Susan, I don't want to leave you out, so here it is from me to you. [?] 18's,
Marty On Fri, Jan 30, 2015 at 11:27 PM, 'Susan Zimmerman' via CMLHope < cmlhope@googlegroups.com> wrote: > Dear Jeanie, > > Will surely be praying for you. Don't panic, and don't even be > anxious! Worry accomplishes nothing except wasting time. I have not been > on lately cuz of my own battles. We have God on our side, like Marty > says! Loved that emoticon of him hugging you!!! Here's my only > way.....<<<<<<<xx>>>>>>>> That is lots of hugs. > > Blessings and 18, > Susan > > -----Original Message----- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Fri, Jan 30, 2015 1:22 pm > Subject: Re: [CMLHope] Update Jeanie's blood counts > > Hi Jeanie, I'm sure that after a period of time the count will get > better. I wish I had your creatine mine is always between 1.3 to 1.56. > Hang in their things Will Work Out for you. I'll be thinking of you. > > greenie > > In a message dated 1/30/2015 12:38:37 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > > Hi all, > The following counts were all high on latest blood test: > > RDW 62.5 > Platelet counts 1535 > Basophils Auto 0.30 k/ul > Immature Gran Auto 0.34 k/ul > Potassium 5.6 > Bun 25 mg/dl > Creatine 1.1 > > Prayers & Blessings Jeanie 18's > > On Jan 30, 2015, at 8:00 AM, Icandoallttc <icandoall...@aol.com> wrote: > > Kk Greenie. > The doctor gave me Proclorperazine. It didn't help me that much but > meclizine did. We all have to find what works for us. Good luck and hang > in there. > > Prayers & Blessings Jeanie 18's > > On Jan 30, 2015, at 7:48 AM, Myvety2k via CMLHope < > cmlhope@googlegroups.com> wrote: > > Jeanie, I take promethazine 25mg but I cut them in 1/4 because if I > take the hole pill in makes me sleepy. 1/2 works better but that puts me > into low gear. But it does take away the nausea. > > greenie > > In a message dated 1/30/2015 7:44:52 A.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > Hi Greenie > Sorry to hear you still have your nausea. > Have you tried Meclizine ? I find it works better than compozine. My > nausea is better since coming off hydrea. > I am on my 5th day of ponatinib. I had blood work done yesterday. > My WBC came down but the platelets keep going up. Still in the millions > (1529) The doctor is baffled but dropped my ponatinib to 2 (15 mg) tablets > daily. > My skin is drying out and headaches have returned. This reminds me of > Gleevec but it has many side effects. > Just have to deal with them as usual. > I hope everyone is good this morning. > > > Prayers & Blessings Jeanie 18's > > On Jan 30, 2015, at 7:07 AM, Myvety2k via CMLHope < > cmlhope@googlegroups.com> wrote: > > I all the good news was short termed, I woke up yesterday and the > nausea came back so I'm thinking I may have picked up some bug. Grace > she's O.K. time will tell. So far this morning I feel find but will see our > the rest of the day goes. > > greenie > > In a message dated 1/29/2015 9:51:44 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > YEAH FOR GOOD NEWS!!!! :) Beth > > > -----Original Message----- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Tue, Jan 27, 2015 4:59 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Well, I have good news. We both woke up today, Grace was O. K. and > later on into the day I'm feeling much better. Tomorrow well tell the > truth. I'll let you all know and Thanks for thinking of us both. We all > are one hell of a team, we should have our own Superbowl.. > > greenie > > In a message dated 1/27/2015 1:32:57 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > maybe you both have a bit of a virus or bug? Hope that's all it is and you > both will feel better soon. It does seem odd when all of a sudden after so > many years you get a symptom like nausea. > Be well...thinking of you and everyone else today... > > Beth > > -----Original Message----- > From: Myvety2k via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Mon, Jan 26, 2015 5:09 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Hi Beth, I'm starting to think it's not the Gleevec that's given me the > nausea because my wife started to get the nausea also. Could be Florida > weather, tree's, flowers, etc. > > greenie > > In a message dated 1/26/2015 6:05:17 P.M. Eastern Standard Time, > cmlhope@googlegroups.com writes: > > Greenie, Remember, if you do need to swap a TKI....Lots of good options > with low doses because you have done so well for so long on Gleevec...you > are a warrior. My blood counts are O.K...but I appreciate the anxiety of > all this for all of us..it's one of the harder parts to manage well. Good > luck to you! Beth > > > -----Original Message----- > From: Joan <lilak...@gmail.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Mon, Jan 26, 2015 5:01 pm > Subject: Re: [CMLHope] My Update anyone had relapse after 5 years on tkis? > > Greenie, > I had to quit Gleevec because it was messing with my kidneys. Now I take > Tasinga. > Joan > > On Saturday, January 24, 2015 at 9:56:22 AM UTC-6, greenie wrote: >> >> Hi to my friends in our group, well I've been on Gleevec for 15 years >> and 14 days all of a sudden for the last 4 days I'm having nausea >> problems. I'm taking some promethazine that helps some what but it's not a >> fun thing. I have no idea what started it either. I had this problem >> before when we lived in Springfield, MO. I got over heated and got hit with >> nausea every day for a little more then 2 years then I awoke one morning >> and it was like someone turned off the switch and it was gone. This time >> of the year it's not hot here so I know that's not what caused this problem. >> >> I'm going to take a Gleevec break for a week or two to clean out my >> system and hope that I get back to normal. I did this before about 6 years >> ago when I had a sinus infection and the doctor back in Indiana put me on >> and anabolic that interfered with my Gleevec so we stopped Gleevec for 26 >> days. After getting blood work some cancer cells did show back up in my >> blood work but after stating Gleevec again the next test showed that I was >> clean again. >> >> My doctor at that time was doctor Tallman and he gave me a call and said >> "well if it worked before it will work again" and that was that. So I have >> my fingers crossed to see what happens. I can't stand this nausea problem, >> my heart goes out to the women that have babies and have to put up with >> nausea. I just hope it's the Gleevec again and not something else. My >> blood counts are O. K. so I'm not worried about that. This does not help >> my anxiety problems >> >> Will keep you all up to date as how things go. >> >> greenie >> >> > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at > http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because 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