Thanks for the uplift Greenie. I've got to go back Monday to get it checked again. Yes I hanging in there and good luck to you too!
Prayers & Blessings Jeanie 18's 🐠🐠 > On Jan 30, 2015, at 1:22 PM, Myvety2k via CMLHope <cmlhope@googlegroups.com> > wrote: > > Hi Jeanie, I'm sure that after a period of time the count will get better. I > wish I had your creatine mine is always between 1.3 to 1.56. Hang in their > things Will Work Out for you. I'll be thinking of you. > > greenie > > In a message dated 1/30/2015 12:38:37 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > Hi all, > The following counts were all high on latest blood test: > > RDW 62.5 > Platelet counts 1535 > Basophils Auto 0.30 k/ul > Immature Gran Auto 0.34 k/ul > Potassium 5.6 > Bun 25 mg/dl > Creatine 1.1 > > Prayers & Blessings Jeanie 18's 🐠🐠 > >> On Jan 30, 2015, at 8:00 AM, Icandoallttc <icandoall...@aol.com> wrote: >> >> Kk Greenie. >> The doctor gave me Proclorperazine. It didn't help me that much but >> meclizine did. We all have to find what works for us. Good luck and hang >> in there. >> >> Prayers & Blessings Jeanie 18's 🐠🐠 >> >>> On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope >>> <cmlhope@googlegroups.com> wrote: >>> >>> Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I take >>> the hole pill in makes me sleepy. 1/2 works better but that puts me into >>> low gear. But it does take away the nausea. >>> >>> greenie >>> >>> In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, >>> cmlhope@googlegroups.com writes: >>> Hi Greenie >>> Sorry to hear you still have your nausea. >>> Have you tried Meclizine ? I find it works better than compozine. My >>> nausea is better since coming off hydrea. >>> I am on my 5th day of ponatinib. I had blood work done yesterday. >>> My WBC came down but the platelets keep going up. Still in the >>> millions (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) >>> tablets daily. >>> My skin is drying out and headaches have returned. This reminds me of >>> Gleevec but it has many side effects. >>> Just have to deal with them as usual. >>> I hope everyone is good this morning. >>> >>> >>> Prayers & Blessings Jeanie 18's 🐠🐠 >>> >>>> On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope >>>> <cmlhope@googlegroups.com> wrote: >>>> >>>> I all the good news was short termed, I woke up yesterday and the nausea >>>> came back so I'm thinking I may have picked up some bug. Grace she's O.K. >>>> time will tell. So far this morning I feel find but will see our the rest >>>> of the day goes. >>>> >>>> greenie >>>> >>>> In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, >>>> cmlhope@googlegroups.com writes: >>>> YEAH FOR GOOD NEWS!!!! :) Beth >>>> >>>> >>>> -----Original Message----- >>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>> To: cmlhope <cmlhope@googlegroups.com> >>>> Sent: Tue, Jan 27, 2015 4:59 pm >>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>>> >>>> Well, I have good news. We both woke up today, Grace was O. K. and later >>>> on into the day I'm feeling much better. Tomorrow well tell the truth. >>>> I'll let you all know and Thanks for thinking of us both. We all are one >>>> hell of a team, we should have our own Superbowl.. >>>> >>>> greenie >>>> >>>> In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, >>>> cmlhope@googlegroups.com writes: >>>> maybe you both have a bit of a virus or bug? Hope that's all it is and you >>>> both will feel better soon. It does seem odd when all of a sudden after so >>>> many years you get a symptom like nausea. >>>> Be well...thinking of you and everyone else today... >>>> >>>> Beth >>>> >>>> -----Original Message----- >>>> From: Myvety2k via CMLHope <cmlhope@googlegroups.com> >>>> To: cmlhope <cmlhope@googlegroups.com> >>>> Sent: Mon, Jan 26, 2015 5:09 pm >>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>>> >>>> Hi Beth, I'm starting to think it's not the Gleevec that's given me the >>>> nausea because my wife started to get the nausea also. Could be Florida >>>> weather, tree's, flowers, etc. >>>> >>>> greenie >>>> >>>> In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, >>>> cmlhope@googlegroups.com writes: >>>> Greenie, Remember, if you do need to swap a TKI....Lots of good options >>>> with low doses because you have done so well for so long on Gleevec...you >>>> are a warrior. My blood counts are O.K...but I appreciate the anxiety of >>>> all this for all of us..it's one of the harder parts to manage well. Good >>>> luck to you! Beth >>>> >>>> >>>> -----Original Message----- >>>> From: Joan <lilak...@gmail.com> >>>> To: cmlhope <cmlhope@googlegroups.com> >>>> Sent: Mon, Jan 26, 2015 5:01 pm >>>> Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? >>>> >>>> Greenie, >>>> I had to quit Gleevec because it was messing with my kidneys. Now I take >>>> Tasinga. >>>> Joan >>>> >>>>> On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >>>>> Hi to my friends in our group, well I've been on Gleevec for 15 years >>>>> and 14 days all of a sudden for the last 4 days I'm having nausea >>>>> problems. I'm taking some promethazine that helps some what but it's not >>>>> a fun thing. I have no idea what started it either. I had this problem >>>>> before when we lived in Springfield, MO. I got over heated and got hit >>>>> with nausea every day for a little more then 2 years then I awoke one >>>>> morning and it was like someone turned off the switch and it was gone. >>>>> This time of the year it's not hot here so I know that's not what caused >>>>> this problem. >>>>> >>>>> I'm going to take a Gleevec break for a week or two to clean out my >>>>> system and hope that I get back to normal. I did this before about 6 >>>>> years ago when I had a sinus infection and the doctor back in Indiana put >>>>> me on and anabolic that interfered with my Gleevec so we stopped Gleevec >>>>> for 26 days. After getting blood work some cancer cells did show back up >>>>> in my blood work but after stating Gleevec again the next test showed >>>>> that I was clean again. >>>>> >>>>> My doctor at that time was doctor Tallman and he gave me a call and said >>>>> "well if it worked before it will work again" and that was that. So I >>>>> have my fingers crossed to see what happens. I can't stand this nausea >>>>> problem, my heart goes out to the women that have babies and have to put >>>>> up with nausea. I just hope it's the Gleevec again and not something >>>>> else. My blood counts are O. K. so I'm not worried about that. This >>>>> does not help my anxiety problems >>>>> >>>>> Will keep you all up to date as how things go. >>>>> >>>>> greenie >>>> >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to CMLHope@googlegroups.com >>>> To unsubscribe from this group, send email to >>>> cmlhope-unsubscr...@googlegroups.com >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails >>>> from it, send an email to cmlhope+unsubscr...@googlegroups.com. >>>> For more options, visit https://groups.google.com/d/optout. >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> 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