Hi Jeanie, Wow, your "lucky" for a better word to use. I had 17 of them and was never put out OUCH x 17[?]
18's, Marty On Fri, Jan 16, 2015 at 10:54 AM, 'Icandoallttc' via CMLHope < cmlhope@googlegroups.com> wrote: > Finished Bma --waiting on doctor-- great he had to attend computer > seminar. > > Every thing went very well-- was asleep about 20 minutes. > > Went down and had breakfast--coffee finally!!!! > Blessings > Jeanie[image: đ] > > Sent from my iPhone > > On Jan 16, 2015, at 5:20 AM, "'Icandoallttc' via CMLHope" < > cmlhope@googlegroups.com> wrote: > > Hi Beth. > Thanks for the uplift. We took aspirin for years before they told us to > eat with them. My dad and brother has ulcers. > Hard to heal. > My brother ended up having one-half his tummy out. > I feel I might have them. > Blessings > Jeanieâ¤ď¸ > > > Sent from my iPhone > > On Jan 15, 2015, at 5:29 PM, bkbarney via CMLHope < > cmlhope@googlegroups.com> wrote: > > > good luck on your BMB tomorrow Jeannie. I will be thinking of you. AS for > results of endoscopies, I had a small stomach ulcer..the result of taking > NSAIDS on an empty stomach... to battle a broken hand. it was years ago > but Iearned my lesson. > I never take any pain med without food. > > thinking of you. big hug,. Beth > -----Original Message----- > From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Thu, Jan 15, 2015 12:34 pm > Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. > > Hi all and thanks so much for the updates in endoscopy. > Did anyone have anything discovered during the procedure? > I have had an ongoing pain in my right side. I am hoping they can solve > the mystery. > Getting the Bma early in the morning. No food or drink after midnight. > Sure will miss my morning cup if coffee. > They also want to do a ct scan but put that off for a couple of weeks. > I had one done last year. > Blessings > Jeanie > > > Sent from my iPhone > > On Jan 15, 2015, at 12:43 AM, Richard H <rbhuffm...@gmail.com> wrote: > > You are correct about both. One time, I had both back to back. The > Dr. didn't care for my remark about using clean equipment so now they > schedule them at different times. > > On Wednesday, January 14, 2015 at 5:19:39 PM UTC-6, Beth wrote: >> >> Yes Jeannie, I have had an endoscopy....NO problem...at least for me. >> Twilight meds, remember nothing....not even a sore throat >> afterwards....I've had two of them. several years apart. Hope yours goes as >> well as mine. Easier on the body than a colonoscopy. Good luck with the >> bone marrow biopsy Friday. glad they will take a good look at what is going >> on and can reset from there...So sorry you are so nauseated.....Take good >> care...and jeannie, if you feel at all like talking, happy to listen. Feel >> free to email me at personal email and I can give you phone number. >> >> Beth >> >> >> -----Original Message----- >> From: 'Icandoallttc' via CMLHope <cml...@googlegroups.com> >> To: cmlhope <cml...@googlegroups.com> >> Sent: Wed, Jan 14, 2015 4:23 pm >> Subject: Re: [CMLHope] Hi all finally going in for an endoscopy next week. >> >> Anyone have an endoscopy ? Jeanie >> >> Sent from my iPhone >> >> On Jan 14, 2015, at 2:14 PM, "'Icandoallttc' via CMLHope" < >> cml...@googlegroups.com> wrote: >> >> Maybe they can find out why my side is hurting. >> Blessing everyone >> Jeanie >> >> Sent from my iPhone >> >> On Jan 14, 2015, at 10:57 AM, "'Icandoallttc' via CMLHope" < >> cml...@googlegroups.com> wrote: >> >> They put you to sleep for Bma. >> >> Sent from my iPhone >> >> On Jan 14, 2015, at 10:56 AM, "'Icandoallttc' via CMLHope" < >> cml...@googlegroups.com> wrote: >> >> Hi it's not me who lost their dad-- I lost mine many years ago. >> I am still so nauseas. >> Hanging in there. >> Doing Bma fri. >> Blessings >> Jeanie >> >> >> Sent from my iPhone >> >> On Jan 13, 2015, at 4:06 AM, sherri swanson <swanson....@gmail.com> >> wrote: >> >> Jeanie, >> >> I'm so sorry for your loss. You will always have them in your heart. >> I lost my parent a long time ago but I miss them as if it were >> yesterday. When I read your message, I looked at their photo and asked them >> to take good care of your dad. >> >> L'chaim, >> >> Sherri >> >> >> On Mon, Jan 12, 2015 at 1:14 PM, 'Icandoallttc' via CMLHope < >> cml...@googlegroups.com> wrote: >> >> Thank you Greenie >> I need that. >> Blessings >> Jeanie >> >> Sent from my iPhone >> >> On Jan 12, 2015, at 1:30 PM, Myvety2k via CMLHope < >> cml...@googlegroups.com> wrote: >> >> Hi Jeanie, hang in their, I'm thinking good thoughts and passing them >> on to you. >> >> greenie >> >> In a message dated 1/12/2015 1:08:27 P.M. Eastern Standard Time, >> cml...@googlegroups.com writes: >> >> Thanks Susan. >> I'm hanging in there!!! >> Blessings. >> Jeanie<emoji_u1f41f.png><emoji_u1f41f.png><emoji_u1f41f.png> >> >> Sent from my iPhone >> >> On Jan 11, 2015, at 11:17 PM, "'Susan Zimmerman' via CMLHope" < >> cml...@googlegroups.com> wrote: >> >> Awwwww Marcie! >> >> I am so sorry for your loss, dear one. I know you've been being a good >> caregiver for several years to your dad. You will be rewarded some day for >> that. My heart hurts for you, so will surely be lifting you in prayer. No >> matter what the age, the loss is huge when we are the ones left behind. It >> was so kind of your rabbi to mention your CML battle. I pray you stop >> having those horrible cramps, too. Traveling mercies for you all. >> >> And Jeanie, also know what it's like to have a bad day from hydrea. >> Many (including me) felt like they have the flu with the nausea, and I >> pray this will not last long at all. A new day is coming, and I sure do >> hope your doc puts you on something that works! (maybe bosulif?) Here's >> wishing you the best, dear one. >> >> Love and 18's, >> >> Susan >> >> -----Original Message----- >> From: 'Marcie Goodman' via CMLHope <cml...@googlegroups.com> >> To: cmlhope <cml...@googlegroups.com> >> Sent: Sun, Jan 11, 2015 10:59 pm >> Subject: Re: [CMLHope] Jeanie's relapse >> >> Hi Jeanie, >> >> So sorry you are having a tough time. I'm praying for you to have good >> test results and a much better week. >> >> My 94 year old father passed away on Friday, funeral was today. During >> evening prayers our rabbi asked that everyone pray for not only my father >> and our family but for our group struggling with the impact of CML. My dad >> hated the fact that I had this illness and knew that I had such a wonderful >> online support family. >> >> So lots of prayers for you and all of us headed out from Baltimore all >> week! >> >> Much love, >> >> Marcie >> >> Sent from my iPhone >> >> On Jan 11, 2015, at 9:33 AM, 'Icandoallttc' via CMLHope < >> cml...@googlegroups.com> wrote: >> >> Hi Marty. >> I feel so bad today!!! >> Thinks it's from the hydrea. >> I will print that out and keep it close. >> I love psalms also. >> Keep praying. >> Jeanie 18's >> >> Sent from my iPhone >> >> On Jan 11, 2015, at 8:05 AM, Marty Gartenberg <wa2...@gmail.com> wrote: >> >> Jeanie, I know that your feeling low right now but things will work >> out for you. You must have this in your heart and I know that you do. >> FOCUS. >> >> This was something that was given to me by one of my close friends when >> I had to live in that plastic bubble for all of those many months. I would >> read it all the time and I am now passing it on to you, and it is being >> sent to you from my heart because I remember my doubts but then again I >> also remember my strengths. >> >> EXPECT THE BEST, MIND OVER MATTER. SUCCESS IS A FUNCTION OF SELF >> CONFIDENCE. TO HAVE SUCCESS AT ANYTHING YOU MUST FIRST LEARN TO BELIEVE IN >> YOURSELF. IF YOU EXPECT THE WORSE THEN THAT IS EXACTLY WHAT YOU WILL GET >> (MIND OVER MATTER) IF YOU EXPECT THE BEST THEN THAT IS WHAT YOU WILL GET. >> WHAT WE HAVE TO LEARN TO DO IS TO CHANGE OUR MENTAL HABITS, OUR STATES OF >> MIND. LEARN TO EXPECT AND NOT TO DOUBT. BY DOING THIS YOU BRING EVERYTHING >> INTO THE REALM OF POSSIBILITY. WHEN YOU LEARN TO BELIEVE THEN WHAT YOU >> THOUGHT TO BE IMPOSSIBLE THEN MOVES INTO THE AREA OF POSSIBILITY. >> EVERY GREAT THING EVENTUALLY BECOMES POSSIBLE FOR YOU. MY BELIEF AT THE >> BEGINNING OF A DOUBTFUL UNDERTAKING IS THE ONE THING THAT INSURES THE >> SUCCESSFUL OUTCOME... >> FOCUS... >> >> Yes Jeanie you just keep on focusing because you are much more powerful >> then you think. >> >> Now you know why I keep on sending 18's. >> >> 18's, >> >> Marty >> >> On Sat, Jan 10, 2015 at 10:38 AM, 'Icandoallttc' via CMLHope < >> cml...@googlegroups.com> wrote: >> >> Hi Marty >> Thanks for you uplifting message. >> I am back to square one with my counts-- >> 700 thousand platelets >> 163.28 WBC >> ANC high >> Creatine high >> Potassium high >> Took me off sprycel. >> Allipurinoll 2 pills >> Hydrea 3 twice a day >> Yes I will fight!!! >> Just so tired. >> I think dr will put me on new drug mon. >> Got to see if there is a mutant. >> Prays and love to all. >> 18's. <emoji_u1f41f.png> >> Jeanie >> >> >> Sent from my iPhone >> >> On Jan 10, 2015, at 4:31 AM, sherri swanson <swanson....@gmail.com> >> wrote: >> >> Hi Richard, >> >> If it's one thing I got, It's Attitude! At least that's what my mom >> would tell me when I was a teenager. LOL >> >> Sorry to hear about the car. This cold weather can be brutal on a >> car's battery. Glad you were able to get a new and now youâre good to go. >> >> Uor wind chills have been bad too. And we have some open fields so >> there is nothing to block that wind. The other morning it was so cold that >> the water froze in our community and none of had any water for awhile. It's >> a good thing I'm an early raiser and I took my shower while we had water. >> >> Currently, it is -7 with a wind chill of -25 where I live and it isn't >> going to be above zero until 9 am. That's cold. >> >> Stay warm Richard and think spring! >> >> L'chaim, >> >> Sherri >> >> On Fri, Jan 9, 2015 at 11:29 PM, Marty Gartenberg <wa2...@gmail.com> >> wrote: >> >> Hi Jeanie, >> >> So many things effect your kidneys. The simple ageing factor is just >> one of them. Some medicines will also contribute to kidney function >> probably some of these TKI's. Mine finally gave out from all of the >> chemotherapy and radiation I had more then 25 years ago. >> >> I can make a suggestion: If you are not diabetic try drinking cranberry >> juice. Not the ones that are mixed up with juices like grape juice. Ocean >> Spray has pure cranberry juice so you might want to try it. Even if you are >> diabetic they also make a light cranberry juice. >> >> You know what? You have been through so much that this is only a bump >> in the road for you, and so it is for me. >> >> We have two choices. One, continue to fight and the other is not an >> option for me or you. >> That is why I always end any of my posts with 18's. You just hang in >> there sweetie. >> >> Marty >> >> On Fri, Jan 9, 2015 at 7:55 AM, ICANDOALLTTC via CMLHope < >> cml...@googlegroups.com> wrote: >> >> Hi Sherri, >> I think the tki's contribute to kidney disease. I think that I am in the >> beginning of the disease and I have been on tki's for 11 years now. >> Hang in in there; blessings >> Jeanie<3 >> >> In a message dated 1/9/2015 3:21:09 A.M. Eastern Standard Time, >> swanson....@gmail.com writes: >> >> Hi Marty, >> >> Thanks for the prayers and right back at ya. >> >> I've been struggling with my kidney disease for many years and didn't >> know it, and then one day voilĂ the doctors found that there was a problem >> and that I'd been fighting it for years hence the diagnoses of Chronic >> Kidney Disease. And the funny thing is, I'm the only one in my entire >> family that has any of these diseases. My family had its share of health >> issues from heart disease to diabetes. But never anything like what I have. >> All my doctors just shake their heads. I tell them that I like to keep >> things interesting. And what they like is that I have a sense of humor. And >> at this point, it is much better to joke and laugh than to worry and cry. >> While I still take what I have seriously, I'm just happy to be here. >> >> I would be a lot happier if the weather here would warm up. For crying >> out loud it was -5 here yesterday and I was out in it. Now that is one >> hearty person or a very foolish one. The jury is still out on that one. >> Today it is going to be a balmy 8. Woohoo! A heat wave. And, again I'll be >> out in it as I have to go and get a Rx that I need. >> >> L'chaim, >> >> Sherri >> >> On Thu, Jan 8, 2015 at 10:40 PM, Marty Gartenberg <wa2...@gmail.com> >> wrote: >> >> Dear Sherri, >> >> Yes, you are a fighter and it takes one to know one. I pray that >> everything turns out well for you. >> >> And you are correct that all of the radiation and chemotherapy did >> destroy both of my kidneys. It has been over 25 years that I had my BMT. It >> took many years for my kidneys to fail and that is probably why most >> transplant centers will usually not use total body radiation any more >> unless it is really needed. >> >> 18's, >> >> Marty >> >> On Thu, Jan 8, 2015 at 1:31 PM, sherri swanson <swanson....@gmail.com> >> wrote: >> >> Hi Marty, >> >> The doctors are trying to treat the different illnesses that are >> included in my condition. There are so many and they do so many different >> things, that I am happy just to to be here. I agree that as we get older >> there are some unusual things that that find us. But in the long run, we >> all got something. I'm a survivor. It's what I do. So when I found out on >> Monday that I have a large mass on my thyroid, I told my doctor I guess >> we're going to be busy this winter. At least I'm not an alarmist. <35C.png> >> >> I too have trouble with my kidneys. Not to the extend that you do, I'm >> working to keep myself at the current level of stage III Kidney Disease. >> Some days, I'm good others, not so much. Lately I've not been doing so >> good and I've had to go and buy new shoes as my feet have been so swollen >> that my current size no longer fit. I wear compression socks all the time >> as well. >> >> My Nephrologist ran some blood work and found that my sodium was very low >> and and so was a bunch of other levels. Now, he is an alarmist. If I even >> look like I'm getting a cold he freaks out. I love him dearly, and I do >> what he says, but I can't sneeze without him making me go see my GP or the >> Oncologist or whatever doctor he thinks I need to see. >> >> I've heard that when you have a BMT and have to have radiation and >> chemo, sometimes kidney failure is possible. How long have you been on the >> list for transplant? >> >> Well, I'm glad that you are here and that you are strong. You're an >> inspiration to all of us. Thanks for all you do Marty. >> >> L'chaim >> >> Sherri >> >> On Thu, Jan 8, 2015 at 10:0 >> >> ... > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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