To all my CML friends and care takers, thank you for your replies and keeping me in your thoughts Bless you all, greenie In a message dated 3/10/2015 6:49:20 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes:
Thanks so much Beth. Your input means so much to me. I am fighting this dry skin--feels like leather. I am blond and fair and have always had dry and oily skin. I've got my eye doctor's check up next week--hope it's temporary and not doing to much damage. I pray that you resolve your health problems soon--hang in there and know we are praying for you and all. Prayers & Blessings Jeanie 🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠🐠. 18,s On Mar 10, 2015, at 5:29 PM, bkbarney via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Dear Greenie, I hope your test results come out O.K., and they can find a simple explanation for your weight loss. So sorry you are going through the stress of all this...thinking of you.... And Richard, as Sherri said, great news about your hemoglobin and the collaboration of your docs on your behalf. Colonoscopy sounds reasonable...just to rule out and give you peace of mind. Are you more tired than usual??? Stay positive and stay strong. Keep us posted... And Sherri, so sorry you had to have a transfusion, but I hope it made you feel better and stabilized your counts.. Still praying for Marty. Jeannie, I know it's been a rough two months on ponatinib and you have felt miserable...I hope it gets better with time, and maybe, you can take less of a dose in months, years to come, if your doc recommends it to help you with the toxicity. thinking of you... Not a lot new to report here....still working on understanding and treating muscle/ weakness/ elevated CPK etc...issues..will do more blood work to rule out any other possible cancers lurking, but I don't think that is it..at least I, like Greenie, sure hope not. 18's to all Beth -----Original Message----- From: Myvety2k via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > To: cmlhope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > Sent: Tue, Mar 10, 2015 5:31 am Subject: Re: [CMLHope] CML visit Hi Group, As of last Tuesday I have lost 5 pounds and I don't know why. Been eating O. K. so I went to my Reg. Doctor yesterday and I'm going over to get some blood work at 7 a.m. Comprehensive metabolic panel, cbc (no diff), vitamin B12 level and TSH, Ultrasensitive. Also he want's me to have a colonoscopy to screen for colon cancer Friday. I really don't need 2 different kinds of cancer so I'm worried. Will let you all know what happens. greenie In a message dated 3/10/2015 4:00:08 A.M. Eastern Daylight Time, _swanson.sherri460@gmail.com_ (mailto:swanson.sherri...@gmail.com) writes: Richard, That is great news about the your haemoglobin. I also think it's great that your drs are talking to one another. That is so important. Last week, I had to get a transfusion as my counts were so low. I went to my onc and he did the usual blood draw and my WBC was 2.4. That was enough to send me over to the hospital for type and cross match and a transfusion. I too am eager to hear about Marty and pray for him everyday. Sherri On Mon, Mar 9, 2015 at 11:19 PM, 'Marcie Goodman' via CMLHope <_cmlhope@googlegroups.com_ (mailto:cmlhope@googlegroups.com) > wrote: Richard, excellent news and I'm happy to hear that your hemoglobin has stabilized. Glad that your doctors are in sync, too, because that will certainly make your life easier. Yay! Marcie Sent from my iPhone On Mar 10, 2015, at 12:15 AM, Richard H < _rbhuffman1@gmail.com_ (mailto:rbhuffm...@gmail.com) > wrote: I visited my VA ONC today and both ONCs are bck on the same page. The better news is it appears that my hemoglobin has stabilized at 10.5. we are going to move forward with the testing program until the end of May. Another piece of news that makes me very happy is that both ONC's works at Kansas University Cancer Center. The VA contracts it's Doctors and Fellows (Doctors in training). They can access all my records at both offices with the new Cerner Medical Systems that are being installed world wide. I am anxiously waiting for more news from Marty, and him keeping him my prayers. Richard H. -- -- [CMLHope] A support group of _http://cmlhope.com_ (http://cmlhope.com/) ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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