kidneys. It has been over 25 years that I had my BMT. It took >>>> many years for my kidneys to fail and that is probably why most transplant >>>> centers will usually not use total body radiation any more unless it is >>>> really needed. >>>> >>>> 18's, >>>> >>>> Marty >>>> >>>> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson <swanson....@gmail.com> >>>> wrote: >>>> Hi Marty, >>>> >>>> The doctors are trying to treat the different illnesses that are included >>>> in my condition. There are so many and they do so many different things, >>>> that I am happy just to to be here. I agree that as we get older there are >>>> some unusual things that that find us. But in the long run, we all got >>>> something. I'm a survivor. It's what I do. So when I found out on Monday >>>> that I have a large mass on my thyroid, I told my doctor I guess we're >>>> going to be busy this winter. At least I'm not an alarmist. <35C.png> >>>> >>>> I too have trouble with my kidneys. Not to the extend that you do, I'm >>>> working to keep myself at the current level of stage III Kidney Disease. >>>> Some days, I'm good others, not so much. Lately I've not been doing so >>>> good and I've had to go and buy new shoes as my feet have been so swollen >>>> that my current size no longer fit. I wear compression socks all the time >>>> as well. >>>> >>>> My Nephrologist ran some blood work and found that my sodium was very low >>>> and and so was a bunch of other levels. Now, he is an alarmist. If I even >>>> look like I'm getting a cold he freaks out. I love him dearly, and I do >>>> what he says, but I can't sneeze without him making me go see my GP or the >>>> Oncologist or whatever doctor he thinks I need to see. >>>> >>>> I've heard that when you have a BMT and have to have radiation and chemo, >>>> sometimes kidney failure is possible. How long have you been on the list >>>> for transplant? >>>> >>>> Well, I'm glad that you are here and that you are strong. You're an >>>> inspiration to all of us. Thanks for all you do Marty. >>>> >>>> L'chaim >>>> >>>> Sherri >>>> >>>> On Thu, Jan 8, 2015 at 10:0 >>>> ... >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to CMLHope@googlegroups.com >>> To unsubscribe from this group, send email to >>> cmlhope-unsubscr...@googlegroups.com >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to cmlhope+unsubscr...@googlegroups.com. >>> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to CMLHope@googlegroups.com >> To unsubscribe from this group, send email to >> cmlhope-unsubscr...@googlegroups.com >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to cmlhope+unsubscr...@googlegroups.com. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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