thinking of you......praying for you...and everyone..
love, Beth -----Original Message----- From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Thu, Feb 19, 2015 9:38 am Subject: Re: [CMLHope] Good news Jeanie Glad you are back--I hope the test come back good. Benedral makes me nervous for some reason. They said not to put anything on it right now. Been having some eye side effect--seeing flashes and get a headache right after. They say it's an ocular migraine. Thank heavens for friends. Keep fighting. Prayers & Blessings Jeanie . 18,s On Feb 18, 2015, at 8:24 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: I am back home. Don't know much yet, will find out more news from test results within a couple of weeks. Jeanie, you hang in there! I wonder if you can take benadryl..and if that will help your rash- as a reaction to the Ponatinib? Just a thought?? and yes Jeanie, my friend came with me. Could not have been there without them. :) WE get by with a little help from our friends...(good old song! :) B -----Original Message----- From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Tue, Feb 17, 2015 5:25 pm Subject: Re: [CMLHope] Good news Jeanie Good to hear from you Beth. I know you must've worn out. One day at Moffitt knocks me out. I've never had that many test in one day. No I never visited the arts center but will. I found the chapel--very nice. Visited the cafeteria and gift shop. As you walk into the adult senior oncology clinic there is a Starbucks coffee shop. Smells heavenly!!! Stay safe and I know you will be happy to go home. Is someone with you? Prayers & Blessings Jeanie . 18,s On Feb 16, 2015, at 10:30 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: I am so happy for your results as well.....I understand your feelings..I had to fast half the day today...and had to drink barium...ugh...but the test result for swallowing was fine..so then all was O.K....I wasn't worried about the swallow test at all...hopefully I will have good info by tomorrow... Take good care of yourself and know we are all praying daily for you.......did you find that lovely creative arts/spiritual center at Moffit where you can make lovely things and rest a spell????they have books too..just nice atmosphere....take care you....keep us posted....we will do the same...Beth -----Original Message----- From: 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Fri, Feb 13, 2015 8:18 am Subject: Re: [CMLHope] Good news Jeanie Hi Beth I am praying for your good results. I spent all day at Moffitt yest so I know how tiring it can be. I found the chapel in between appointments and said prayers for all. They had free coffee and pastries and wouldn't you know I had to fast before my cat scan hehe. I sure was hungry. I had the cat scan where they have to put an IV in and dye plus drink that awful contrast drink. I was so happy with my results I was numb I believe. Prayers & Blessings Jeanie 18's On Feb 13, 2015, at 12:28 AM, bkbarney via CMLHope <cmlhope@googlegroups.com> wrote: Jeanie!!! Yippee!!!! Happy dances are circling you as we speak!!! Miracles do happen all the time.. So glad SuzieQ you are feeling better....your numbers.....you are going to be fine...me too....we all hate to see any changes in our numbers that aren't positive movement... at the Mayo clinic..just drove in...doc appts tomorrow starting at 6:45 a.m....so good night, will keep you posted..I too am praying for a miracle...lets just pass the magic wand around....:) 18'sBeth -----Original Message----- From: Marty Gartenberg <wa2...@gmail.com> To: cmlhope <cmlhope@googlegroups.com> Sent: Thu, Feb 12, 2015 4:36 pm Subject: Re: [CMLHope] Good news Jeanie Hi Jeanie, What makes you say, (to almost normal)? Gee I have some news for you. They are normal. You also state that it is a miracle, well if you don't already know it you are a miracle! You must understand that things are just meant to be and you are just one of those things. There is an ancient Hebrew word, BASHERT, which means meant to be. I now think that you may realize just why I always end any of my posts with those two numbers. I see that your also using them. Good! 18's, (Symbol for life) Marty PS I am really happy for you and your progress. <35D.gif> HUGS! On Thu, Feb 12, 2015 at 3:32 PM, 'Icandoallttc' via CMLHope <cmlhope@googlegroups.com> wrote: Platelets down to under 400 and WBC were 7: that is a miracle. >From over a million to almost normal. The meds kicked in. Now worried they >might go to low. Hehe. Hemoglobin went down to 12.8 after holding at 13. Need >to ear some iron foods. Thanks for prayers. Prayers & Blessings Jeanie 18's <emoji_u1f420.png><emoji_u1f420.png> On Feb 12, 2015, at 10:57 AM, Suzieq <sheila.a.wat...@gmail.com> wrote: Holly: I am so glad to meet someone who also has Dr. Cashen as their doctor. I love Dr. Amanda Cashen and her nurse practitioner, Holly. As far as their testing goes, I am assuming that they are going to do all of it there from now on. I am glad that they don't have to overnight the blood any longer, but I feel I need someone to explain their testing to me. These numbers were so different than what I was use to seeing before when I tested positive. Then, it was always in the thousandths from the other place......this was 0.02%. I think that's what upset me so much, the not understanding. And, I didn't have anyone to explain it to me. Someone (Beth) here asked me if it was on the "International Scale"......I don't know. I am not at home right now, (visiting my mom in Florida), but I will check when I get home, if I can remember. Thank you all for your kind words. I'm in a much better place mentally & emotionally today than I was after opening those results. ***smile*** God reminded me by bringing that old McKamey song, "The God on the mountain, is still God in the valley" that night while I was feeling sorry for myself and doing laundry. LOL!! 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