Dear Greenie, I hope your test results come out O.K., and they can find a
simple explanation for your weight loss. So sorry you are going through the
stress of all this...thinking of you....
And Richard, as Sherri said, great news about your hemoglobin and the
collaboration of your docs on your behalf. Colonoscopy sounds reasonable...just
to rule out and give you peace of mind. Are you more tired than usual???
Stay positive and stay strong. Keep us posted...
And Sherri, so sorry you had to have a transfusion, but I hope it made you feel
better and stabilized your counts..
Still praying for Marty.
Jeannie, I know it's been a rough two months on ponatinib and you have felt
miserable...I hope it gets better with time, and maybe, you can take less of a
dose in months, years to come, if your doc recommends it to help you with the
toxicity. thinking of you...
Not a lot new to report here....still working on understanding and treating
muscle/ weakness/ elevated CPK etc...issues..will do more blood work to rule
out any other possible cancers lurking, but I don't think that is it..at least
I, like Greenie, sure hope not.
18's to all
Beth
-----Original Message-----
From: Myvety2k via CMLHope <cmlhope@googlegroups.com>
To: cmlhope <cmlhope@googlegroups.com>
Sent: Tue, Mar 10, 2015 5:31 am
Subject: Re: [CMLHope] CML visit
Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why.
Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going over to
get some blood work at 7 a.m. Comprehensive metabolic panel, cbc (no diff),
vitamin B12 level and TSH, Ultrasensitive. Also he want's me to have a
colonoscopy to screen for colon cancer Friday. I really don't need 2 different
kinds of cancer so I'm worried. Will let you all know what happens.
greenie
In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time,
swanson.sherri...@gmail.com writes:
Richard, That is great news about the your haemoglobin. I also think
it's great that your drs are talking to one another. That is so important.
Last week, I had to get a transfusion as my counts were so low. I went to my
onc and he did the usual blood draw and my WBC was 2.4. That was enough to
send me over to the hospital for type and cross match and a transfusion.
I too am eager to hear about Marty and pray for him everyday.
Sherri
On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope
<cmlhope@googlegroups.com> wrote:
Richard, excellent news and I'm happy to hear that your hemoglobin has
stabilized. Glad that your doctors are in sync, too, because that will
certainly make your life easier. Yay!
Marcie
Sent from my iPhone
On Mar 10, 2015, at 12:15 AM, Richard H < rbhuffm...@gmail.com>
wrote:
I visited my VA ONC today and both ONCs are bck on the same
page. The better news is it appears that my hemoglobin has stabilized at 10.5.
we are going to move forward with the testing program until the end of May.
Another piece of news that makes me very happy is that both ONC's works at
Kansas University Cancer Center. The VA contracts it's Doctors and Fellows
(Doctors in training). They can access all my records at both offices with the
new Cerner Medical Systems that are being installed world wide.
I am anxiously waiting for more news from Marty, and him keeping him my
prayers.
Richard H.
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